. CGP Centre of Genomics and Policy CGP Centre of Genomics and Policy

CPG Centre of Genomics and policy

Publications

Bartha Maria Knoppers

2017

Author(s) Boycott K.M., Rath A., Chong J.X., Hartley T., Alkuraya F.S., Baynam G., Brookes A.J., Brudno M., Carracedo A., den Dunnen J.T., Dyke S.O.M., Estivill X., Goldblatt J., Gonthier C., Groft S.C., Gut I., Hamosh A., Hieter P., Höhn S., Hurles M.E., Kaufmann P., Knoppers B.M., et al.
Title International Cooperation to Enable the Diagnosis of All Rare Genetic Diseases
Reference

 (2017) 100:5 AJHG ScienceDirect 

http://www.sciencedirect.com/science/article/pii/S0002929717301477

Author(s) Knoppers B.M., et al.
Title Comparative Approaches to Genetic Discrimination: Chasing Shadows?
Reference

(2017) Trends in Genetics 33(5), p. 299-302.

http://www.cell.com/trends/genetics/fulltext/S0168-9525(17)30033-1

Author(s) Knoppers B.M., Leader A., Hume S., Shoubridge E.A., Isasi R., Noohi F., Ogbogu U., Ravitsky V., Kleiderman E.
Title Mitochondrial Replacement Therapy: The Road to the Clinic in Canada
Reference

(2017) Journal of Obstetrics and Gynaecology Canada  


Author(s) Knoppers BM, Isasi R, Caulfield T, Kleiderman E, Illes J, Ogbogu U, Ravitsky V, Rudnicki M
Title Human Gene Editing: Revisiting Canadian Policy
Reference

 (2017) 2:3 Regenerative Medicine, 1


Author(s) Rahimzadeh V., Dove E.S., Knoppers B.M.
Title The sIRB system: a single beacon of progress in the revised Common Rule?
Reference

 (2017) American Journal of Bioethics


Author(s) Rahimzadeh V., Sénécal K., Kleiderman E., Knoppers B.M.
Title Minors and Incompetent Adults: A Tale of Two Populations
Reference

(2017) Neuroethics: Anticipating the Future  


Author(s) Salerno J., Knoppers B.M., Lee L., Hlaing W., Goodman K.
Title Ethics, Big Data and Computing in Epidemiology and Public Health
Reference

(2017) Annals of Epidemiology 


Author(s) Sénécal K., Thys K., Vanassche K., Vears D.F., Knoppers B.M., Borry P.
Title Reply to Harling
Reference

 (2017) European Journal of Human Genetics


Author(s) So D., Knoppers B.M.
Title Ethics approval in applications for open-access clinical trial data: an analysis of researcher statements to clinicalstudydatarequest.com
Reference

(2017) PLOS One 


Author(s) Thorogood A., Deschênes St-Pierre C., Knoppers B.M.
Title Substitute consent to data sharing: a way forward for international dementia research?
Reference

 (2017) Journal of Law and the Biosciences


Author(s) Thorogood A., Deschênes St-Pierre C., Knoppers B.M.
Title Substitute consent to data sharing: a way forward for international dementia research?
Reference

 (2017) JLB, doi:10.1093/jlb/lsw063, 1


Author(s) Thorogood A., Knoppers B.M.
Title Can research ethics committees enable clinical trial data sharing?
Reference

(2017) Ethics, Medicine and Public Health


Author(s) Yuen R., et al. (including Knoppers B.M.)
Title Whole genome sequencing resource identifies 18 new candidate genes for autism spectrum disorder
Reference

(2017) Nature Neuroscience 


Author(s) Zawati M.H., Knoppers B.M.
Title Population Biobanks and the Principle of Reciprocity
Reference

Hainault P, Vaught J, Pasterk M and Zatlookal K, eds., Biobanking of Human Specimens, (New York: Springer, 2016).

http://www.springer.com/gp/book/9783319551180#aboutBook

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2016

Author(s) Anand S.S., Tu J.V., Awadalla P., Black S., Boileau C., Busseuil D., Desai D., Després J.P., de Souza R.J., Dummer T., Jacquemont S., Knoppers B., Larose E., Lear S.A., Marcotte F., Moody A.R., Parker L., Poirier P., Robson P.J., Smith E.E., Spinelli J.J., Tardif J.C., Teo K.K., Tusevljak N., et al
Title Rationale, design, and methods for Canadian alliance for healthy hearts and minds cohort study (CAHHM) - a Pan Canadian cohort study
Reference

(2016) 16:1 BMC Public Health, 650


Author(s) Bledsoe M.J., Henderson M., Tassé A.M., Knoppers B.M.
Title International Biobanking Summit V: Harmonizing Privacy Laws to Enable International Biobank Research
Reference

(2016) 14:5 Biopreservation and Biobanking, 452


Author(s) Borry P., Sénécal K., Knoppers B.M.
Title Do It Yourself Newborn Screening
Reference

(2016) JAMA Pediatrics, doi:10.001/jamapediatrics.2016.0166, E1


Author(s) Bovenberg J.A., de Hoogh K., Knoppers B.M., Hveem K., Hansell A.L.
Title Don’t Take It Personal EU legal aspects of procuring and protecting Environmental Exposure Data in Population Biobanks through the use of a Geo-Information Systems Toolkit
Reference

(2016) 14:3 Biopreservation and Biobanking, 217


Author(s) Briceño Moraia L., Kaye J., Tassé A.M., Knoppers B.M., Mitchell C., Soini S., Hoppe N., Wallace S.E., Øien M.
Title A comparative analysis of the requirements for the use of data in biobanks based in Finland, Germany, the Netherlands, Norway and the United Kingdom
Reference

(2016) Medical Law International, DOI: 10.1177/0968533215571956, 1


Author(s) Charlebois K., Palmour N., Knoppers B.M.
Title The Adoption of Cloud Computing in the Field of Genomics Research: The Influence of Ethical and Legal Issues
Reference

(2016) PLoS One, doi: 10.1371/journal.pone.0164347, 1


Author(s) Dalpé G, Kirby E, Ngueng Feze I, Tassé A-M, Knoppers BM, Hamet P, Tremblay J, Phillips MS, Joly Y
Title The Gatekeeping Function in Personalized Medicine Initiatives
Reference

 (2016) 14:1 Curr Pharmacogenomics Person Med, 36


Author(s) Dove E.S., Laurie G.T., Knoppers B.M.
Title Data Sharing and Privacy
Reference

Genomic and Personalized Medicine (Waltham, MA: Elsevier, 2017)


Author(s) Dove E.S., Thompson B., Knoppers B.M.
Title A step forward for data protection and biomedical research
Reference

(2016) 387:10026 The Lancet, 1374


Author(s) Dove E.S., Townend D., Meslin E.M., Bobrow M., Littler K., Nicoll D., de Vries J., Junker A., Garattini C., Bovenberg J., Shabani M., Lévesque E., Knoppers B.M.
Title Ethics review for international data-intensive research
Reference

(2016) 351:6280 Science, 1399


Author(s) Dyke S.O.M., Dove E.S., Knoppers B.M.
Title Sharing health-related data: a privacy test?
Reference

