. CGP Centre of Genomics and Policy CGP Centre of Genomics and Policy

CPG Centre of Genomics and policy

Publications

Ma'n H. Zawati

2017

Author(s) Pupavac M., Zawati M.H., Rosenblatt D.S.
Title A RaDiCAL gene hunt
Reference

Journal of Taibah University Medical Sciences, 2017. 12(3): 194-198.

http://www.sciencedirect.com/science/article/pii/S1658361216301470

Author(s) Zawati M.H., Knoppers B.M.
Title Population Biobanks and the Principle of Reciprocity
Reference

Hainault P, Vaught J, Pasterk M and Zatlookal K, eds., Biobanking of Human Specimens, (New York: Springer, 2016).

http://www.springer.com/gp/book/9783319551180#aboutBook

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2016

Author(s) Clayton E.W., Zawati M.H.
Title Chapter 6 - Legal Aspects of Health Applications of Genomics
Reference

 Genomics and Society - Ethical, Legal, Cultural and Socioeconomic Implications (London: Elsevier, 2016)

http://www.sciencedirect.com/science/article/pii/B9780124201958000069

Author(s) Ghaly M, Sadoun E, Alkuraya F, Fakhro K, Zawati M.H., Ismail S & Ben-Omran T
Title Genomics in the Gulf Region and Islamic Ethics
Reference

A Special Report in Collaboration with the Research Center for Islamic Legislation and Ethics


Author(s) Knoppers B.M., Nguyen M.T., Sénécal K., Tassé A.M., Zawati M.H.
Title Next-Generation Sequencing and the Return of Results
Reference

Cold Spring Harb Perspect Med


Author(s) Knoppers B.M., Sénécal K., Boisjoli J., Borry P., Cornel M.C., Fernandez C.V., Grewal J., Holm I.A., Nelson E., Pinxten W., Shabani M., Tassé A.M., Zawati M.H., Wright Clayton E, on behalf of the P3G International Paediatric Research Platform
Title Recontacting Pediatric Research Participants for Consent When They Reach the Age of Majority
Reference

(2016) 38:6 IRB: Ethics and Human Research, 1


Author(s) Salman S., Vardatsikos G., Avard D., Palmour N., Dewar K. & Zawati M.H.
Title FMT Happens: Regulating Fecal Microbiota Therapy in Canada; What you Need to Know
Reference

(2016) 8:1 World Medical & Health Policy, 95-106


Author(s) Szego M.J., Zawati, M.H.
Title Whole Genome Sequencing as a Genetic Test for Autism Spectrum Disorder: From Bench to Bedside and then Back Again
Reference

 J Can Acad Child Adolesc Psychiatry. 2016 Spring; 25(2): 116–121.

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4879951/

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2015

Author(s) Bertier G., Zawati M.H., Joly Y.
Title The Role of Whole Genome and Whole Exome Sequencing in Preventive Genomic Sequencing Programs
Reference

 (2015) 15:7 Am. J. Bioethics, 22

http://www.tandfonline.com/doi/pdf/10.1080/15265161.2015.1039732

Author(s) Boycott K., Hartley T., Adam S., Bernier F., Chong K., Fernandez B.A., Friedman J.M., Geraghty M.T., Hume S., Knoppers B.M., Laberge A.-M., Majewski J., Mendoza-Londono R., Meyn M.S., Michaud J.L., Nelson T.N., Richer J., Sadikovic B., Skidmore D.L., Stockley T., [...] Zawati M.H., et al
Title The clinical application of genome-wide sequencing for monogenic diseases in Canada: Position Statement of the Canadian College of Medical Geneticists
Reference

(2015) 52:7 Journal of Medical Genetics, 431


Author(s) Dove E.S., Zawati M.H.
Title Amendments to the Civil Code of Québec's Research Provisions: A Legislative Comment
Reference

(2015) 8:1 McGill JL & Health 79

http://mjlh.mcgill.ca/pdfs/vol8-1/MJLH%208_1_DoveZawati.pdf

Author(s) Knoppers B.M., Zawati M.H., Sénécal K.
Title Return of genetic testing results in the era of whole-genome sequencing
Reference

(2015) 16:9 Nature Reviews Genetics, 553

http://www.nature.com/nrg/index.html

Author(s) Thorogood A., Zawati M.H.
Title International Guidelines for Privacy in Genomic Biobanking (or the Unexpected Virtue of Pluralism)
Reference

(2015) 43:4 Journal of Law, Medicine and Ethics, 690


Author(s) Zawati M.H., Junker A., Knoppers B.M., Rahimzadeh V.
Title Streamlining review of research involving humans: Canadian models
Reference

