. CGP Centre of Genomics and Policy CGP Centre of Genomics and Policy

CPG Centre of Genomics and policy

Publications

Ma'n H. Zawati

2022

Author(s) Lambert D.M., Patrinos D., Knoppers B.M., GenCOUNSEL Study, Zawati M.H.
Title Genetic counselors and legal recognition: A made-for-Canada approach
Reference

31:1 (2022) Journal of Genetic Counseling, 49-58.


Author(s) Lang M., Zawati M.H.
Title Returning individual research results in international direct-to-participant genomic research: results from a 31-country study
Reference

(2022) European Journal of Human Genetics, 1-6.


Author(s) Rothstein M.A., Zawati M.H., Thorogood A., Beauvais M.J.S., Joly Y., Brothers K.B., Lang M.B., Andanda P., Ho C., Isasi R., Kaye J., Lee W.B., Nnamuchi O., Saltzman A., Knoppers B.M.
Title Streamlining ethics review for international health research
Reference

375:6583 (2022) Science, 825-826.


Author(s) Song L., Liu H., Brinkman F., Gill E., Griffiths E., Hsiao W., Savi?-Kallesøe, Moreira S., Van Domselaar G., Zawati M.H., Joly Y.
Title Addressing Privacy Concerns in Sharing Viral Sequences and Minimum Contextual Metadata in a Public Repository during the COVID-19 Pandemic
Reference

12:716541 (2022) Frontiers in Genetics, 1-10.


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2021

Author(s) Al-Hussaini M., Mansour A.H., Arawi T.A., Zawati M.H., Morreim H.
Title Editorial: Bioethics Amidst the COVID-19 Pandemic
Reference

8 (2021) Frontiers in Medicine, 1-3.

https://doi.org/10.3389/fmed.2021.778146

Author(s) Beauvais M.J.S., Thorogood A., Szego M.J., Sénécal K., Zawati M.H., Knoppers B.M.
Title Parental Access to Children’s Raw Genomic Data in Canada: Legal Rights and Professional Responsibility
Reference

Frontiers in Genetics 12 (2021).

https://doi.org/10.3389/fgene.2021.535340

Author(s) Bouthillier D., Zawati M.H., Joly Y.
Title Personalised Medicine – Introduction to the Technology
Reference

(2021) Lexis Nexis, LexisPSL practice note.

https://www.lexisnexis.co.uk/legal/guidance/personalised-medicine-introduction-to-the-technology

Author(s) Joly Y., Huerne K., Arych M., Bombard Y., De Paor A., Dove E.S., Granados Moreno P., Ho C.W.L., Ho C.H., Hoyweghen I.V., Kim H., Lebret A., Minssen T., Cathaoir K.O., Prince A.E.R., Nair A.P.S., Otlowski M., Pepper M.S., Sladek R., Song L., Voigt T.H., Zawati M.H., Dalpé G.
Title The Genetic Discrimination Observatory: confronting novel issues in genetic discrimination
Reference

37:11 (2021) Trends in Genetics, 951-954.

https://www.cell.com/trends/genetics/fulltext/S0168-9525(21)00228-6

Author(s) Lang M., Lemieux S., Hébert J., Sauvageau G., Zawati M.H.
Title Legal and Ethical Considerations for the Design and Use of Web Portals for Researchers, Clinicians, and Patients: Scoping Literature Review
Reference

(2021) 23(11) Journal of Medical Internet Research, 1-13.


Author(s) Luu J.M., Sergeant A.K., Anand S.S., Desai D., Schulze K., Knoppers B.M., Zawati M.H., Smith E.E., Moody A.R., Black S.E., Larose E., Marcotte F., Kleiderman E., Tardif J.C., Lee D.S., Friedrich M.G., on behalf of the CAHHM Study Investigators
Title The impact of reporting magnetic resonance imaging incidental findings in the Canadian alliance for healthy hearts and minds cohort
Reference

(2021) BMC Medical Ethics, 22(145): 1-15.

https://bmcmedethics.biomedcentral.com/articles/10.1186/s12910-021-00706-3

Author(s) Marwa B., Krueger J., Stephenson E.A., Davidson S., Allan D., Knoppers B.M., Zawati M.H., Sullivan P., Shlien A., Malkin D., Fernandez C.V., Villani A.
Title Ethical and Analytic Challenges With Genomic Sequencing of Relapsed Hematologic Malignancies Following Allogeneic Hematopoietic Stem-Cell Transplantation
Reference

(2021) 5 JCO Precision Oncology, 1339-1347.