(2016) Genomic Medicine, doi:10.1038/npjgenmed.2016.24, 1


Author(s) Dyke S.O.M., Kirby E., Shabani M., Thorogood A., Kato K., Knoppers B.M.
Title Registered access: a 'Triple-A' approach
Reference

(2016) 24:12 European Journal of Human Genetics, 1715


Author(s) Dyke S.O.M., Philippakis A.A., Rambla De Argila J., Paltoo D.N., Luetkemeier E.S., Knoppers B.M., Brookes A.J., Spalding J.D., Thompson M., Roos M., Boycott K.M., Brudno M., Hurles M., Rehm H.L., Matern A., Fiume M., Sherry S.T.
Title Consent Codes: Upholding Standard Data Use Conditions
Reference

(2016) 12:1: e1005772.doi.10.137/journal.pgen.1005772, PLOS Genetics, 1


Author(s) Esquivel-Sada D., Hagan J., Sénécal K., Avard D., Knoppers B.M., Sinnett D.
Title Perspectives de parents concernant les découvertes fortuites en recherche pédiatrique : la voix manquante au débat?Parental Perspectives on Incidental Findings in Pediatric Research: The Missing Voice in the Debate
Reference

(2016) 4:2 Serie E : Droit, sante et societe, 15


Author(s) Fortier I., Raina P., Van den Heuvel E.R., Griffith L.E., Craig C., Saliba M., Doiron D., Stolk R.P., Knoppers B.M., Ferretti V., Granda P., Burton P.
Title Maelstrom Research guidelines for rigorous retrospective data harmonization
Reference

(2016) International Journal of Epidemiology, doi:10.1093/ije/dyw075, 1


Author(s) Green R.C., Goddard K.A.B., Jarvik G.P., Amendola L.M., Appelbaum P.S., Berg J.S., Bernhardt B.A., Biesecker L.G., Biswas S., Blout C.L., Bowling K.M., Brothers K.B., Burke W., Caga-anan C.F., Chinnaiyan A.M., Chung W.K., Clayton E.W., Cooper G.M., East K., Evans J.P., [...] Knoppers B.M., et al
Title Clinical Sequencing Exploratory Research Consortium: Accelerating Evidence-Based Practice of Genomic Medicine
Reference

(2016) 98:6 The American Journal of Human Genetics, 1051

Correction:

(2016) 99:1 The American Journal of Human Genetics, 246


Author(s) Hagan J., Lévesque E., Knoppers B.M.
Title Influence des facteurs organisationnels sur l'implantation d'une approche personnalisee de depistage du cancer du sein
Reference

(2016) 28:3 Sante publique, 353


Author(s) Isasi R., Kleiderman E., Knoppers B.M.
Title Editing Policy to Fit the Genome?
Reference

(2016) 351:6271 Science, 337


Author(s) Joly Y, Dyke SOM, Knoppers BM, Pastinen T
Title Are Data Sharing and Privacy Protection Mutually Exclusive?
Reference

 (2016) 167:5 Cell, 1150


Author(s) Joly Y., de Vries-Seguin E., Chalmers D., Ouellette B.F.F., Yamada J., Bobrow M., Knoppers B.M.
Title Analysis of five years of controlled access and data sharing compliance at the International Cancer Genome Consortium
Reference

(2016) 48:3 Nature Genetics, 224


Author(s) Joly Y., So D., Osien G., Crimi L., Bobrow M., Chalmers D., Wallace S., Zeps N., Knoppers B.M.
Title A Decision Tool to Guide the Ethics Review of a Challenging Breed of Emerging Genomics Projects
Reference

(2016) 24:8 European Journal of Human Genetics, 1099


Author(s) Kaye J., Briceño Moraia L., Mitchell C., Bell J., Bovenberg J.A., Tassé A.M., Knoppers B.M.
Title Access Governance for Biobanks: The Case of the BioSHaRE-EU Cohorts
Reference

(2016) 14:3 Biopreservation and Biobanking, 201


Author(s) Knoppers B.M.
Title Precision medicine: a matter of regulation or collaboration?
Reference

(2106) Journal of Law and the Biosciences, doi: 10.1093/jlb/lsw049, 1


Author(s) Knoppers B.M., Nguyen M.T., Sénécal K., Tassé A.M., Zawati M.H.
Title Next-Generation Sequencing and the Return of Results
Reference

Cold Spring Harb Perspect Med


Author(s) Knoppers B.M., Sénécal K., Boisjoli J., Borry P., Cornel M.C., Fernandez C.V., Grewal J., Holm I.A., Nelson E., Pinxten W., Shabani M., Tassé A.M., Zawati M.H., Wright Clayton E, on behalf of the P3G International Paediatric Research Platform
Title Recontacting Pediatric Research Participants for Consent When They Reach the Age of Majority
Reference

(2016) 38:6 IRB: Ethics and Human Research, 1


Author(s) Phillips M., Knoppers B.M.
Title The discombobulation of de-identification
Reference

(2016) 34:11 Nature Biotechnology, 1102


Author(s) Rahimzadeh V., Dyke S.O.M., Knoppers B.M.
Title An International Framework for Data Sharing: Moving Forward with the Global Alliance for Genomics and Health
Reference

(2016) 14:3 Biopreservation and Biobanking, 256


Author(s) Rahimzadeh V., Knoppers B.M.
Title How mutually recognizable is mutual recognition? An international terminology index of research ethics review policies in the USA, Canada, UK and Australia
Reference

(2016) 13:2 Personalized Medicine, 101


Author(s) Rothstein M.A., Knoppers B.M., Harrell J.L.
Title Comparative Approaches to Biobanks and Privacy
Reference

(2016) 44:1 Journal of Law, Medicine and Ethics, 161


Author(s) Sénécal K., Thorogood A., Parry D., Joly Y., Knoppers B.M.
Title Énoncé de principes consolidé du Réseau de Médecine génétique appliquée (RMGA) du Québec
Reference

(Montréal, RMGA, 2016)


Author(s) Sénécal K., Thorogood A., Parry D., Joly, Y., Knoppers B.M.
Title The Quebec Network of Applied Genetic Medicine (RMGA). Consolidated Statement of Principles
Reference

(Montreal, RMGA, 2016)


Author(s) Sénécal K., Thys K., Vanassche K., Vears D.F., Knoppers B.M., Borry P.
Title Reply to Kranendonk
Reference

 (2016) 25; Journal of Human Genetics, doi:10.1038/ejhg.2016.160.

https://www.nature.com/ejhg/journal/v25/n2/pdf/ejhg2016160a.pdf?origin=ppub

Author(s) Sénécal K., Thys K., Vears D.F., Van Assche K., Knoppers B.M., Borry P.
Title Legal approaches regarding health-care decisions involving minors: implications for next-generation sequencing
Reference

(2016) 24:11 European Journal of Human Genetics, 1559


Author(s) Shabani M., Knoppers B.M., Borry P
Title Genomic Databases, Access Review, and Data Access Committees
Reference

Medical and Health Genomics (London: Elsevier, 2016)