 (2015) 52:8 J. Med. Genet., 566

http://jmg.bmj.com/content/current

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2014

Author(s) Caulfield T., Burningham S., Joly Y., Master Z., Shabani M., Borry P., Becker A., Burgess M., Calder K., Critchley C., Edwards K., Fullerton S.M., Gottweis H., Hyde-Lay R., Illes J., Isasi R., Kato K., Kaye J., Knoppers B.M., Lynch J., McGuire A., Meslin E. [...] Zawati, M.H.
Title A review of the Key Issues Associated with the Commercialization of Biobanks
Reference

(2014) 1:1 Journal of Law and the Biosciences, 94


Author(s) Dove E.S., Knoppers B.M., Zawati M.H.
Title Towards an Ethics Safe Harbor for Global Biomedical Research
Reference

(2014) 1:1 Journal of Law and the Biosciences, 3

http://jlb.oxfordjournals.org/content/1/1/3.full.pdf+html

Author(s) Knoppers B.M., Avard D., Sénécal K., Zawati M.H., P3G International Paediatrics Platform Members
Title Return of Whole-Genome Sequencing Results in Paediatric Research: A Statement of the P3G International Paediatrics Platform
Reference

(2014) 22:1 European Journal of Human Genetics, 3


Author(s) Knoppers B.M., Zawati M.H., Cohen E.
Title Special Issue - From Biobanks to the Clinic
Reference

(2014) 3:2 Applied & Translational Genomics, 21


Author(s) McGuire A.L., Knoppers B.M., Zawati M.H., Clayton E.W.
Title Can I be Sued for that? Liability Risk and the Disclosure of Clinically Significant Genetic Research Findings
Reference

(2014) 24:5 Genome Research, 719


Author(s) Thorogood A., Zawati M.H., Knoppers B.M.
Title Point-of-Care Genetic Tests for Infectious Disease: Legal Considerations
Reference

(2014) 12:1 Current Pharmacogenomics and Personalized Medicine, 43


Author(s) Zawati M.H.
Title There will be sharing: Population Biobanks, the duty to inform and the limitations of the individualistic conception of autonomy
Reference

(2014) 21 Health Law Journal, 97


Author(s) Zawati M.H.
Title Liability and the Legal Duty to Inform in Research
Reference

Routledge Handbook of Medical Law and Ethics (London: Routledge, 2014)


Author(s) Zawati M.H., Cohen E, Parry D, Avard D and Syncox D
Title Ethics Education for Clinician-Researchers in Genetics: The Combined Approach
Reference

(2014) Applied and Translational Genomics Journal,doi:10.1016/j.atg.2014.12.001


Author(s) Zawati M.H., Parry D., Thorogood A., Nguyen M.T., Boycott K., Rosenblatt D., Knoppers B.M.
Title Reporting Results from Whole-Genome and Whole-Exome Sequencing in Clinical Practice: A Proposal for Canada?
Reference

(2014) 51:1 Journal of Medical Genetics, 68


Author(s) Zawati M.H., Thorogood A.
Title The physician who knew too much: A comment on Watters v White
Reference

(2014) 21 Health Law Journal, 1


Author(s) Zawati MH
Title Éléments de la responsabilité civile du conseiller en génétique au Québec
Reference

in Anne Marie Savard & Mélanie Bourrassa Forcier, Droit et politiques de la santé, Chapter 9 (Quebec: LexisNexis Canada, 2014), 351.


Author(s) Zawati MH, Parry D, Knoppers BM
Title The best interests of the child and the return of results in genetic research: international comparative perspectives
Reference

(2014) 15:72 BMC Medical Ethics, 1

http://www.biomedcentral.com/1472-6939/15/72

Author(s) Zawati, MH., Knoppers BM, Thorogood A
Title Population Biobanking and International Collaboration
Reference

(2014) 81 Pathobiology, 276


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2013

Author(s) Black L., Avard D., Zawati M.H., Knoppers B.M., Hébert J., Sauvageau G.
Title Funding Considerations for the Disclosure of Genetic Incidental Findings in Biobank Research
Reference

(2013) 84:5 Clinical Genetics, 397


Author(s) Dove E.S., Knoppers B.M., Zawati M.H.
Title An Ethics Safe Harbor for International Genomics Research?
Reference

(2013) 5:11 Genome Medicine, 99

http://genomemedicine.com/content/5/11/99/

Author(s) Kirby E., Zawati M.H., Knoppers B.M.
Title Electronic Consent to Health Research in Canada
Reference

(2013) 91:2 Canadian Bar Review, 417


Author(s) Knoppers B.M., Deschênes M., Zawati M.H., Tassé A.M.
Title Population Studies: Return of Research Results and Incidental Findings Policy Statement
Reference

(2013) 21:3 European Journal of Human Genetics, 245


Author(s) Knoppers B.M., Rioux A. and Zawati, M.H.
Title Pediatric Research ‘Personalized’? International Perspectives on the Return of Results
Reference

