. CGP Centre of Genomics and Policy CGP Centre of Genomics and Policy

CPG Centre of Genomics and policy

Publications

Erika Kleiderman

2019

Author(s) Bubela T., Kleiderman E., Master Z., Ogbogu U. et al. (including Knoppers B.M.)
Title Canada’s Assisted Human Reproduction Act: Pragmatic reforms in support of research
Reference

 (2019) 6 Frontiers in Medicine, 157


Author(s) Kleiderman E.
Title The regulation of human germline genome modification in Canada
Reference

(2019) In A. Boggio, J. Almqvist & C. P. R. Romano (Eds.), Human germline genome modification and the right to science: A comparative study of national laws and policies. Cambridge: Cambridge University Press


Author(s) Kleiderman E. & Ogbogu U.
Title Realigning gene editing with clinical research ethics: What the “CRISPR twins” debacle means for Chinese and international research ethics governance
Reference

 (2019) 26:4 Accountability in Research, 257-264


Author(s) Kleiderman E. & Stedman I.
Title Human germline genome editing is illegal in Canada, but could it be desirable for some members of the rare disease community?
Reference

 (2019) Journal of Community Genetics, doi: 0.1007/s12687-019-00430-x


Author(s) Kleiderman E., Ravitsky V. & Knoppers B.M.
Title ‘Serious’ factor—a relevant starting point for further debate: A response
Reference

 (2019) Journal of Medical Ethics, doi: 10.1136/medethics-2019-105832


Author(s) Kleiderman E., Ravitsky V., Knoppers B.M.
Title The ‘serious’ factor in germline modification
Reference

 (2019) Journal of Medical Ethics, doi: 10.1136/medethics-2019-105436.


Author(s) Kleiderman E., Thompson R., Boily A., Borry P. et al. (including Knoppers B.M.)
Title Doping controls and the "mature minor" elite athlete: Towards clarification?
Reference

 (2019) International Journal of Sport Policy and Politics, doi: 10.1080/19406940.2019.1680416


Author(s) Knoppers B.M. & Kleiderman E.
Title Heritable genome editing: Who speaks for “future” children?
Reference

 (2019) 2:5 The CRISPR Journal, 285-292


Author(s) Knoppers B.M. & Kleiderman E.
Title "CRISPR babies": What does this mean for science and Canada?
Reference

 (2019) 191:4 Canadian Medical Association Journal, E91-E92


Author(s) Middleton A., Milne R., Howard H., Niemec E. et al. (including Kleiderman E. and Thorogood A.)
Title Members of the public in the USA, UK, Canada and Australia expressing genetic exceptionalism say they are more willing to donate their genomic data
Reference

 (2019) European Journal of Human Genetics, doi: 10.1038/s41431-019-0550-y


Author(s) Milne R., Morley K.I., Howard H., Niemiec E. et al. (including Thorogood A. & Kleiderman E.)
Title Trust in genomic data sharing among members of the general public in the UK, USA, Canada and Australia
Reference

 (2019) Human Genetics, doi: 10.1007/s00439-019-02062-0.


Author(s) Ravitsky V., Nguyen M.T., Birko S., Kleiderman E. et al. (including Knoppers B.M.)
Title Pre-implantation genetic diagnosis (PGD): The road forward in Canada
Reference

 (2019) 41:1 Journal of Obstetrics and Gynaecology Canada, 68-71


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2018

Author(s) Kleiderman E., Boily A., Hasilo C., Knoppers B.M.
Title Overcoming barriers to facilitate the regulation of multi-centre regenerative medicine clinical trials
Reference

 (2018) 9:1 Stem Cell Research & Therapy, 307-315


Author(s) Kleiderman E., Boily A., Knoppers B.M.
Title Genetically enhanced minors: Whose responsibility?
Reference

 (2018) 18:6 The American Journal of Bioethics, 24-26


Author(s) Kleiderman E., Pack A., Borry P., Zawati M.H.
Title The author who wasn’t there? Fairness and attribution in publications following access to population biobanks
Reference

(2018) 13:3 PLoS ONE, e0194997


Author(s) Knoppers B.M., Nguyen M.T., Noohi F., Kleiderman E.
Title L’ingénierie ciblée du génome humain: considérations éthiques et politiques
Reference

Document d'orientation politique (Montréal: Génome Québec, 2018)