Author(s) Siu L.L., Lawler M., Haussler D., Knoppers B.M., Lewin J., Vis D.J., Liao R.G., Andre F., Banks I., Barrett J.C., Caldas C., Aranha Camargo A., Fitzgerald R.C., Mao M., Mattison J.E., Pao W., Sellers W.R., Sullivan P., Teh B.T., Ward R.L., ZenKlusen J.C., Sawyers C.L., Voest E.E.
Title Facilitating a culture of responsible and effective sharing of cancer genome data
Reference

(2016) 22:5 Nature Medicine, 464


Author(s) Strom B.L., Buyse M.E., Hughes J., Knoppers B.M.
Title Data Sharing - Is the Juice Worth the Squeeze?
Reference

(2016) 375:17 The New England Journal of Medicine, 1608


Author(s) The Global Alliance for Genomics and Health (including Knoppers BM)
Title A federated ecosystem for sharing genomic, clinical data – Silos of genome data collection are being transformed into seamlessly connected, independent systems
Reference

 (2016) 352:6291 Science, 1278


Author(s) Thorogood A., Cook-Deegan R., Knoppers B.M.
Title Public variant databases: liability?
Reference

(2016) Genetics in Medicine, doi:10.1038/gim.2016.189, 1


Author(s) Townend D., Dove E.S., Nicol D., Bovenberg J., Knoppers B.M.
Title Streamlining ethical review of data intensive research
Reference

(2016) 354, BMJ, .i4181, 1


Author(s) Warner A, Moore H, Reinhard D, Ball L, Knoppers BM
Title Harmonizing Global Biospecimen Consent Practices to Advance Translational Research - A Call to Action
Reference

 (2016) Clin Pharmacol Ther, DOI: 10.1002/cpt.461, 1


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2015

Author(s) Bosley K.S., Botchan M., Bredenoord A.L., Carroll D., Charo R.A., Charpentier E., Cohen R., Corn J., Doudna J., Feng G., Greely H.T., Isasi R., Ji W., Kim J.-S., Knoppers B.M., Lanphier E., Li J., Lovell-Badge R., Martin G.S., Moreno J., Naldini L., Pera M., Perry A.C.F., Venter J.C, et al
Title CRISPR germline engineering - the community speaks
Reference

(2015) 33:5 Nature Biotechnology, 478


Author(s) Bovenberg J., Hansell A., de Hoogh K., Knoppers B.M.
Title Nature, nurture & exposure: Connecting biobank data with geographic data could yield public and individual health benefits, but risks to human rights need to be assessed
Reference

(2015) 16:4 EMBO Reports, 404


Author(s) Bovenberg J., Knoppers BM, Hansell A., de Hoogh K.
Title Exposing participants? Population Biobanks Go Geo
Reference

(2015) 24:2 European Journal of Human Genetics, 155


Author(s) Boycott K., Hartley T., Adam S., Bernier F., Chong K., Fernandez B.A., Friedman J.M., Geraghty M.T., Hume S., Knoppers B.M., Laberge A.-M., Majewski J., Mendoza-Londono R., Meyn M.S., Michaud J.L., Nelson T.N., Richer J., Sadikovic B., Skidmore D.L., Stockley T., [...] Zawati M.H., et al
Title The clinical application of genome-wide sequencing for monogenic diseases in Canada: Position Statement of the Canadian College of Medical Geneticists
Reference

(2015) 52:7 Journal of Medical Genetics, 431


Author(s) Bredenoord A.L., Mostert M., Isasi R., Knoppers B.M.
Title Data sharing in stem cell translational science: policy statement by the International Stem Cell Forum Ethics Working Party
Reference

(2015) Future Medicine, doi.10.2217/rme.15.42, 1


Author(s) Burton P.R., Murtagh M.J., Boyd A., Williams J.B., Dove E.S., Wallace S.E., Tassé A.M., Little J., Chisholm R.L., Gaye A., Hveem K., Brookes A.J., Goodwin P., Fistein J., Bobrow M., Knoppers B.M.
Title Data Save Havens in health research and healthcare
Reference

(2015) 31:20  Bioinformatics, 3241


Author(s) Caulfield T., Kamenova K., Ogbogu U., Zarzeczny A., Baltz J., Benjaminy S., Cassar P.A., Clark M., Isasi R., Knoppers B., Knowles L., Korbutt G., Lavery J.V., Lomax G.P., Master Z., McDonald M., Preto N., Toews M.
Title Research ethics and stem cells: Is it time to re-think current approaches to oversight?
Reference

(2015) 16:1 EMBO Reports, 2


Author(s) Dove E.S., Joly Y., Knoppers B.M.
Title International genomic cloud computing: 'mining' the terms of service
Reference

Privacy and Legal Issues in Cloud Computing (Edward Elgar Publishing Limited, 2015)


Author(s) Dove E.S., Joly Y., Tassé A.M., P3G International Steering Committee, ICGC Ethics and Policy Committee, Knoppers B.M.
Title Genomic cloud computing: legal and ethical points to consider
Reference

(2014) 23:10 European Journal of Human Genetics, 1271

http://www.nature.com/ejhg/index.html

Author(s) EL-Bikai R., Tahir M.R., Tremblay J., Joffres M., Šeda O., Šedová L., Awadalla P., Laberge C., Knoppers B.M., Dumas P, Gaudet D., Ste-Marie L.G., Hamet P.
Title Association of age-dependent height and bone mineral density decline with increased arterial stiffness and rate of fractures in hpertensive individuals
Reference

(2015) 33:4 Journal of Hypertension, 727


Author(s) Fernandez C.V., O'Connell C., Ferguson M., Orr A.C., Robitaille J.M., Knoppers B.M., McMaster C.R.
Title Stability of Attitudes to the Ethical Issues Raised by the Return of Incidental Genomic Research Findings in Children: A Follow-Up Study
Reference

(2015) 18:5 Public Health Genomics, 299


Author(s) Foulkes W., Knoppers B.M., Turnbull C.
Title Population genetic testing for cancer susceptibility: founder mutations to genomes
Reference

(2015) 13:1 Nature Reviews: Clinical Oncology, 41


Author(s) Howard H.C., Knoppers B.M., Cornel M.C., Wright Clayton E., Sénécal K., Borry P.
Title Whole-genome sequencing in newborn screening? A statement on the continued importance of targeted approaches in newborn screening programmes
Reference

(2015) 23:12 European Journal of Human Genetics, 1593


Author(s) Isasi R., Knoppers B.M.
Title Oversight of human inheritable genome modification
Reference

(2015) 33:5 Nature Biotechnology, 454


Author(s) Knoppers B.M., Chadwick R.
Title The ethics weathervane
Reference

(2015) 16:1 BMC Medical Ethics, 1


Author(s) Knoppers B.M., Zawati M.H., Sénécal K.
Title Return of genetic testing results in the era of whole-genome sequencing
Reference

(2015) 16:9 Nature Reviews Genetics, 553

http://www.nature.com/nrg/index.html

Author(s) Lévesque E., Knoppers B.M., Simard J.
Title Ethical challenges and innovations in the dissemination of genomic data: the experience of the PERSPECTIVE project
Reference

