. CGP Centre of Genomics and Policy CGP Centre of Genomics and Policy

CPG Centre of Genomics and policy

Publications

Gratien Dalpé

2021

Author(s) Alarie S., Hagan J., Dalpé G., Faraji S., et al., (including Granados Moreno P., Knoppers B.M., Joly Y.)
Title Risk-Stratified Approach to Breast Cancer Screening in Canada: Women’s Knowledge of the Legislative Context and Concerns about Discrimination from Genetic and Other Predictive Health Data
Reference

11:8 (2021) Journal of Personalized Medicine, 1-15.

https://pubmed.ncbi.nlm.nih.gov/34442372/

Author(s) Bienge C.M., Pashayan N., Brooks J.D., et al. (including Hagan J., Dalpé G., Granados Moreno P., Joly Y., Knoppers B.M.)
Title Women’s Views on Multifactorial Breast Cancer Risk Assessment and Risk-Stratified Screening: A Population-Based Survey from Four Provinces in Canada. Special Issue on Personalized Approaches for the Prevention and Treatment of Breast Cancer
Reference

11:2 (2021) Journal of Personalized Medicine, 1-20.

https://pubmed.ncbi.nlm.nih.gov/33540785/

Author(s) Dalpé G., Pinkesz M., Marrocco G., Joly Y.
Title Les enjeux québécois de la discrimination génétique : L’expérience d’un forun en ligne
Reference

15:1-2 (2021) Les Ateliers de l’Éthique/The Ethics Forum, 4-38.

https://www.erudit.org/en/journals/ateliers/2020-v15-n1-2-ateliers06061/1077527ar/

Author(s) Dalpé G., Pinkesz M., Oliviero E., Tolymbek M., Joly Y.
Title Genetic discrimination views in online discussion forums: Perspectives from Canadian forumites
Reference

30:6 (2021) Journal of Genetic Counselling, 1613-1628.

https://pubmed.ncbi.nlm.nih.gov/33871129/

Author(s) Joly Y., Dalpé G., Gallois H., Knoppers B.M., Turp D.
Title Erring in Law and in Fact: The Supreme Court of Canada’s Reference re Genetic Non-Discrimination Act
Reference

99:1 (2021) Canadian Bar Review, 172-192.

https://cbr.cba.org/index.php/cbr/article/view/4662

Author(s) Joly Y., Gallois H., Dalpé G., Knoppers B.M., Turp D.
Title Erreur en droit relative et en fait: le Renvoi relative à la Loi sur la non-discrimination génétique
Reference

26:1 (2021) Lex Electronica, 1-32.

https://www.lex-electronica.org/articles/volume-26/volume-26-numero-1/errer-en-droit-relatif-et-en-fait-le-renvoi-relatif-a-la-loi-sur-la-non-discrimination-genetique/

Author(s) Joly Y., Huerne K., Arych M., Bombard Y., De Paor A., Dove E.S., Granados Moreno P., Ho C.W.L., Ho C.H., Hoyweghen I.V., Kim H., Lebret A., Minssen T., Cathaoir K.O., Prince A.E.R., Nair A.P.S., Otlowski M., Pepper M.S., Sladek R., Song L., Voigt T.H., Zawati M.H., Dalpé G.
Title The Genetic Discrimination Observatory: confronting novel issues in genetic discrimination
Reference

37:11 (2021) Trends in Genetics, 951-954.

https://www.cell.com/trends/genetics/fulltext/S0168-9525(21)00228-6

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2020

Author(s) Joly Y., Dalpé G., Dupras C., Bévière-Boyer B., de Paor A., Dove S.E., Granados Moreno P., Ho C.W.L., Ho C.H., Ò Cathaoir K., Kato K., Kim H., Song L., Minssen T., Nicolás P., Otlowski M., Prince A.E.R., Nair A.P.S., Van Hoyweghen I., Voigt T.H., Yamasaki C., Bombard Y.
Title Establishing the International Genetic Discrimination Observatory
Reference
(2020) 52:5 Nat Genet, 466–468
http://www.nature.com/articles/s41588-020-0606-5

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2019

Author(s) Dalpé G., Thorogood A., Knoppers B.M.
Title A Tale of Two Capacities: Including Children and Decisionally Vulnerable Adults in Biomedical Research
Reference
(2019) 10 Front Genet, 1-12
https://www.frontiersin.org/articles/10.3389/fgene.2019.00289/abstract