Author(s) Vodosin P., Jorgensen A.K., Mendy M., Kozlakidis Z., Caboux E., Zawati M.H., and on behalf of the BCNet members
Title A Review of Regulatory Frameworks Governing Biobanking in the Low and Middle Income Member Countries of BCNet
Reference

(2021) Biopreservation and Biobanking, Preprint.


Author(s) Wu Y., Marc I., Bouchard L., et al. (including Knoppers B.M., Zawati M.H.)
Title Study protocol for the Sino-Canadian Healthy Life Trajectories Initiative (SCHeLTI)
Reference

(2021) 11:4 JBM Open, 1-12.


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2020

Author(s) Barnes R., Votova K., Rahimzadeh V., Osman N., Penn A.M., Zawati M.H., Knoppers B.M.
Title Biobanking for Genomic and Personalized Health Research: Participant Perceptions and Preferences
Reference

(2020) 18:3 Biopreservationa and Biobanking 204-212.


Author(s) Knoppers B.M., Beauvais M.J.S., Joly Y., Zawati M.H., Rousseau S., Chassé M., Mooser V.
Title Modelling Consent in the Time of COVID-19
Reference

(2020) 7:1 Journal of Law and the Biosciences 1-6.


Author(s) Lang M., Zawati M.H., Knoppers B.M.
Title International mHealth Research: Old Tools and New Challenges
Reference

(2020) 48:1 Journal of Law, Medicine, & Ethics 178-186.


Author(s) Martinent E., Zawati M.H.
Title Le virage numérique comme vecteur d’égalité (territoriale) en santé (I) / The digital shift as a vector of (territorial) equality in health (I)
Reference

(2020) 15 Ethics, Medicine and Public Health. 


Author(s) Pastorino R., Lang M., Zawati M.H., Calabrò G.E., Hoxhaj I., Houwink E.J.F., Sassano M., Boccia S.
Title Ethico-Legal and Policy Issues Surrounding Personalised Medicine
Reference

(2021)  Personalised Health Care: Fostering Precision Medicine Advancements for Gaining Population Health Impact, 57–76


Author(s) Patrinos D., Caron R., Knoppers B.M., GenCOUNSEL Study, Zawati M.H.
Title Genetic Counsellors, Legal Recognition and the Road Less Travelled
Reference

(2020) 14:1 McGill Journal of Law and Health 109-144.

https://mjlh.mcgill.ca/genetic-counsellors-legal-recognition-and-the-road-less-travelled/

Author(s) Pinkesz M., Marrocco G., Joly Y., Zawati M.H.
Title Re-examining the Canadian law of informed consent to medical treatment in the age of informatics
Reference

(2020) Informed Consent and Health: A Comparative Analysis 32-73


Author(s) Thorogood A., Zawati M.H., Knoppers B.M.
Title Oversight, governance, and policy for making decisions about return of individual genomic findings
Reference

(2020) Secondary Finding in Genomic Research: Translational and Applied Genomics  29-41


Author(s) Unim B., De Vito C., Hagan J., Villari P., Knoppers B.M., Zawati M.H.
Title The Provision of Genetic Testing and Related Services in Quebec, Canada
Reference

(2020) 11 Frontiers in Genetics 127.


Author(s) Zawati M.H., Lang M.
Title What’s in the Box?: Uncertain Accountability of Machine Learning Applications in Healthcare
Reference

(2020) 20:11 The American Journal of Bioethics 37-40.


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2019

Author(s) Knoppers B.M., Thorogood A., Zawati M.H.
Title Letter: Relearning the 3 R’s? Reinterpretation, recontact, and return of genetic variants
Reference

(2019) Genetics in Medicine, doi:10.1038/s41436-019-0494-1.


Author(s) Rothstein M., Zawati M.H., Beskow L.M., Brelsford K., Brothers K., Hammack C., Hazel J., Joly Y., Lang M., Patrinos D., Saltzman A., Knoppers B.M.
Title Legal and Ethical Challenges of International Direct-to-Participant Genomic Research: Conclusions and Recommendations
Reference

 (2019) 47:4 Journal of Law, Medicine and Ethics, 705-731


Author(s) Rothstein M.A., Zawati M.H., et al. (including Knoppers B.M. and Joly Y.)
Title Legal and Ethical Challenges of International Direct-to-Participant Genomic Research: Conclusions and Recommendations
Reference

 (2019) 47(4), J Law Med Ethics, 705-731, doi: 10.1177/1073110519898297.