(2015) 5 Advances in Genomics and Genetics, 283


Author(s) Mascalzoni D., Dove E.S., Rubinstein Y., Dawkins H.J.S., Kole A., McCormack P., Woods S., Riess O., Schaefer F., Lochmüller H., Knoppers B.M., Hansson M.
Title International Charter of principles for sharing bio-specimens and data
Reference

(2015) 23:6 European Journal of Human Genetics, 721

Correction:

(2016) 24:7 European Journal of Human Genetics, 1096

http://www.nature.com/ejhg/index.html

Author(s) Pereira Beak C., Chargé S.B., Isasi R., Knoppers B.M.
Title Developing Educational Resources to Advance Umbilical Cord Blood Banking and Research: A Canadian Perspective
Reference

(2015) 37:5 Journal of Obstetrics and Gynaecology Canada, 443


Author(s) Rahimzadeh V, Avard D, Sénécal K, Knoppers BM, Sinnett D
Title To disclose, or not to disclose? Context matters
Reference

(2015) 23:3 European Journal of Human Genetics, 279


Author(s) Rothstein M., Knoppers B.M.
Title Introduction: Harmonizing Privacy Laws to Enable International Biobank Research
Reference

(2015) 43:4 Journal of Law, Medicine and Ethics, 673


Author(s) Rousseau-Nepton I., Okubo M., Grabs R., the FORGE Canada Consortium (Knoppers B.M.), Mitchell J., Polychronakos C., Rodd C.
Title A founder AGL mutation causing glyogen storage disease type 111a in Inuit identified through whole-exome sequencing: a case series
Reference

(2015) 187:2 CMAJ, E68


Author(s) Sawyer S.L., Tian L., Kähkönen M., Schwartzentruber J., Kircher M., FORGE Canada Consortium (Knoppers B.M.), Majewski J., Dyment D.A., Innes A.M., Boycott K.M., Moreau L.A., Moilanen J.S., Greenberg R.A.
Title Biallelic Mutations in BCRA1 Cause a New Fanconi Anemia Subtype
Reference

(2015) 5:2 Cancer Discovery, 135


Author(s) Sénécal K., Rahimzadeh V., Knoppers B.M., Fernandez C.V., Avard A., Sinnett D.
Title Statement of Principles on the Return of Research Results and Incidental Findings in Paediatric Research: A Multi-site Consultative Process
Reference

(2015) 58:12 Genome, 541


Author(s) Sénécal K., Vears D.F., Bertier G., Knoppers B.M., Borry P.
Title Genome-based newborn screening: a conceptual analysis of the best interests of the child standard
Reference

(2015) Personalized Medicine, doi:10.2217/PME.15.28, 1


Author(s) Shabani M., Knoppers B.M., Borry P.
Title From the principles of genomic data sharing to the practices of data access committees
Reference

(2015) EMBO Molecular Medicine, doi 10.15252/emmm.201405002, 1


Author(s) Stein L.D., Knoppers B.M., Campbell P., Getz G., Korbel J.O.
Title Create a cloud commons
Reference

(2015) 523:7559 Nature, 149


Author(s) The 1000 Genomes Project Consortium (Knoppers B.M.) et al
Title A global reference for human genetic variation
Reference

(2015) 526"7571 Nature, 68


Author(s) Tyler-Smith C., Yang H., Landweber L.F., Dunham I, Knoppers B.M., Donnelly P., Mardis E.R., Snyder M., McVean F.
Title Where Next for Genetics and Genomics?
Reference

(2015) PLoS Biology, 13(7):e1002216. doi:10.1371/journal.pbio.1002216, 1


Author(s) Zawati M.H., Junker A., Knoppers B.M., Rahimzadeh V.
Title Streamlining review of research involving humans: Canadian models
Reference

 (2015) 52:8 J. Med. Genet., 566

http://jmg.bmj.com/content/current

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2014

Author(s) Beaulieu C.L., Majewski J., Schwartzentruber J., Samuels M.E., Fernandez B.A., Bernier F.P., Brudno M., Knoppers B.M., Marcadier J., Dyment D., Adam S., Bulman D.E., Jones S.J.M., Avard D., Nguyen M.T., Rousseau F., Marshall C., Wintle R.F., Shen Y., Scherer S.W., FORGE Canada Consortium, et al
Title FORGE Canada Consortium: Outcomes of a 2-Year National Rare-Disease Gene-Discovery Project
Reference

(2014) 94:6 The American Journal of Human Genetics, 809


Author(s) Boccia S., McKee M., Adany R., Boffetta P., Burton H., Cambon-Thomsen A., Cornel M.C., Gray M., Jani A., Knoppers B.M., Khoury M.J., Meslin E.M., Van Duijn C.M., Villari P., Zimmern R., Cesario A., Puggina A., Colotto M., Ricciardi W.
Title Beyond public health genomics: proposals from an international working group
Reference

(2014) European Journal of Public Health, doi:10.1093/eurpub/cku142, 1


Author(s) Borry P., Rusu O., Dondorp W., DeWert G., Knoppers B.M., Howard H.
Title Anonymity 2.0. Direct-to-Consumer Genetic Testing and Donor Conception
Reference

(2014) 101:3 Fertility and Sterility, 630


Author(s) Briceño Moraia L., Kaye J., Tassé A.M., Soini S., Hoppe N., Wallace S., Knoppers B.M., Øien M.
Title A comparative analysis of the requirements for the use of data in biobanks based in Finland, Germany, the Netherlands, Norway and in the United Kingdom
Reference

(2014) 14:4 Medical Law International, 187


Author(s) Brownstein C.A., Beggs A.H., Homer N., [...] Knoppers B.M., et al
Title An International Effort Towards Developing Standards for Best Practices in Analysis, Interpretation and Reporting of Clinical Genome Sequencing Results in the CLARITY Challenge
Reference

(2014) 15:3 Genome Biology, 1


Author(s) Budin-Ljøsne I., Isaeva J., Knoppers B.M., Tassé A.M., Shen H.-Y., McCarthy M.I., ENGAGE Consortium and Harris J.R.
Title Data Sharing in Large Research Consortia: Experiences and Recommendations from ENGAGE
Reference

(2014) 22:3 European Journal of Human Genetics, 317


Author(s) Caulfield T., Burningham S., Joly Y., Master Z., Shabani M., Borry P., Becker A., Burgess M., Calder K., Critchley C., Edwards K., Fullerton S.M., Gottweis H., Hyde-Lay R., Illes J., Isasi R., Kato K., Kaye J., Knoppers B.M., Lynch J., McGuire A., Meslin E. [...] Zawati, M.H.
Title A review of the Key Issues Associated with the Commercialization of Biobanks
Reference

(2014) 1:1 Journal of Law and the Biosciences, 94


Author(s) Dove E.S., Joly Y., Tassé A.M., P3G International Steering Committee, ICGC Ethics and Policy Committee, Knoppers B.M.
Title What Are Some of the ELSI Challenges of International Collaborations Involving Biobanks, Global Sample Collection, and Genomic Data Sharing and How Should They Be Addressed?
Reference