(2013)10:1 Personalized Medicine, 89


Author(s) Knoppers BM, Dove ES, Zawati MH
Title Demystifying Biobanks
Reference

(2013) 43:5 Hastings Center Report, 4


Author(s) Sénécal K., Lévesque E., Fernandez C., Tassé A.M., Zawati M.H., Knoppers B.M., Avard D.
Title RMGA Statement of Principles on the Return of Research Results and Incidental Findings
Reference (Montréal, RMGA, 2013)
http://www.rmga.qc.ca/en/documents/RMGAStatement_Principles_English_May272013_000.pdf

Author(s) Sénécal K., Lévesque E., Fernandez C., Tassé A.M., Zawati M.H., Knoppers B.M., Avard D.
Title Énoncé de principes du RMGA sur la communication des résultats de recherche et des découvertes fortuites
Reference
http://www.rmga.qc.ca/fr/documents/EnonceduRMGA_versionfr_27mai2013.pdf

Author(s) Zawati M.H.
Title Biobanques destinées à la recherche: introduction et défis majeurs
Reference dans Actes: 6e edition, Journées d’étude des comités d’éthique de la recherche et de leurs partenaires (Québec, La Direction des communications du ministère de la Santé et des Services sociaux, 2013), 20-25.
http://ethique.msss.gouv.qc.ca/fileadmin/documents/JECER/JECER_6/Actes_6/JECER_2012_Actes.pdf

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2012

Author(s) Knoppers B.M., Zawati M.H.
Title Biobanks
Reference Encyclopedia of Applied Ethics (San Diego: Academic Press, 2012)

Author(s) Knoppers B.M., Zawati M.H., Kirby E.S.
Title Sampling Populations of Humans Across the World: ELSI Issues
Reference

(2012) 13:1 The Annual Review of Genomics and Human Genetics, 395


Author(s) Zawati M.H.
Title Les conseillers en génétique et les professions médicales et infirmières au Québec: des frontières brouillées ?
Reference

(2012) 6:1 MJLH 137


Author(s) Zawati M.H., Knoppers B.M.
Title International Normative Perspectives on the Return of Individual Research Results and Incidental Findings in Genomic Biobanks
Reference

(2012) 14:4 Genetics in Medicine, 484


Author(s) Zawati M.H., Rioux A.
Title Les biobanques et le retour des résultats de recherche : quo vadis ?
Reference (2012) Actions pour la santé et la recherché médicale en faveur des personnes vulnérables et des pays émergents - IVe Forum des jeunes chercheurs (Les Études Hospitalières, 2012), 283-294

Author(s) Zawati M.H., Rioux A., Hétu M. et al.
Title Rapport Final - Le médecin face aux nouvelles technologies dans le domaine médical: nouvelles responsabilités?
Reference Final Report, Canadian Bioethics Society's Pre-conference Expert Forum, 2012.
http://www.genomicsandpolicy.org/Ressources/RapportFinalSeptembre2012.pdf

Author(s) Zawati M.H., Tassé A.M.
Title To Share or Not to Share? Secondary Use in Public Health Emergencies
Reference in Canadian Institutes of Health Research – Institute of Population and Public Health. (2012). Population and Public Health Ethics: Cases from Research, Policy, and Practice. University of Toronto Joint Centre for Bioethics: Toronto, ON.

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2011

Author(s) Cambon-Thomsen A., Thorisson G.A. and Mabile L. for the BRIF workshop group (including Zawati, M.H.)
Title The role of a bioresource research impact factor as an incentive to share human bioresources
Reference (BRIF workshop group: Andrieu S., Bertier G., Boeckhout M., Carpenter J., Dagher G., Dalgleish R., Deschênes M., di Donato J.H., Filocamo M., Goldberg M., Hewitt R., Hofman P., Kauffman F., Leitsalu L, Lomba I., Melegh B., Metspalu A., Miranda L., Napolitani F., Oestergaard M.Z., Parodi B., Pasterk M., Reiche A., Rial-Sebbag E., Rivalle G., Rochaix P., Susbielle G., Tarasova L., Thomsen M., Zawati M.H., Zins M.) (2011) 43 Nat. Genet., 503

Author(s) Joly Y., Koutrikas G., Ramos-Paque E., Zawati M.H., Gardy J.
Title Diagnostic Testing for Vaccinomics: Is the Regulatory Approval Framework Adequate? A Comparison of Canada, the United States and Europe
Reference

(2011) 15:9 OMICS, 597


Author(s) Knoppers B.M., Harris J.R., Tassé A.M., Budin-Ljøsne I., Kaye J., Deschênes M., Zawati M.
Title Towards a data sharing Code of Conduct for international genomic research
Reference

