Bartha Maria Knoppers
BARTHA MARIA KNOPPERS, PhD (Comparative Medical Law), is Full Professor and Director of the Centre of Genomics and Policy, Faculty of Medicine, Human Genetics, McGill University. She also holds the Canada Research Chair in Law and Medicine (Tier 1, since 2001). She is the founder of the Population Project in Genomics (P3G) and CARTaGENE Quebec’s population biobank. Chair of the Ethics Working Party of the International Stem Cell Forum (2005- ); Co-Chair of the Sampling/ELSI Committee of the 1000 Genomes Project (2007-2014); Scientific Steering Committee Member of the International Cancer Genome Consortium (2009- ); Co-Chair, Regulatory and Ethics Working Group and Member, Steering Committee of the Global Alliance for Genomics and Health. She holds four Doctorates Honoris Causa and she is Fellow of many organisations such as the American Association for the Advancement of Science (AAAS), the Hastings Center (bioethics), the Canadian Academy Health Sciences (ACSS) and, most recently in November 2016, she was named Fellow of the Royal Society of Canada, Academy of Social Sciences. She is also Officer of the Order of Canada and of Quebec. In 2015, she received the Medal Paul-André Crépeau for her work in comparative medical law (The Canadian Bar Association). She was named “Great Montrealer” (Scientific Sector) by the Board of Trade of Metropolitan Montreal in 2014 as well as « Champion de la génétique 2013 » by the Gene Cure Foundation in 2013. Also noteworthy, she received the “Prix Montréal In Vivo: Secteur des sciences de la vie et des technologies de la santé” in 2012.
Governance, Genomic Medicine, Human Rights, Paediatrics, Stem Cell Research, Biomedical Ethics, Privacy, Medical Law, Comparative Medical Law and Policy