Author(s) Rothstein M.A., Zawati M.H., Knoppers B.M.
Title Regulatory Landscape of International Direct-to-Participant (DTP) Genomic Research: Time to Untie the Gordian Knot?
Reference

(2019) 47(2) The Journal of Law, Medicine & Ethics, 336-341.

https://journals.sagepub.com/doi/pdf/10.1177/1073110519857291

Author(s) Thorogood A., Bernier A., Zawati M.H., Knoppers B.M.
Title A Legal Duty of Genetic Recontact in Canada
Reference

 Health Law in Canada. 2019; 40(2): 58-80.


Author(s) Zawati M.H.
Title Introduction to the Country Reports
Reference

 (2019) 47(4) J Law Med Ethics, 581, doi: 10.1177/1073110519897735.


Author(s) Zawati M.H., Chalmers D., et al.
Title Country Reports
Reference

 (2019) 47(4) J Law Med Ethics, 582-704, doi: 10.1177/1073110519897736.


Author(s) Zawati M.H., Knoppers B.M.
Title Reciprocity and the Quest for Meaningful Disclosure
Reference

The American Journal of Bioethics. 2019; 15(5): 36-38.


Author(s) Zawati M.H., Lang M.
Title Mind the App: Considerations for the Future of Mobile Health in Canada
Reference

(2019) 7(11) JMIR Mhealth Uhealth, e15301, 1-3.


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2018

Author(s) Dummer T.J.B., Awadalla P., et al. (including Knoppers B.M., Zawati M.)
Title The Canadian Partnership for Tomorrow Project: a pan-Canadian platform for research on chronic disease prevention
Reference

(2018) 109:23 Canadian Medical Association Journal (CMAJ), E710-E717.


Author(s) Kirby E., Tassé A.M., Ma’n H. Zawati M., Knoppers B.M.
Title L’accès et le partage de l’information par les chercheurs en génomique
Reference

 Document d’orientation politique (Montréal: Génome Québec, 2018).


Author(s) Kirby E., Tassé A.M., Zawati M., Knoppers B.M.
Title Data Access and Sharing by Researchers in Genomics
Reference

 (Montréal: Génome Québec, March 2018).


Author(s) Kleiderman E., Pack A., Borry P., Zawati M.H.
Title The author who wasn’t there? Fairness and attribution in publications following access to population biobanks
Reference

(2018) 13:3 PLoS ONE, e0194997


Author(s) Lang M., Zawati M.H.
Title The App Will See You Now: Mobile Health, Diagnosis, and the Practice of Medicine in Quebec and Ontario
Reference

 (2018) Journal of Law and the Biosciences, 1-32.


Author(s) Zawati M.H., Joly Y., Knoppers B.M.
Title L’autonomie basée sur l’individualisme libéral : les limites dans le contexte des biobanques populationnelles
Reference

in Hervé C, eds., Mélanges, (2018), 279-293.

 


Author(s) Zawati M.H., Tassé A.M., Mendy M., Caboux E., Lang M.
Title Barriers and Opportunities in Consent and Access Procedures in Low- and Middle-Income Country Biobanks: Meeting Notes from the BCNet Training and General Assembly
Reference

(2018) Biopreservation and Biobanking, 10.1089/bio.2017.0081.


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2017

Author(s) Moore S., Tassé A.M., Thorogood A., Winship I., Zawati M. & Doerr M.
Title A Systemic Review of Consent Processes for Mobile App Mediated Research
Reference

JMIR mHealth and uHealth, 5(8).


Author(s) Pupavac M., Zawati M.H., Rosenblatt D.S.
Title A RaDiCAL gene hunt
Reference

Journal of Taibah University Medical Sciences, 2017. 12(3): 194-198.

http://www.sciencedirect.com/science/article/pii/S1658361216301470

Author(s) Zawati M.H., Lang M.
Title Biobank donors and the concept of benefit: time for reciprocity
Reference

(2017) 4:2 J of Law and Biosciences, 371-376.