Author(s) Joly Y., Dalpé G., Pinkesz M.
Title Is Genetic Discrimination Back on the Radar? A Commentary on the Recent Court of Appeal Reference Decision on the Genetic Non-Discrimination Act (GNDA)
Reference

 (2019) 2:2 Canadian Journal of Bioethics, 94-96

https://cjb-rcb.ca/index.php/cjb-rcb/article/view/192

Author(s) Thorogood A., Dalpé G., Knoppers B.
Title Return of individual genomic research results: are laws and policies keeping step?
Reference

(2019) European Journal of Human Genetics 1

https://www.nature.com/articles/s41431-018-0311-3

Author(s) Thorogood A., Mäki-Petäjä-Leinonen A., Dalpé G., Gastmans C., Gauthier S.
Title Openness, inclusion, and respect in dementia research
Reference

(2019) 18:2 The Lancet Neurology 135
 

https://www.thelancet.com/journals/laneur/article/PIIS1474-4422(18)30445-9/abstract

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2018

Author(s) Ngueng Feze I., Dalpé G., Song L., Farber J., Goodridge L., Levesque R. C., Joly Y.
Title For the safety of fresh produce: regulatory considerations for Canada on the use of whole genome sequencing to subtype Salmonella
Reference

Front. Sustain. Food Syst., 08 June 2018

https://doi.org/10.3389/fsufs.2018.00021

Author(s) Thorogood A., Dalpé G., McLauchlan D. & Knoppers B.M.
Title Canadian Consent and Capacity Regulation: Undermining Dementia Research and Human Rights?
Reference
(2018) 12:1 McGill Journal of Law & Health, 67-122
https://mjlh.mcgill.ca/publications/volume-12-issue-1/canadian-consent-and-capacity-regulation-undermining-dementia-research-and-human-rights

Author(s) Thorogood A., Mäki-Petäjä-Leinonen A., Brodaty H., Dalpé G., Gastmans C., Gauthier S., Gove D., Harding R., Knoppers B.M., Rossor M., Bobrow M.
Title Consent recommendations for research and international data sharing involving persons with dementia
Reference
 (2018) 14:10 Alzheimer’s & Dementia 1334–1343
https://linkinghub.elsevier.com/retrieve/pii/S1552526018301651

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2017

Author(s) Dalpé G., Ngueng Feze I., Salman S., Joly Y., Hagan J., Lévesque E., Dorval V., Blouin-Bougie J., Amara N., Dorval M., Simard J.
Title Breast Cancer Risk Estimation and Personal Insurance: A Qualitative Study Presenting Perspectives from Canadian Patients and Decision Makers
Reference
(2017) 8 Frontiers in Genetics
http://journal.frontiersin.org/article/10.3389/fgene.2017.00128/full

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2016

Author(s) Dalpé G., Kirby E., Ngueng Feze I., Tassé A.M., Knoppers B.M., Hamet P., Tremblay J., Phillips M.S., Joly Y.
Title The Gatekeeping Function in Personalized Medicine Initiatives
Reference
(2016) 14:1 CPPM 36–49
http://www.eurekaselect.com/openurl/content.php?genre=article&issn=1875-6921&volume=14&issue=1&spage=36

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2015

Author(s) Joly Y., Dalpé G., So D., Birko S.
Title Fair Shares and Sharing Fairly: A Survey of Public Views on Open Science, Informed Consent and Participatory Research in Biobanking
Reference
(2015) 10:7 PLoS ONE e0129893

 

http://dx.doi.org/10.1371/journal.pone.0129893

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2014

Author(s) Dalpé G., Joly Y.
Title Towards precision medicine: the legal and ethical challenges of pharmacogenomics
Reference

Routledge Handbook of Medical Law and Ethics (Oxon: Routledge, 2014)

https://www.routledgehandbooks.com/doi/10.4324/9780203796184.ch19

Author(s) Dalpé G., Joly Y.
Title Opportunities and Challenges Provided by Cloud Repositories for Bioinformatics-Enabled Drug Discovery
Reference

(2014) 75:6 Drug Development Research, 393

http://onlinelibrary.wiley.com/journal/10.1002/(ISSN)1098-2299

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2013

Author(s) Isasi R., Dalpé G., Knoppers, B.M.
Title Fostering Public Cord Blood Banking and Research in Canada
Reference
(2013) 22:S1 Stem Cells and Development 29–34
http://online.liebertpub.com/doi/abs/10.1089/scd.2013.0381

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