(2014) 12:6 Biopreservation and Biobanking, 363


Author(s) Dove E.S., Knoppers B.M., Zawati M.H.
Title Towards an Ethics Safe Harbor for Global Biomedical Research
Reference

(2014) 1:1 Journal of Law and the Biosciences, 3

http://jlb.oxfordjournals.org/content/1/1/3.full.pdf+html

Author(s) Dove E.S., Townend D., Knoppers B.M.
Title Data Protection and Consent to Biomedical Research: A Step Forward?
Reference

 (2014) 384 The Lancet 855.

http://www.thelancet.com/journals/lancet/article/PIIS0140-6736(14)61488-4/fulltext#

Author(s) Fernandez C.V., Bouffet E., Malkin D., Jabado N., O'Connell C., Avard D., Knoppers B.M., Ferguson M., Boycott K., Sorensen P.H., Orr A.C., McMaster C.
Title Attitudes of Parents to the Return of Targeted and Incidental Genomic Research Findings in Children
Reference

(2014) 16:8 Genetics in Medicine, 633


Author(s) Graham C.E., Molster C., Baynam G.S., Bushby K., Hansson M., Kole A., Mora M., Monaco L., Bellgard M., Carpentieri D., Posada M., Riess O., Rubinstein Y.R., Schaefer F., Taruscio D., Terry S.F., Zatloukal K., Knoppers B., Lochmuller H., Dawkins H.J.S.
Title Current trends in biobanking for rare diseases: a review
Reference

(2014) 2 Journal of Biorepository Science for Applied Medicine, 49


Author(s) Henderson G.E., Wolf S.M., Kuczynski K.J., Joffe S., Sharp R.R., Williams Parsons D., Knoppers B.M., Yu J.-H., Appelbaum P.S.
Title The challenge of informed consent and return of results in translational genomics: Empirical analysis and recommendations
Reference

(2014) 42:3 Journal of Law, Medicine & Ethics, 344


Author(s) Isasi R., Andrews P.W., Baltz J.M., Bredenoord A.L., Burton P., Chiu I.-M., Hull S.C., Jung J.-W., Kurtz A., Lomax G., Ludwig T., McDonald M., Morris C., Ng H.H., Rooke H., Sharma A., Stacey G.N., Williams C., Zeng F., Knoppers B.M.
Title Identifiability and Privacy in Pluripotent Stem Cell Research
Reference

(2014) 14:4 Stem Cell Cell, 427


Author(s) Joly Y., Burton H., Knoppers B.M., Ngueng Feze I., Dent T., Pashayan N., Chowdhury S., Foulkes W., Hall A., Hamet P., Kirwan N., Macdonald A., Simard J., Van Hoyweghen V.
Title Life Insurance: Genomic Stratification and Risk Classification
Reference

(2014) 22:5 European Journal of Human Genetics, 575


Author(s) Joly Y., Knoppers B.M.
Title Routledge Handbook of Medical Law and Ethics
Reference

Routledge Handbook of Medical Law and Ethics (Oxon: Routledge, 2014)


Author(s) Joly Y., Knoppers B.M.
Title Médecine personnalisée : équité et accès
Reference

(2014) 30:2 Medecine/sciences, 27


Author(s) Joly Y., Saulnier K.M., Osien G., Knoppers B.M.
Title The ethical framing of personalized medicine
Reference

(2014) 14:5 Current Opinion in Allergy and Clinical Immunology, 404


Author(s) Kleiderman E., Knoppers B.M., Fernandez C.V., Boycott K.M., Ouellette G., Wong-Rieger D., Adam S., Richer J., Avard D
Title Returning incidental findings from genetic research to children: views of parents of children affected by rare diseases
Reference

(2014) 40:10 Journal of Medical Ethics, 665


Author(s) Knoppers B.M.
Title Introduction: From the Right to Know to the Right Not to Know
Reference

(2014) 42:1 Journal of Law, Medicine and Ethics, 6


Author(s) Knoppers B.M.
Title International Ethics Harmonization and the Global Alliance for Genomics and Health
Reference

(2014) Genome Medicine, doi:10.11186/gm530


Author(s) Knoppers B.M.
Title Does policy grow on trees?
Reference

(2014)15(1):87  BMC Medical Ethics, doi:10.1186/1472-6939-15-87, 1


Author(s) Knoppers B.M.
Title Framework for responsible sharing of genomic and health-related data
Reference

(2014) 8:1 The HUGO Journal, 1


Author(s) Knoppers B.M., Avard D., Sénécal K., Zawati M.H., P3G International Paediatrics Platform Members
Title Return of Whole-Genome Sequencing Results in Paediatric Research: A Statement of the P3G International Paediatrics Platform
Reference

(2014) 22:1 European Journal of Human Genetics, 3


Author(s) Knoppers B.M., Harris J.R., Budin-Ljøsne I., Dove E.S.
Title A Human Rights Approach to an International Code of Conduct for Genomic and Clinical Data Sharing
Reference

(2014) 133:7 Human Genetics, 895

http://link.springer.com/article/10.1007/s00439-014-1432-6

Author(s) Knoppers B.M., Özdemir V.
Title The Concept of Humanity and Biogenetics
Reference

Humanity Across International Law and Biolaw (Cambridge: Cambridge University Press, 2014)


Author(s) Knoppers B.M., Sénécal K., Borry P., Avard D.
Title Whole Genome Sequencing in Newborn Screening Programmes?
Reference

(2014) 6:229 Science Translational Medicine, 1


Author(s) Knoppers B.M., Zawati M.H., Cohen E.
Title Special Issue - From Biobanks to the Clinic
Reference

(2014) 3:2 Applied & Translational Genomics, 21


Author(s) Kosseim P., Dove E.S., Baggaley C., Meslin E.M., Cate F.H., Kaye J., Harris J.R., Knoppers B.M.
Title Building a Data Sharing Model for Global Genomic Research
Reference

 (2014) 15:8 Genome Biology, 1

http://genomebiology.com/2014/15/8/430

Author(s) Lévesque E., Knoppers B.M.
Title Management Strategies for Ethics in International Research
Reference

(2014) 2:4 Current Genetic Medicine Reports, 255

http://link.springer.com

Author(s) Lévesque M., Kim J.R., Isasi R., Knoppers B.M., Plomer A., Joly Y.
Title Stem Cell Research Funding Policies and Dynamic Innovation: A Survey of Open Access and Commercialization Requirements
Reference

(2014) 10:4 Stem Cell Reviews and Reports, 455


Author(s) McDonell L.M., Warman Chardon J., Schwartzentruber J., Foster D., Beaulieu C.L., FORGE Canada Consortium (Knoppers B.M.), Majewski J., Bulman D.E., Boycott K.M.
Title The utility of exome sequencing for genetic diagnosis in a familial microcephaly epilepsy syndrome
Reference

(2014) 14:22 BMC Neurology, 1


Author(s) McGuire A.L., Knoppers B.M., Zawati M.H., Clayton E.W.
Title Can I be Sued for that? Liability Risk and the Disclosure of Clinically Significant Genetic Research Findings
Reference

