. CGP Centre of Genomics and Policy CGP Centre of Genomics and Policy

CPG Centre of Genomics and policy

Publications

Derek So

2022

Author(s) Driver H.G., Hartley T., Price EM., Turinsky A.L., Buske O.J., Osmond M., Ramani A.K., Kirby E., Kernohan K.D., Couse M., Elrick H., Lu K., Mashouri P., Mohan A., So D., Klamann C., Le HGBH., Herscovich A., Marshall C.R., Statia A., Care4Rare Canada Consortium, Knoppers B.M., Brudno M., Boycott K.M.
Title Genomics4RD: An integrated platform to share Canadian deep-phenotype and multi-omic data for international rare disease gene discovery
Reference

(2022) Special Issue for MatchMaker Exchange: Human Mutation, 1-12.


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2021

Author(s) So D., Crocker K., Sladek R., Joly Y.
Title Science Fiction Authors’ Perspectives on Human Genetic Engineering in Fiction
Reference

(2021) BMJ Medical Humanities, 1-13.

https://pubmed.ncbi.nlm.nih.gov/33893225/

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2017

Author(s) So D., Kleiderman E., Touré S.B., Joly Y.
Title Disease Resistance and the Definition of Genetic Enhancement
Reference

 (2017) 8 Frontiers in Genetics, 40


Author(s) So D., Knoppers B.M.
Title Ethics approval in applications for open-access clinical trial data: an analysis of researcher statements to clinicalstudydatarequest.com
Reference

(2017) PLOS One 


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2016

Author(s) Joly Y., So D., Osien G., Crimi L., Bobrow M., Chalmers D., Wallace S., Zeps N., Knoppers B.M.
Title A Decision Tool to Guide the Ethics Review of a Challenging Breed of Emerging Genomics Projects
Reference

(2016) 24:8 European Journal of Human Genetics, 1099


Author(s) Joly Y., So D., Saulnier K., Dyke S.O.
Title Epigenetics ELSI: Darker Than You Think?
Reference

(2016) 32:10 Trends in Genetics, 591


Author(s) Saulnier K.M., So D., Joly Y.
Title Teaching to the test
Reference

(2016) 3:2 Journal of Law and the Biosciences, 373


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2015

Author(s) Joly Y., Dalpé G., So D., Birko S.
Title Fair Shares and Sharing Fairly: A Survey of Public Views on Open Science, Informed Consent and Participatory Research in Biobanking
Reference
(2015) 10:7 PLoS ONE e0129893

 

http://dx.doi.org/10.1371/journal.pone.0129893

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2013

Author(s) So D., Joly Y.
Title Commercial Opportunities and Ethical Pitfalls in Personalized Medicine: A Myriad of Reasons to Revisit the Myriad Genetics Saga
Reference

(2013) 11:2 Current Pharmacogenomics and Personalized Medicine, 98

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3715893/

Author(s) So D., Joly Y., Knoppers B.M.
Title Clinical Trial Transparency and Orphan Drug Development: Recent Trends in Data Sharing by the Pharmaceutical Industry
Reference

(2014) 16:6 Public Health Genomics, 322


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