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2016

Author(s) Clayton E.W., Zawati M.H.
Title Chapter 6 - Legal Aspects of Health Applications of Genomics
Reference

 Genomics and Society - Ethical, Legal, Cultural and Socioeconomic Implications (London: Elsevier, 2016)

http://www.sciencedirect.com/science/article/pii/B9780124201958000069

Author(s) Ghaly M, Sadoun E, Alkuraya F, Fakhro K, Zawati M.H., Ismail S & Ben-Omran T
Title Genomics in the Gulf Region and Islamic Ethics
Reference

A Special Report in Collaboration with the Research Center for Islamic Legislation and Ethics


Author(s) Knoppers B.M., Nguyen M.T., Sénécal K., Tassé A.M., Zawati M.H.
Title Next-Generation Sequencing and the Return of Results
Reference

Cold Spring Harb Perspect Med


Author(s) Knoppers B.M., Sénécal K., Boisjoli J., Borry P., Cornel M.C., Fernandez C.V., Grewal J., Holm I.A., Nelson E., Pinxten W., Shabani M., Tassé A.M., Zawati M.H., Wright Clayton E, on behalf of the P3G International Paediatric Research Platform
Title Recontacting Pediatric Research Participants for Consent When They Reach the Age of Majority
Reference

(2016) 38:6 IRB: Ethics and Human Research, 1


Author(s) Salman S., Vardatsikos G., Avard D., Palmour N., Dewar K. & Zawati M.H.
Title FMT Happens: Regulating Fecal Microbiota Therapy in Canada; What you Need to Know
Reference

(2016) 8:1 World Medical & Health Policy, 95-106


Author(s) Thorogood A., Zawati M.H.
Title International Guidelines for Privacy in Genomic Biobanking (Or the Unexpected Virtue of Pluralism)
Reference

 (2016) 43 Journal of Law, Medicine and Ethics, Special Issue, 690-702.


Author(s) Zawati M.H., Knoppers B.M.
Title Population Biobanks and the Principle of Reciprocity
Reference

Hainault P, Vaught J, Pasterk M and Zatlookal K, eds., Biobanking of Human Specimens, (New York: Springer, 2016).

http://www.springer.com/gp/book/9783319551180#aboutBook

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2015

Author(s) Bertier G., Zawati M.H., Joly Y.
Title The Role of Whole Genome and Whole Exome Sequencing in Preventive Genomic Sequencing Programs
Reference

 (2015) 15:7 Am. J. Bioethics, 22

http://www.tandfonline.com/doi/pdf/10.1080/15265161.2015.1039732

Author(s) Boycott K., Hartley T., Adam S., Bernier F., Chong K., Fernandez B.A., Friedman J.M., Geraghty M.T., Hume S., Knoppers B.M., Laberge A.-M., Majewski J., Mendoza-Londono R., Meyn M.S., Michaud J.L., Nelson T.N., Richer J., Sadikovic B., Skidmore D.L., Stockley T., [...] Zawati M.H., et al
Title The clinical application of genome-wide sequencing for monogenic diseases in Canada: Position Statement of the Canadian College of Medical Geneticists
Reference

(2015) 52:7 Journal of Medical Genetics, 431


Author(s) Dove E.S., Zawati M.H.
Title Amendments to the Civil Code of Québec's Research Provisions: A Legislative Comment
Reference

(2015) 8:1 McGill JL & Health 79

http://mjlh.mcgill.ca/pdfs/vol8-1/MJLH%208_1_DoveZawati.pdf

Author(s) Knoppers B.M., Zawati M.H., Sénécal K.
Title Return of genetic testing results in the era of whole-genome sequencing
Reference

(2015) 16:9 Nature Reviews Genetics, 553

http://www.nature.com/nrg/index.html

Author(s) Thorogood A., Zawati M.H.
Title International Guidelines for Privacy in Genomic Biobanking (or the Unexpected Virtue of Pluralism)
Reference

(2015) 43:4 Journal of Law, Medicine and Ethics, 690


Author(s) Zawati M.H., Junker A., Knoppers B.M., Rahimzadeh V.
Title Streamlining review of research involving humans: Canadian models
Reference

 (2015) 52:8 J. Med. Genet., 566

http://jmg.bmj.com/content/current

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2014

Author(s) Dove E.S., Knoppers B.M., Zawati M.H.
Title Towards an Ethics Safe Harbor for Global Biomedical Research
Reference

(2014) 1:1 Journal of Law and the Biosciences, 3

http://jlb.oxfordjournals.org/content/1/1/3.full.pdf+html

Author(s) Knoppers B.M., Avard D., Sénécal K., Zawati M.H., P3G International Paediatrics Platform Members
Title Return of Whole-Genome Sequencing Results in Paediatric Research: A Statement of the P3G International Paediatrics Platform
Reference

(2014) 22:1 European Journal of Human Genetics, 3


Author(s) Knoppers B.M., Zawati M.H., Cohen E.
Title Special Issue - From Biobanks to the Clinic
Reference

