. CGP Centre of Genomics and Policy CGP Centre of Genomics and Policy

CPG Centre of Genomics and policy

Publications

Alexander Bernier

2022

Author(s) Bernier A., Molnár-Gábor F., Knoppers B.M.
Title The international data governance landscape
Reference

9:1 (2022) Journal of Law and the Biosciences, 1-45.


Author(s) Saulnier K., Bernier A., Liosi S., Earp B., Berrios C., Dyke S.O.M., Dupras C., Joly Y.
Title Studying Vulnerable Populations Through an Epigenetics Lens: Proceed with Caution
Reference

5:1 (2022) Canadian Journal of Bioethics, 68-78


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2021

Author(s) Austin C., Bernier A., Bezuidenhout L., Bicarregui J., Biro T., Cambon-Thomsen A., Carroll S., Cournia Z., et al.
Title Fostering Global Data Sharing: Highlighting the Recommendations of the Research Data Alliance COVID-19 Working Group
Reference

Wellcome Open Res 2021, 5:267

https://wellcomeopenresearch.org/articles/5-267

Author(s) Bernier A., Knoppers B.M.
Title Longitudinal Health Studies: Secondary Uses Serving the Future. Biopreserv Biobank
Reference

(2021) Biopreserv Biobank, 19(5): 404-413.

https://www.liebertpub.com/doi/full/10.1089/bio.2020.0171

Author(s) Bernier A., Knoppers B.M.
Title Biomedical Data Identifiability in Canada and the European Union: From Risk Qualification to Risk Quantification?
Reference

18:1 (2021) SCRIPTed: A Journal of Law, Technology and Society, 4-56.

https://script-ed.org/article/biomedical-data-identifiability-in-canada-and-the-european-union-from-risk-qualification-to-risk-quantification/

Author(s) Bernier A., Liu H., Knoppers B.M
Title Computational Tools for Genomic Data De-Identification: Facilitating Data Protection Law Compliance
Reference

Nat Commun 12, 6949 (2021).

https://www.nature.com/articles/s41467-021-27219-2#citeas

Author(s) Devriendt T., Ammann C., Asselberghs F.W., Bernier A., Costas R., Friedrich M.G., et al.
Title An Agenda-Setting Paper on Data Sharing Platforms?: euCanSHare Workshop
Reference

Open Research Europe 2021, 1:80

https://open-research-europe.ec.europa.eu/articles/1-80

Author(s) Knoppers B.M., Bernier A., Granados Moreno P., Pashayan N.
Title Of Screening, Stratification, and Scores. Special Issue on Personalized Approaches for the Prevention and Treatment of Breast Cancer
Reference

(2021) Journal of Personalized Medicine, 11(8): 1-15.

https://www.mdpi.com/2075-4426/11/8/736

Author(s) Lang M., Bernier A., Knoppers B.M.
Title AI in Cardiovascular Imaging: “Unexplainable” Legal and Ethical Challenges?
Reference

(2021) Canadian Journal of Cardiology, 1-27.

https://www.onlinecjc.ca/article/S0828-282X(21)00810-2/fulltext

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2020

Author(s) Bernier A.
Title Rare Disease Data Stewardship in Canada
Reference

(2020) 5:1 FACETS, 836-863.

https://doi.org/10.1139/facets-2020-0050

Author(s) Bernier A., Knoppers B. M.
Title Health Data Sharing in Canada
Reference

(2020) 41:2 Health Law in Canada, 30-63


Author(s) Bernier A., Knoppers B.M.
Title Pandemics, privacy, and public health research
Reference

Canadian Journal of Public Health. 2020; https://doi.org/10.17269/s41997-020-00368-5.


Author(s) Bernier A., Thorogood A.
Title Sharing Bioinformatic Data for Machine Learning: Maximizing Interoperability through License Selection
Reference

(2020) Proceedings of BIOSTEC 2020: 13th International Joint Conference on Biomedical Engineering Systems and Technologies, Bioinformatics 2020: International Conference on Bioinformatics Models, Methods and Algorithms. Doi: 10.5220/0009179502260232.  


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2019

Author(s) Bernier A., Bovenberg J.
Title The Data Protection Impact Assessment and Genomic Health Research
Reference

 Global Alliance for Genomics and Health GDPR Brief (September 2019).


Author(s) Thorogood A., Bernier A., Zawati M.H., Knoppers B.M.
Title A Legal Duty of Genetic Recontact in Canada
Reference

 Health Law in Canada. 2019; 40(2): 58-80.


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