(2014) 24:5 Genome Research, 719


Author(s) Ngueng Feze I., Prystajecky N., Cook C., Knoppers B.M., Özdemir V., Dunn G., Isaac-Renton J., Joly Y.
Title The regulation of water quality assessment biotechnologies: Is Canada ready to surf the next wave?
Reference

(2014) 26:3 Journal of Environmental Law and Practice, 201


Author(s) Ozdemir V., Knoppers B.M.
Title From Government to AG: responding to the challenges of innovation and emerging technologies
Reference

Smart Governance for Health and Well-being: The Evidence (Denmark: WHO Regional Office for Europe, 2014)


Author(s) Rahimzadeh V., Joly Y., Knoppers B.M.
Title Introduction
Reference

Routledge Handbook of Medical Law and Ethics (Oxon: Routledge, 2014)


Author(s) Strom B.L., Buyse M., Hughes J., Knoppers B.M.
Title Data Sharing, Year 1 – Access to Data from Industry-Sponsored Clinical Trials
Reference

(2014) The New England Journal of Medicine, doi: 10.1056/NEJMp1411794, 1


Author(s) Thorogood A., Joly Y., Knoppers B.M., Nilsson T., Metrakos P., Lazaris A., Salman A.
Title An Implementation Framework for the Feedback of Individual Research Results and Incidental Findings in Research
Reference

(2014) 15(1):88 BMC Medical Ethics, doi:10.1186/1472-6939-15-88, 1


Author(s) Thorogood A., Knoppers B.M.
Title The ethical and legal duties of physicians in clinical genetics and genomics
Reference

Routledge Handbook of Medical Law and Ethics (Oxon: Routledge, 2014)


Author(s) Thorogood A., Zawati M.H., Knoppers B.M.
Title Point-of-Care Genetic Tests for Infectious Disease: Legal Considerations
Reference

(2014) 12:1 Current Pharmacogenomics and Personalized Medicine, 43


Author(s) Zawati M.H., Parry D., Thorogood A., Nguyen M.T., Boycott K., Rosenblatt D., Knoppers B.M.
Title Reporting Results from Whole-Genome and Whole-Exome Sequencing in Clinical Practice: A Proposal for Canada?
Reference

(2014) 51:1 Journal of Medical Genetics, 68


Author(s) Zawati MH, Parry D, Knoppers BM
Title The best interests of the child and the return of results in genetic research: international comparative perspectives
Reference

(2014) 15:72 BMC Medical Ethics, 1

http://www.biomedcentral.com/1472-6939/15/72

Author(s) Zawati, MH., Knoppers BM, Thorogood A
Title Population Biobanking and International Collaboration
Reference

(2014) 81 Pathobiology, 276


Top Top

2013

Author(s) Awadalla P., Boileau C., Payette Y., Idaghdour Y., Goulet J.-P., Knoppers B.M., et al
Title Cohort Profile of the CARTaGENE Study: Quebec's Population-Based Biobank for Public Health and Personalized Genomics
Reference (2013) 42:5 International Journal of Epidemiology, 1285

Author(s) Bartlett G., Avard D., Knoppers B.M.
Title A new twist on an old problem: primary care physicians and results from direct-to-consumer genetic testing
Reference (2013) 18:8 Personalized Medicine, 827

Author(s) Black L., Avard D., Zawati M.H., Knoppers B.M., Hébert J., Sauvageau G.
Title Funding Considerations for the Disclosure of Genetic Incidental Findings in Biobank Research
Reference

(2013) 84:5 Clinical Genetics, 397


Author(s) Black L., Batist G., Avard D., Rousseau C., Diaz Z., Knoppers B.M.
Title Physician Recruitment of Patients to Non-therapeutic Oncology Clinical Trials: Ethics Revisited
Reference (2013) 4 Frontiers in Pharmacology, doi: 10.3389/fphar.2013.00025, 1

Author(s) Black L., McClellan K., Avard D., Knoppers B.M.
Title Intrafamilial Disclosure of Risk for Hereditary Breast Cancer: Points to Consider
Reference (2013) 4:2 Community Genetics, 203

Author(s) Budin-Ljøsen I., Soye K.J., Tassé A.M., Knoppers B.M., Harris J.R.
Title Genotype-driven Recruitment: A Strategy whose Time has Come?
Reference

(2013) 6:19 BMC Medical Genomics, 1


Author(s) Burke W., Matheny Antommaria A.H., Bennett R., Botkin J., Clayton E.W., Henderson G.E., Holm I.A., Jarvik G.P., Khoury M.J., Knoppers B.M., Press N.A., Ross L.F., Rothstein M.A., Saal H., Uhlmann W.R., Wilfond B., Wolf S.M., Zimmern B.
Title Recommendations for Returning Genomic Incidental Findings? We Need to Talk!
Reference (2013)Genetics in Medicine, doi: 10.1038/gim.2013.113 (advance online publication)

Author(s) Dove E.S., Avard D., Black L., Knoppers B.M.
Title Emerging Issues in Paediatric Health Research Consent Forms in Canada: Working Towards Best Practices
Reference

(2013) 14:1 BMC Medical Ethics, 1


Author(s) Dove E.S., Black L., Avard D., Knoppers B.M.
Title Charting the Privacy Landscape in Canadian Paediatric Biobanks
Reference (2013) 20 Health Law Journal, 1

Author(s) Dove E.S., Knoppers B.M., Zawati M.H.
Title An Ethics Safe Harbor for International Genomics Research?
Reference

(2013) 5:11 Genome Medicine, 99

http://genomemedicine.com/content/5/11/99/

Author(s) Fernandez C.V., Strahlendor C., Avard D., Knoppers B.M., O'Connell C., Bouffet E., Malkin D., Jabado N., Boycott K., Sorensen P.H.
Title Attitudes of Canadian Researchers Toward the Return to Participants of Incidental and Targeted Genomic Findings Obtained in a Pediatric Research Setting
Reference (2013) 15:7 Genetics Medicine, 558

Author(s) Isasi R., Dalpe G., Knoppers B.M.
Title Fostering Public Cord Blood Banking and Research in Canada
Reference (2013) 22(S1) Stem Cells and Development, 29

Author(s) Joly Y., Knoppers B.M.
Title Ethics and Genetics
Reference Brenner's Encyclopedia of Genetics (Oxford: Elsevier, 2013)

Author(s) Kirby E., Zawati M.H., Knoppers B.M.
Title Electronic Consent to Health Research in Canada
Reference

(2013) 91:2 Canadian Bar Review, 417


Author(s) Knoppers B.M.
Title Genomics: from persons to populations and back again
Reference (2013) 56:10 Genome, 537

Author(s) Knoppers B.M.
Title From Tissues to Genomes
Reference (2013) 3:8 G3 Genes, Genomes, Genetics, 1203

Author(s) Knoppers B.M.
Title Privacy, Confidentiality, and Health Research
Reference (2013) 42:1 International Journal of Epidemiology, 359

