. CGP Centre of Genomics and Policy CGP Centre of Genomics and Policy

CPG Centre of Genomics and policy


Adrian Thorogood


Author(s) Breden, F., Prak, E.T.L., Peters, B., Rubelt, F., Schramm, C.A., Busse, C.E., Vander Heiden, J.A., Christley, S., Bukhari, S.A.C., Thorogood, A. and Matsen IV, F.A.
Title Reproducibility and reuse of Adaptive immune receptor repertoire Data.

 Frontiers in immunology, 8.

Author(s) Knoppers B.M., Thorogood A.
Title Ethics and Big Data in Health

 Current Opinion in Systems Biology. 2017; 4: 53-57.

Author(s) Moore S., Tassé A.M., Thorogood A., Winship I., Zawati M. & Doerr M.
Title A Systemic Review of Consent Processes for Mobile App Mediated Research

JMIR mHealth and uHealth, 5(8).

Author(s) Thorogood A., and Knoppers B.M.
Title Human Cell Atlas White Paper: Ethics, Legal, and Regulatory Principles

(Oct 2017).


Author(s) Thorogood A., Cook-Deegan R., Knoppers B.M .
Title Public Variant Databases: Liability?

Genetics in Medicine, 19:838–841

Author(s) Thorogood A., Deschênes St-Pierre C., Knoppers B.M.
Title Substitute consent to data sharing: a way forward for international dementia research?

 (2017) JLB, doi:10.1093/jlb/lsw063, 1

Author(s) Thorogood A., Knoppers B.M.
Title Can research ethics committees enable clinical trial data sharing?

(2017) Ethics, Medicine and Public Health

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Author(s) Dyke S.O.M., Kirby E., Shabani M., Thorogood A., Kato K., Knoppers B.M.
Title Registered access: a 'Triple-A' approach

(2016) 24:12 European Journal of Human Genetics, 1715

Author(s) Global Alliance for Genomics and Health … Thorogood A, …
Title A Federated Ecosystem for Sharing Genomic, Clinical Data.

Science, 352(6291):1278-1280.

Author(s) Sénécal K., Thorogood A., Parry D., Joly Y., Knoppers B.M.
Title Énoncé de principes consolidé du Réseau de Médecine génétique appliquée (RMGA) du Québec

(Montréal, RMGA, 2016)

Author(s) Sénécal K., Thorogood A., Parry D., Joly, Y., Knoppers B.M.
Title The Quebec Network of Applied Genetic Medicine (RMGA). Consolidated Statement of Principles

(Montreal, RMGA, 2016)

Author(s) Shabani M., Thorogood A., Borry P.
Title Who should have access to genomic data and how should they be held accountable? Perspectives of Data Access Committee members and experts

(2016) 24:12 European Journal of Human Genetics, 1671

Author(s) Thorogood A., Simkevitz H., Phillips M., Dove E.S., Joly Y.
Title Protecting the Privacy of Canadians' Health Information in the Cloud

(2016) 14 Canadian Journal of Law and Technology, 173

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Author(s) Thorogood A., Zawati M.H.
Title International Guidelines for Privacy in Genomic Biobanking (or the Unexpected Virtue of Pluralism)

(2015) 43:4 Journal of Law, Medicine and Ethics, 690

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Author(s) Thorogood A., Joly Y., Knoppers B.M., Nilsson T., Metrakos P., Lazaris A., Salman A.
Title An Implementation Framework for the Feedback of Individual Research Results and Incidental Findings in Research

(2014) 15(1):88 BMC Medical Ethics, doi:10.1186/1472-6939-15-88, 1

Author(s) Thorogood A., Knoppers B.M.
Title The ethical and legal duties of physicians in clinical genetics and genomics

Routledge Handbook of Medical Law and Ethics (Oxon: Routledge, 2014)

Author(s) Thorogood A., Zawati M.H., Knoppers B.M.
Title Point-of-Care Genetic Tests for Infectious Disease: Legal Considerations

(2014) 12:1 Current Pharmacogenomics and Personalized Medicine, 43

Author(s) Zawati M.H., Parry D., Thorogood A., Nguyen M.T., Boycott K., Rosenblatt D., Knoppers B.M.
Title Reporting Results from Whole-Genome and Whole-Exome Sequencing in Clinical Practice: A Proposal for Canada?

(2014) 51:1 Journal of Medical Genetics, 68

Author(s) Zawati M.H., Thorogood A.
Title The physician who knew too much: A comment on Watters v White

(2014) 21 Health Law Journal, 1

Author(s) Zawati, MH., Knoppers BM, Thorogood A
Title Population Biobanking and International Collaboration

(2014) 81 Pathobiology, 276

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Author(s) Knoppers B.M., Chisholm R.L., Kaye J., Cox D., Thorogood A., Burton P., Brookes A.J., Fortier I., Goodwin P., Harris J.R., Hveem K., Kent A., Little J., Riegman P.H., Ripatti S., Stolk R.P.
Title Supplement – Sample Generic Access Agreement

(2013) 31:5 Nature Biotechnology, 1

Author(s) Knoppers B.M., Chisholm R.L., Kaye J., Cox D., Thorogood A., Burton P., Brookes A.J., Fortier I., Goodwin P., Harris J.R., Hveem K., Kent A., Little J., Riegman P.H.J., Ripatti S., Stolk R.P.
Title A P3G Generic Access Agreement for Population Genomic Studies
Reference (2013) 31:5 Nature Biotechnology, 384

Author(s) Knoppers B.M., Thorogood A., Chadwick R.
Title The Human Genome Organisation: Towards Next-generation Ethics
Reference (2013) 5:4 Genome Medicine, 1

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Author(s) Knoppers B.M., Avard D., Thorogood A.
Title Informed Consent in Genetics

(2012) John Wiley & Sons, 1


Author(s) Thorogood A., Knoppers B.M., Dondorp W.J., De Wert G.M.W.R.
Title Whole-Genome Sequencing and the Physician

(2012) 81 Clinical Genetics, 511

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