(2014) 3:2 Applied & Translational Genomics, 21


Author(s) McGuire A.L., Knoppers B.M., Zawati M.H., Clayton E.W.
Title Can I be Sued for that? Liability Risk and the Disclosure of Clinically Significant Genetic Research Findings
Reference

(2014) 24:5 Genome Research, 719


Author(s) Thorogood A., Zawati M.H., Knoppers B.M.
Title Point-of-Care Genetic Tests for Infectious Disease: Legal Considerations
Reference

(2014) 12:1 Current Pharmacogenomics and Personalized Medicine, 43


Author(s) Zawati M.H.
Title There will be sharing: Population Biobanks, the duty to inform and the limitations of the individualistic conception of autonomy
Reference

(2014) 21 Health Law Journal, 97


Author(s) Zawati M.H.
Title Liability and the Legal Duty to Inform in Research
Reference

Routledge Handbook of Medical Law and Ethics (London: Routledge, 2014)


Author(s) Zawati M.H., Cohen E, Parry D, Avard D and Syncox D
Title Ethics Education for Clinician-Researchers in Genetics: The Combined Approach
Reference

(2014) Applied and Translational Genomics Journal,doi:10.1016/j.atg.2014.12.001


Author(s) Zawati M.H., Parry D., Thorogood A., Nguyen M.T., Boycott K., Rosenblatt D., Knoppers B.M.
Title Reporting Results from Whole-Genome and Whole-Exome Sequencing in Clinical Practice: A Proposal for Canada?
Reference

(2014) 51:1 Journal of Medical Genetics, 68


Author(s) Zawati M.H., Thorogood A.
Title The physician who knew too much: A comment on Watters v White
Reference

(2014) 21 Health Law Journal, 1


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2013

Author(s) Black L., Avard D., Zawati M.H., Knoppers B.M., Hébert J., Sauvageau G.
Title Funding Considerations for the Disclosure of Genetic Incidental Findings in Biobank Research
Reference

(2013) 84:5 Clinical Genetics, 397


Author(s) Dove E.S., Knoppers B.M., Zawati M.H.
Title An Ethics Safe Harbor for International Genomics Research?
Reference

(2013) 5:11 Genome Medicine, 99

http://genomemedicine.com/content/5/11/99/

Author(s) Kirby E., Zawati M.H., Knoppers B.M.
Title Electronic Consent to Health Research in Canada
Reference

(2013) 91:2 Canadian Bar Review, 417


Author(s) Knoppers B.M., Deschênes M., Zawati M.H., Tassé A.M.
Title Population Studies: Return of Research Results and Incidental Findings Policy Statement
Reference

(2013) 21:3 European Journal of Human Genetics, 245


Author(s) Sénécal K., Lévesque E., Fernandez C., Tassé A.M., Zawati M.H., Knoppers B.M., Avard D.
Title RMGA Statement of Principles on the Return of Research Results and Incidental Findings
Reference (Montréal, RMGA, 2013)
http://www.rmga.qc.ca/en/documents/RMGAStatement_Principles_English_May272013_000.pdf

Author(s) Sénécal K., Lévesque E., Fernandez C., Tassé A.M., Zawati M.H., Knoppers B.M., Avard D.
Title Énoncé de principes du RMGA sur la communication des résultats de recherche et des découvertes fortuites
Reference
http://www.rmga.qc.ca/fr/documents/EnonceduRMGA_versionfr_27mai2013.pdf

Author(s) Zawati M.H.
Title Biobanques destinées à la recherche: introduction et défis majeurs
Reference dans Actes: 6e edition, Journées d’étude des comités d’éthique de la recherche et de leurs partenaires (Québec, La Direction des communications du ministère de la Santé et des Services sociaux, 2013), 20-25.
http://ethique.msss.gouv.qc.ca/fileadmin/documents/JECER/JECER_6/Actes_6/JECER_2012_Actes.pdf

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2012

Author(s) Knoppers B.M., Zawati M.H.
Title Biobanks
Reference Encyclopedia of Applied Ethics (San Diego: Academic Press, 2012)

Author(s) Knoppers B.M., Zawati M.H., Kirby E.S.
Title Sampling Populations of Humans Across the World: ELSI Issues
Reference

(2012) 13:1 The Annual Review of Genomics and Human Genetics, 395


Author(s) Zawati M.H.
Title Les conseillers en génétique et les professions médicales et infirmières au Québec: des frontières brouillées ?
Reference

(2012) 6:1 MJLH 137


Author(s) Zawati M.H., Knoppers B.M.
Title International Normative Perspectives on the Return of Individual Research Results and Incidental Findings in Genomic Biobanks
Reference