Author(s) Knoppers B.M., Chisholm R.L., Kaye J., Cox D., Thorogood A., Burton P., Brookes A.J., Fortier I., Goodwin P., Harris J.R., Hveem K., Kent A., Little J., Riegman P.H., Ripatti S., Stolk R.P.
Title Supplement – Sample Generic Access Agreement
Reference

(2013) 31:5 Nature Biotechnology, 1


Author(s) Knoppers B.M., Chisholm R.L., Kaye J., Cox D., Thorogood A., Burton P., Brookes A.J., Fortier I., Goodwin P., Harris J.R., Hveem K., Kent A., Little J., Riegman P.H.J., Ripatti S., Stolk R.P.
Title A P3G Generic Access Agreement for Population Genomic Studies
Reference (2013) 31:5 Nature Biotechnology, 384

Author(s) Knoppers B.M., Deschênes M., Zawati M.H., Tassé A.M.
Title Population Studies: Return of Research Results and Incidental Findings Policy Statement
Reference

(2013) 21:3 European Journal of Human Genetics, 245


Author(s) Knoppers B.M., Rioux A. and Zawati, M.H.
Title Pediatric Research ‘Personalized’? International Perspectives on the Return of Results
Reference

(2013)10:1 Personalized Medicine, 89


Author(s) Knoppers B.M., Thorogood A., Chadwick R.
Title The Human Genome Organisation: Towards Next-generation Ethics
Reference (2013) 5:4 Genome Medicine, 1

Author(s) Knoppers BM, Dove ES, Zawati MH
Title Demystifying Biobanks
Reference

(2013) 43:5 Hastings Center Report, 4


Author(s) Mallette A., Tassé A.M., Knoppers B.M.
Title P3G Model Framework for Biobank Governance
Reference

(2013) Public Population Project in Genomics and Society (P3G), 1


Author(s) Mascalzoni D., Knoppers B.M., Aymé S., Macilotti M., Dawkins H., Woods S., Hansson M.G.
Title Rare Diseases and Now Rare Data?
Reference (2013) 14:6 Nature Reviews. Genetics, 372

Author(s) McClellan K.A, Avard D., Simard J., Knoppers B.M.
Title Personalized Medicine and Access to Health Care: Potential for Inequitable Access?
Reference

(2013) 21:2 European Journal of Human Genetics, 143

http://www.ncbi.nlm.nih.gov/pubmed/22781088

Author(s) McClellan K.A., Kleiderman E., Black L., Bouchard K., Dorval M., Simard J., Knoppers B.M., Avard D.
Title Exploring Resources for Intrafamilial Communication of Cancer Genetic Risk: We Still Need to Talk
Reference (2013) 21:9 European Journal of Human Genetics, 903

Author(s) Ozdemir V., Joly Y., Kirby E., Avard D., Knoppers B.M.
Title Beyond ELSIs - Where to From Here? From 'Regulating' to Anticipating and Shaping the Innovation Trajectory in Personalized Medicine
Reference

Pharmacogenomics: Challenges and Opportunities in Therapeutic Implementation (Amsterdam: Elsevier, 2013)

http://www.sciencedirect.com/science/book/9780123919182

Author(s) Sénécal K., Lévesque E., Fernandez C., Tassé A.M., Zawati M.H., Knoppers B.M., Avard D.
Title RMGA Statement of Principles on the Return of Research Results and Incidental Findings
Reference (Montréal, RMGA, 2013)
http://www.rmga.qc.ca/en/documents/RMGAStatement_Principles_English_May272013_000.pdf

Author(s) Sénécal K., Lévesque E., Fernandez C., Tassé A.M., Zawati M.H., Knoppers B.M., Avard D.
Title Énoncé de principes du RMGA sur la communication des résultats de recherche et des découvertes fortuites
Reference
http://www.rmga.qc.ca/fr/documents/EnonceduRMGA_versionfr_27mai2013.pdf

Author(s) So D., Joly Y., Knoppers B.M.
Title Clinical Trial Transparency and Orphan Drug Development: Recent Trends in Data Sharing by the Pharmaceutical Industry
Reference

(2014) 16:6 Public Health Genomics, 322


Author(s) van El C.G., Cornel M.C., Borry P., Hastings R.J., Fellmann F., Hodgson S.V., Howard H.C., Cambon-Thomsen A., Knoppers B.M., Meijers-Heijboer H., Scheffer H., Tranebjaerg L., Dondorp W., de Wert G.M.W.R.
Title Whole-genome sequencing in health care
Reference (2013) 21:6 European Journal of Human Genetics, 580

Author(s) Wall Warner A., Bienfait K.L., Bledsoe M., Burckart G., Flamion B., Knoppers B.M., Nelsen A.J., Rudman A., Sieffert N.J., Uyama Y.
Title Improving Clinical Trial Sampling for Future Research - An International Approach: Outcomes and Next Steps from the DIA Future Use Sampling Workshop 2011
Reference

(2013) 14:1 Pharmacogenomics, 103


Top Top

2012

Author(s) Avard D., Black L., Samuel J., Griener G., Knoppers B.M.
Title Best Practices for Research Involving Children and Adolescents: Genetic, Pharmaceutical and Longitudinal Studies
Reference Centre of Genomics and Policy (CGP), Maternal Infant Child and Youth Research Network (MICYRN), December 2012, 1

Author(s) Black L., Knoppers B.M., Avard D., Simard J.
Title Legal Liability and the Uncertain Nature of Risk Prediction: The Case of Breast Cancer Risk Prediction Models
Reference (2012) 15:6 Public Health Genomics, 327

Author(s) Budin-Ljøsne I., Harris J.R., Kaye J., Knoppers B.M., Tassé A.M., Bravo E., Cambon-Thomsen A., Eriksson M., Kyvik K.O., Litton J.-E., Perola M., Rial-Sebbag E.
Title ELSI Challenges and Strategies of National Biobanks Infrastructures
Reference

(2012) 21:2 Norwegian Journal of Epidemiology, 155

http://www.ntnu.no/ojs/index.php/norepid/article/view/1487

Author(s) Clarke L., Zheng-Bradley X., [...] & The Genomes project Consortium (Knoppers B.M.)
Title The 1000 Genomes Project: Data Management and Community Access
Reference (2012) 9:5 Nature Methods, 459

Author(s) Dandara C., Adebamowo C., de Vries J., Dove E.S., Fisher E., Gibbs R.A., Hotez P.J., Kickbusch I., Knoppers B.M., Masellis M., Oestergaard M.Z., Pang T., Rotimi C.N.
Title An Idea Whose Time Has Come? An African Foresight Observatory on Genomics Medicine and Data-Intensive Global Science
Reference

(2012) 10:1 Current Pharmacogenomics and Personalized Medicine, 7-15.

http://www.benthamdirect.org/pages/content.php?CPPM/2012/00000010/00000001/002AF.SGM

Author(s) De Wert G.M.W.R., Dondorp W.J., Knoppers B.M.
Title Preconception Care and Genetic Risk: Ethical Issues
Reference

(2012) 3:3 Journal of Community Genetics, 221

http://www.springerlink.com/content/0j308gx127p110k7/?MUD=MP

Author(s) Dove E.S., Joly Y., Knoppers B.M.
Title Power to the People: A Wiki-governance Model for Biobanks
Reference

