Description: The meeting will bring together expert members of the Genetic Discrimination Observatory (GDO) and aims to provide a forum for discuss findings on genetic discrimination, provide an update on the GDOs activities to date, and establish a collaborative agenda for next year.
McGill University – Genome Centre Room 6001
1PM – 2PM
Genomic Research on Indigenous Peoples: The Landscape in Japan
Invited Speaker: Momoko Sato
Research Associate, RIKEN Centre for the Integrative Medical Sciences
HaploTalks special seminar on “Genomic Research on Indigenous Peoples: The Landscape in Japan”
Scientific research on Indigenous people has a long history of disregarding the rights and interests of subjects. In Japan, past excavations of Ainu human remains have been condemned, but Japanese regulations have not recognized the need to address ethnic minorities. Therefore, the Ainu Association of Hokkaido and three anthropology and archaeology academic societies recently established the draft Ethical Guidelines for Research on Ainu People.
In this presentation, Momoko Sato outlines the draft guidelines’ background, contributions, and limitations. According to the draft guidelines, a research ethics committee will be established to make decisions on conducting individual studies. Although important components of community-based research, such as the dissemination of research findings, were addressed, it remains critical to monitor research practices as the draft guidelines may not cover every related study.