. CGP Centre of Genomics and Policy CGP Centre of Genomics and Policy

CPG Centre of Genomics and policy

Publications

Adrian Thorogood

2018

Author(s) Middleton A., Niemiec E., Prainsack B., Bobe J., et al. (including Kleiderman E. and Thorogood A.)
Title 'Your DNA, Your Say': global survey gathering attitudes toward genomics: design, delivery and methods
Reference

 (2018) Personalized Medicine


Author(s) Thorogood A., Bobe J., Prainsack B., Middleton A., et al. (including Kleiderman E.)
Title Let's APPLaUD: Access for Patients and Participants to Individual-Level Uninterpreted Genomic Data
Reference

 (2018) 12:7 Human Genomics


Author(s) Thorogood A., Knoppers B.M.
Title Human Cell Atlas White Paper: Ethics, Legal, and Regulatory Principles
Reference

 (Oct 2017).


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2017

Author(s) Breden, F., Prak, E.T.L., Peters, B., Rubelt, F., Schramm, C.A., Busse, C.E., Vander Heiden, J.A., Christley, S., Bukhari, S.A.C., Thorogood, A. and Matsen IV, F.A.
Title Reproducibility and reuse of Adaptive immune receptor repertoire Data.
Reference

 Frontiers in immunology, 8.


Author(s) Knoppers B.M., Thorogood A.
Title Ethics and Big Data in Health
Reference

 Current Opinion in Systems Biology. 2017; 4: 53-57.


Author(s) Moore S., Tassé A.M., Thorogood A., Winship I., Zawati M. & Doerr M.
Title A Systemic Review of Consent Processes for Mobile App Mediated Research
Reference

JMIR mHealth and uHealth, 5(8).


Author(s) Thorogood A., and Knoppers B.M.
Title Human Cell Atlas White Paper: Ethics, Legal, and Regulatory Principles
Reference

(Oct 2017).

https://www.humancellatlas.org/files/HCA_WhitePaper_18Oct2017.pdf

Author(s) Thorogood A., Cook-Deegan R., Knoppers B.M .
Title Public Variant Databases: Liability?
Reference

Genetics in Medicine, 19:838–841


Author(s) Thorogood A., Deschênes St-Pierre C., Knoppers B.M.
Title Substitute consent to data sharing: a way forward for international dementia research?
Reference

 (2017) JLB, doi:10.1093/jlb/lsw063, 1


Author(s) Thorogood A., Knoppers B.M.
Title Can research ethics committees enable clinical trial data sharing?
Reference

(2017) Ethics, Medicine and Public Health


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2016

Author(s) Dyke S.O.M., Kirby E., Shabani M., Thorogood A., Kato K., Knoppers B.M.
Title Registered access: a 'Triple-A' approach
Reference

(2016) 24:12 European Journal of Human Genetics, 1715


Author(s) Global Alliance for Genomics and Health … Thorogood A, …
Title A Federated Ecosystem for Sharing Genomic, Clinical Data.
Reference

Science, 352(6291):1278-1280.


Author(s) Sénécal K., Thorogood A., Parry D., Joly Y., Knoppers B.M.
Title Énoncé de principes consolidé du Réseau de Médecine génétique appliquée (RMGA) du Québec
Reference

(Montréal, RMGA, 2016)


Author(s) Sénécal K., Thorogood A., Parry D., Joly, Y., Knoppers B.M.
Title The Quebec Network of Applied Genetic Medicine (RMGA). Consolidated Statement of Principles
Reference

(Montreal, RMGA, 2016)


Author(s) Shabani M., Thorogood A., Borry P.
Title Who should have access to genomic data and how should they be held accountable? Perspectives of Data Access Committee members and experts
Reference

(2016) 24:12 European Journal of Human Genetics, 1671


Author(s) Thorogood A., Simkevitz H., Phillips M., Dove E.S., Joly Y.
Title Protecting the Privacy of Canadians' Health Information in the Cloud
Reference

(2016) 14 Canadian Journal of Law and Technology, 173


Author(s) Thorogood A., Zawati M.H.
Title International Guidelines for Privacy in Genomic Biobanking (Or the Unexpected Virtue of Pluralism)
Reference

 (2016) 43 Journal of Law, Medicine and Ethics, Special Issue, 690-702.


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2015

Author(s) Thorogood A., Zawati M.H.
Title International Guidelines for Privacy in Genomic Biobanking (or the Unexpected Virtue of Pluralism)
Reference

(2015) 43:4 Journal of Law, Medicine and Ethics, 690


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2014

Author(s) Thorogood A., Joly Y., Knoppers B.M., Nilsson T., Metrakos P., Lazaris A., Salman A.
Title An Implementation Framework for the Feedback of Individual Research Results and Incidental Findings in Research
Reference

(2014) 15(1):88 BMC Medical Ethics, doi:10.1186/1472-6939-15-88, 1


Author(s) Thorogood A., Knoppers B.M.
Title The ethical and legal duties of physicians in clinical genetics and genomics
Reference

Routledge Handbook of Medical Law and Ethics (Oxon: Routledge, 2014)


Author(s) Thorogood A., Zawati M.H., Knoppers B.M.
Title Point-of-Care Genetic Tests for Infectious Disease: Legal Considerations
Reference

(2014) 12:1 Current Pharmacogenomics and Personalized Medicine, 43


Author(s) Zawati M.H., Parry D., Thorogood A., Nguyen M.T., Boycott K., Rosenblatt D., Knoppers B.M.
Title Reporting Results from Whole-Genome and Whole-Exome Sequencing in Clinical Practice: A Proposal for Canada?
Reference

(2014) 51:1 Journal of Medical Genetics, 68


Author(s) Zawati M.H., Thorogood A.
Title The physician who knew too much: A comment on Watters v White
Reference

(2014) 21 Health Law Journal, 1


Author(s) Zawati, MH., Knoppers BM, Thorogood A
Title Population Biobanking and International Collaboration
Reference

(2014) 81 Pathobiology, 276


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2013

Author(s) Knoppers B.M., Chisholm R.L., Kaye J., Cox D., Thorogood A., Burton P., Brookes A.J., Fortier I., Goodwin P., Harris J.R., Hveem K., Kent A., Little J., Riegman P.H., Ripatti S., Stolk R.P.
Title Supplement – Sample Generic Access Agreement
Reference

(2013) 31:5 Nature Biotechnology, 1


Author(s) Knoppers B.M., Chisholm R.L., Kaye J., Cox D., Thorogood A., Burton P., Brookes A.J., Fortier I., Goodwin P., Harris J.R., Hveem K., Kent A., Little J., Riegman P.H.J., Ripatti S., Stolk R.P.
Title A P3G Generic Access Agreement for Population Genomic Studies
Reference (2013) 31:5 Nature Biotechnology, 384

Author(s) Knoppers B.M., Thorogood A., Chadwick R.
Title The Human Genome Organisation: Towards Next-generation Ethics
Reference (2013) 5:4 Genome Medicine, 1

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2012

Author(s) Knoppers B.M., Avard D., Thorogood A.
Title Informed Consent in Genetics
Reference

(2012) John Wiley & Sons, 1

http://onlinelibrary.wiley.com/doi/10.1002/9780470015902.a0005199.pub2/full

Author(s) Thorogood A., Knoppers B.M., Dondorp W.J., De Wert G.M.W.R.
Title Whole-Genome Sequencing and the Physician
Reference

(2012) 81 Clinical Genetics, 511


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