(2012) 14:4 Genetics in Medicine, 484


Author(s) Zawati M.H., Rioux A.
Title Les biobanques et le retour des résultats de recherche : quo vadis ?
Reference (2012) Actions pour la santé et la recherché médicale en faveur des personnes vulnérables et des pays émergents - IVe Forum des jeunes chercheurs (Les Études Hospitalières, 2012), 283-294

Author(s) Zawati M.H., Rioux A., Hétu M. et al.
Title Rapport Final - Le médecin face aux nouvelles technologies dans le domaine médical: nouvelles responsabilités?
Reference Final Report, Canadian Bioethics Society's Pre-conference Expert Forum, 2012.
http://www.genomicsandpolicy.org/Ressources/RapportFinalSeptembre2012.pdf

Author(s) Zawati M.H., Tassé A.M.
Title To Share or Not to Share? Secondary Use in Public Health Emergencies
Reference in Canadian Institutes of Health Research – Institute of Population and Public Health. (2012). Population and Public Health Ethics: Cases from Research, Policy, and Practice. University of Toronto Joint Centre for Bioethics: Toronto, ON.

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2011

Author(s) Joly Y., Koutrikas G., Ramos-Paque E., Zawati M.H., Gardy J.
Title Diagnostic Testing for Vaccinomics: Is the Regulatory Approval Framework Adequate? A Comparison of Canada, the United States and Europe
Reference

(2011) 15:9 OMICS, 597


Author(s) Knoppers B.M., Harris J.R., Tassé A.M., Budin-Ljøsne I., Kaye J., Deschênes M., Zawati M.
Title Towards a data sharing Code of Conduct for international genomic research
Reference

(2011) 3:7 Genome Medicine, 1


Author(s) Knoppers B.M., Zawati M.H.
Title Population Biobanks and Access
Reference in S. Rodota, P. Zatti (eds.), Il Governo del Corpo: Trattato di Biodiritto, Giuffrè Editore, 1181-1194

Author(s) Knoppers B.M., Zawati M.H.
Title De l'éthique et des avocats: les comités d'éthique dans le milieu hospitalier
Reference

in Éthique, profession juridique et société - Collection de droit 2011-2012, volume hors série, École du Barreau (Cowansville: Éditions Yvon Blais, 2011)


Author(s) Ngueng Feze I., Joly Y., Zawati M., Knoppers B.M.
Title Genomic Population Biobanks: Legal, Ethical and Social Aspects
Reference (Paris, UIA, 2011)

Author(s) Ozdemir V., Pang T., Knoppers B.M., Avard, D., Faraj S.A., Zawati M.H., Kolker E.
Title Vaccines of the 21st Century and Vaccinomics: Data-Enabled Science Meets Global Health to Spark Collective Action for Vaccine Innovation.
Reference

 (2011) 15:9 OMICS,  523

http://www.liebertonline.com/doi/abs/10.1089/omi.2011.03ed

Author(s) Ozdemir V., Rosenblatt D., Warnich L., Srivastava S., Tadmouri G., Aziz R., Reddy P., Manamperi A., Dove E.S., Joly Y., Zawati M., Hizel C., Yazan Y., John L., Vaast E., Ptolemy A., Faraj S., Kolker E., Cotton R.G.H.
Title Towards an Ecology of Collective Innovation: Human Variome Project (HVP), Rare Disease Consortium for Autosomal Loci (RaDiCAL) and Data-Enabled Life Sciences Alliance (DELSA)
Reference

(2011) 9:4 Current Pharmacogenomics and Personalized Medicine, 243

http://www.benthamdirect.org/pages/content.php?CPPM/2011/00000009/00000004/002AF.SGM

Author(s) Zawati M.H., Borry P., Howard H.C.
Title Closure of Population Biobanks and Direct-to-Consumer Genetic Testing Companies
Reference

(2011) 130:3 Human Genetics, 425


Author(s) Zawati M.H., Hendy M., Joly Y.
Title Incidental Findings in Data Intensive Postgenomics Science and Legal Liability of Clinician-Researchers: Ready for Vaccinomics?
Reference

(2011) 15:9 OMICS, DOI: 10.1089/omi.2010.0137


Author(s) Zawati M.H., Knoppers B.M., Rioux A.
Title Guidance for Biobanks: Models of Consent for Public Health
Reference

Report submitted to the Public Health Agency of Canada (PHAC), 18 March 2011


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