Emily Kirby

Emily is a lawyer and Academic Associate at the Centre of Genomics and Policy (CGP), McGill University. She holds degrees in biology (B.Sc. McGill University), a Master’s in Environmental Project Management (M. Env., Université de Sherbrooke), and a Civil Law degree (LL. B., Université de Montréal). She has been a member of the Québec Bar since 2011. Prior to joining the CGP, Emily was a project coordinator at the Public Population Project in Genomics and Society (P3G).

She currently works on the development of ethical and legal documents and tools used to facilitate policy interoperability and data sharing in the context of data-intensive research (-omics, clinical data, etc.). Emily has been involved in examining ethical, legal and policy issues in a number of Canadian and international data sharing initiatives (e.g. MSSNG database, Care4Rare-SOLVE, Terry-Fox PROFYLE, International Cancer Genome Consortium (ICGC) for medicine, Human Cell Atlas, Global Alliance for Genomics and Health task forces, Transforming Autism Care Consortium’s Q1K project, etc.). She is currently the Academic Coordinator of the Ethics Working Group of the Human Cell Atlas (HCA; https://www.humancellatlas.org/).


Omics Data Sharing, Biobanking, Data Governance, Open Science, Biomedical Ethics, Data Privacy, Research Ethics Tools