(2011) 3:7 Genome Medicine, 1


Author(s) Knoppers B.M., Zawati M.H.
Title De l'éthique et des avocats: les comités d'éthique dans le milieu hospitalier
Reference

in Éthique, profession juridique et société - Collection de droit 2011-2012, volume hors série, École du Barreau (Cowansville: Éditions Yvon Blais, 2011)


Author(s) Knoppers B.M., Zawati M.H.
Title Population Biobanks and Access
Reference in S. Rodota, P. Zatti (eds.), Il Governo del Corpo: Trattato di Biodiritto, Giuffrè Editore, 1181-1194

Author(s) Ngueng Feze I., Joly Y., Zawati M., Knoppers B.M.
Title Genomic Population Biobanks: Legal, Ethical and Social Aspects
Reference (Paris, UIA, 2011)

Author(s) Ozdemir V., Pang T., Knoppers B.M., Avard, D., Faraj S.A., Zawati M.H., Kolker E.
Title Vaccines of the 21st Century and Vaccinomics: Data-Enabled Science Meets Global Health to Spark Collective Action for Vaccine Innovation.
Reference

 (2011) 15:9 OMICS,  523

http://www.liebertonline.com/doi/abs/10.1089/omi.2011.03ed

Author(s) Ozdemir V., Rosenblatt D., Warnich L., Srivastava S., Tadmouri G., Aziz R., Reddy P., Manamperi A., Dove E.S., Joly Y., Zawati M., Hizel C., Yazan Y., John L., Vaast E., Ptolemy A., Faraj S., Kolker E., Cotton R.G.H.
Title Towards an Ecology of Collective Innovation: Human Variome Project (HVP), Rare Disease Consortium for Autosomal Loci (RaDiCAL) and Data-Enabled Life Sciences Alliance (DELSA)
Reference

(2011) 9:4 Current Pharmacogenomics and Personalized Medicine, 243

http://www.benthamdirect.org/pages/content.php?CPPM/2011/00000009/00000004/002AF.SGM

Author(s) Zawati M.H., Borry P., Howard H.C.
Title Closure of Population Biobanks and Direct-to-Consumer Genetic Testing Companies
Reference

(2011) 130:3 Human Genetics, 425


Author(s) Zawati M.H., Hendy M., Joly Y.
Title Incidental Findings in Data Intensive Postgenomics Science and Legal Liability of Clinician-Researchers: Ready for Vaccinomics?
Reference

(2011) 15:9 OMICS, DOI: 10.1089/omi.2010.0137


Author(s) Zawati M.H., Knoppers B.M., Rioux A.
Title Guidance for Biobanks: Models of Consent for Public Health
Reference

Report submitted to the Public Health Agency of Canada (PHAC), 18 March 2011


Author(s) Zawati MH, Rioux A
Title Biobanks and the Return of Research Results: Out with the Old and In with the New?
Reference

(2011) 39:4 JLME, 614


Author(s) Zawati MH, Van Ness B and Knoppers BM
Title Incidental findings in Genomic Research: A Review of International Norms
Reference

(2011) 9:1 GenEdit, 1

http://www.humgen.org/int/GE/en/2011-1.pdf

Author(s) Zawati MH, Van Ness B et Knoppers BM
Title Les découvertes fortuites dans la recherche en génomique: une revue des normes internationales
Reference (2011) 9:1 GenEdit 1
http://www.humgen.org/int/GE/fr/2011-1.pdf

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2010

Author(s) Abdul-Rahman (Zawati) M.H.
Title La pharmacogénomique et la responsabilité civile des médecins
Reference Droit de la santé publique dans un contexte translational: IVe forum des jeunes chercheurs (Bordeaux Centre, Les Études Hospitalières, 2010)

Author(s) Abdul-Rahman (Zawati) M.H.
Title Key Ethical Considerations in the Development of Guidelines for the Biobanking of Human Biological Materials: A Discussion Paper
Reference

Report submitted to the Public Health Agency of Canada (PHAC), 31 March 2010


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2009

Author(s) Knoppers B.M., Abdul-Rahman (Zawati) M.H.
Title Health Privacy in Genetic Research: Populations and Persons
Reference (2009) 28:2 Politics and the Life Sciences, 99

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2008

Author(s) Knoppers B.M., Abdul-Rahman (Zawati) M.H.
Title Biobanks in the Literature
Reference in Elger B., Capron A., et al (eds), Ethical Issues in Governing Biobanks: Global Perspectives, Ch. 2 (UK: Ashgate Publishing Ltd, 2008)

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2007

Author(s) Knoppers B.M., Abdul-Rahman (Zawati) M., Bédard K.
Title Genomic Databases and International Collaboration
Reference (2007) 18:2 King's Law Journal, 291

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