Author(s) Middleton A., Milne R., Thorogood A., Kleiderman E., et al.
Title Attitudes of publics who are unwilling to donate DNA data for research
Reference

 (2018) European Journal of Medical Genetics, doi: 10.1016/j.ejmg.2018.11.014


Author(s) Middleton A., Niemiec E., Prainsack B., Bobe J., et al. (including Kleiderman E. and Thorogood A.)
Title 'Your DNA, Your Say': global survey gathering attitudes toward genomics: design, delivery and methods
Reference

 (2018) 15:4 Personalized Medicine, 311-318


Author(s) Ogbogu U., Zarzeczny A., Baltz J., Bedford P., et al. (including Kleiderman E., Nguyen M.T., Noohi F. and Knoppers B.M.)
Title Research on human embryos and reproductive materials: Revisiting Canadian law and policy
Reference

 (2018) 13:3 Healthcare Policy, 10-19


Author(s) Thorogood A., Bobe J., Prainsack B., Middleton A., et al. (including Kleiderman E.)
Title APPLaUD: access for patients and participants to individual level uninterpreted genomic data
Reference

 (2018) 12:7 Human Genomics


Author(s) Touré S.B., Kleiderman E., Knoppers B.M.
Title Bridging stem cell research and medicine: a learning health system
Reference

 (2018) 13:6 Regenerative Medicine, 741-752


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2017

Author(s) Illes J., Sipp D., Kleiderman E., Benjaminy S., et al.
Title A blueprint for the next generation of ELSI research, training, and outreach in regenerative medicine
Reference

 (2017) 2:1 npj Regenerative Medicine, 21


Author(s) Knoppers B.M., Isasi R., Caulfield T., Kleiderman E., et al.
Title Human Gene Editing: Revisiting Canadian Policy
Reference

 (2017) 2:3 npj Regenerative Medicine, 1


Author(s) Knoppers B.M., Leader A., Hume S., Shoubridge E.A., et al. (including Noohi F. and Kleiderman E.)
Title Mitochondrial Replacement Therapy: The Road to the Clinic in Canada
Reference

(2017) 39:10 Journal of Obstetrics and Gynaecology Canada, 916  


Author(s) Nicol D., Eckstein L., Morrison M., Sherkow J. S., et al. (including Kleiderman E.)
Title Key Challenges in Bringing CRISPR-mediated Somatic Cell Therapy into the Clinic
Reference

(2017) 9:1 Genomic Medicine, 85


Author(s) Rahimzadeh V., Sénécal K., Kleiderman E., Knoppers B.M.
Title Minors and incompetent adults: A tale of two populations
Reference

 Neuroethics: Anticipating the Future (New York: Oxford University Press, 2017)


Author(s) So D., Kleiderman E., Touré S.B., Joly Y.
Title Disease Resistance and the Definition of Genetic Enhancement
Reference

 (2017) 8 Frontiers in Genetics, 40


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2016

Author(s) Isasi R., Kleiderman E., Knoppers B.M.
Title Editing Policy to Fit the Genome?
Reference

(2016) 351:6271 Science, 337


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2015

Author(s) Kleiderman E., Avard D., Besso A., Ali-Khan S., et al.
Title Disclosure of incidental findings in cancer genomic research: investigators' perceptions on obligations and barriers
Reference

(2015) 88:4 Clinical Genetics, 320-326


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2014

Author(s) Kleiderman E., Knoppers B.M., Fernandez C.V., Boycott K.M., et al. (including Avard D.)
Title Returning incidental findings from genetic research to children: views of parents of children affected by rare diseases
Reference

(2014) 40:10 Journal of Medical Ethics, 691-696


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2013

Author(s) McClellan K.A., Kleiderman E., Black L., Bouchard K., et al. (including Knoppers B.M. and Avard D.)
Title Exploring Resources for Intrafamilial Communication of Cancer Genetic Risk: We Still Need to Talk
Reference

(2013) 21:9 European Journal of Human Genetics, 903-910


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2012

Author(s) Kleiderman E., Avard D., Black L., Diaz Z., ar al. (including Knoppers B.M.)
Title Recruiting Terminally Ill Patients into Non-Therapeutic Oncology Studies: Views of Health Professionals
Reference

(2012) 13:1 BMC Medical Ethics, 33


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