(2012) 13:5 Genome Bioliogy: 158.

http://genomebiology.com/2012/13/5/158

Author(s) Harris J.R., Burton P., Knoppers B.M., Lindpaintner K., Bledsoe M., Brookes A.J., Budin-Ljøsne I., Chisholm R., Cox D., Deschênes M., Fortier I., Hainaut P., Hewitt R., Kaye J., Litton J.E., Metspalu A., Ollier B., Palmer L.J., Palotie A., et al.
Title Toward a Roadmap in Global Biobanking for Health
Reference

(2012) 20:11 European Journal of Human Genetics, 1105

http://www.nature.com/ejhg/journal/vaop/ncurrent/full/ejhg201296a.html

Author(s) Isasi R., Knoppers B.M., Andrews P.W., Bredenoord A., Colman A., Hin L.E., Hull S., Kim O.-J., Lomax G., Morris C., Sipp D., Stacey G., Wahlstrom J., Zeng F.
Title Disclosure and Management of Research Findings in Stem Cell Research and Banking: Policy Statement
Reference

(2012) 7:3 Regenerative Medicine, 439


Author(s) Joly Y., Allen C., Knoppers B.M.
Title Currents in Contemporary Bioethics. Open Access as Benefit Sharing? The Example of Publicly Funded Large-Scale Genomic Databases
Reference (2012) 40:1 Journal of Law Medicine and Ethics, 143

Author(s) Joly Y., Dove E.S., Kennedy K.L., Bobrow M., Ouellette B.F. Francis, Dyke S.O.M., Kato K., Knoppers B.M.
Title Open Science and Community Norms: Data Retention and Publication Moratoria Policies in Genomics Projects
Reference

Author(s) Joly Y., Dove E.S., Knoppers B.M., Bobrow M., Chalmers D.
Title Data Sharing in the Post-Genomic World: The Experience of the International Cancer Genome Consortium (ICGC) Data Access Compliance Office (DACO)
Reference

(2012) 8:7 PLoS Computational Biology, e1002549.

http://www.ploscompbiol.org/article/info%3Adoi%2F10.1371%2Fjournal.pcbi.1002549

Author(s) Kaye J., Meslin E.M., Knoppers B.M., Juengst E.T., Deschênes M., Cambon-Thomsen A., Chalmers D., DeVries J., Edwards K., Hoppe N., Kent A., Adebamowo C., Marshall P., Kato K.
Title Research Priorities. ELSI 2.0 for Genomics and Society
Reference (2012) 336:6082 Science, 673
http://www.sciencemag.org/content/336/6082/673.summary

Author(s) Kleiderman E., Avard D., Black L., Diaz Z., Rousseau C., Knoppers B.M.
Title Recruiting Terminally Ill Patients into Non-Therapeutic Oncology Studies: Views of Health Professionals
Reference (2012) 13:1 BMC Medical Ethics, 33

Author(s) Knoppers B.M.
Title Children First
Reference (2012) 25:4 GeneWatch, 16

Author(s) Knoppers B.M.
Title Paediatric Research and the Communication of Not-So Incidental Findings
Reference

(2012) 17:4 Paediatric Child Health Journal, 190

http://www.pulsus.com/journals/abstract.jsp?origPg=abstract.jsp&sCurrPg=abstract&jnlKy=5&atlKy=10539&isuKy=1019&isArt=t&fromfold=Current%20Issue&&HCtype=Consumer

Author(s) Knoppers B.M., Avard D., Sénécal K.
Title Newborn Screening Programmes: Emerging Biobanks?
Reference

(2012) 21:2 Norwegian Journal of Epidemiology, 163

http://www.cabdirect.org/abstracts/20123149095.html;jsessionid=A6C085A695ED075D439C33264F4A0B28

Author(s) Knoppers B.M., Avard D., Thorogood A.
Title Informed Consent in Genetics
Reference

(2012) John Wiley & Sons, 1

http://onlinelibrary.wiley.com/doi/10.1002/9780470015902.a0005199.pub2/full

Author(s) Knoppers B.M., Dove E.S., Litton J.E., Nietfeld J.J.
Title Questioning the Limits of Genomic Privacy
Reference (2012) 9:3 American Journal of Human Genetics, 577

Author(s) Knoppers B.M., Zawati M.H.
Title Biobanks
Reference Encyclopedia of Applied Ethics (San Diego: Academic Press, 2012)

Author(s) Knoppers B.M., Zawati M.H., Kirby E.S.
Title Sampling Populations of Humans Across the World: ELSI Issues
Reference

(2012) 13:1 The Annual Review of Genomics and Human Genetics, 395


Author(s) Murtagh M.J., Thorisson G.A., Wallace S.E., ... Knoppers B.M. et al
Title Navigating the Perfect [Data] Storm
Reference

(2012) 21:2 Norwegian Journal of Epidemiology, 203

http://www.ntnu.no/ojs/index.php/norepid/article/view/1495

Author(s) Ozdemir V, Avard D, Knoppers BM
Title Case Discussion in Response to Worldwide and Local Anti-Malaria Initiatives
Reference

Population and Public Health Ethics: Cases from Research, Policy, and Practice (Toronto: University of Toronto Joint Centre for Bioethics, 2012) (also available in French)


Author(s) Ozdemir V., Joly, Y., Dove, E.S., Karalis, A., Avard, D., Knoppers, B.M.
Title Are we Asking the Right Ethics Questions on Drug Shortages? Suggestions for a Global and Anticipatory Ethics Framework.
Reference

(2012) 12:1 American Journal of Bioethics, 13


Author(s) Romeo-Casabona C., Nicolas P., Knoppers B.M., Joly Y., Wallace S.E., Chalmers D., Dyke S., Kennedy K., Troncoso A., Kaan T., Rial-Sebbag E.
Title Legal Aspects of Genetic Databases for International Biomedical Research: The Example of the International Cancer Genome Consortium (ICGC)
Reference

(2012) 37 Law and the Human Genome Review, 15


Author(s) Samuël J., Knoppers B.M., Avard D.
Title Paediatric Biobanks: What Makes Them so Unique?
Reference

(2012) 48:2 Journal of Paediatrics and Child Health, E1


Author(s) The 1,000 Genomes Project Consortium (Knoppers B.M.)
Title An Integrated Map of Genetic Variation from 1,092 Human Genomes
Reference (2012) 491:7422 Nature, 56

Author(s) Thorogood A., Knoppers B.M., Dondorp W.J., De Wert G.M.W.R.
Title Whole-Genome Sequencing and the Physician
Reference

(2012) 81 Clinical Genetics, 511


Author(s) von Tigerstrom B., Nguyen M.T., Knoppers B.M.
Title Regulation of Stem Cell-Based Therapies in Canada: Current Issues and Concerns
Reference (2012) 8:3 Stem Cell Reviews and Reports, 623

Author(s) Wallace S., Lazor S., Knoppers, B.M.
Title What is in a Clause? A Comparison of Clauses from Population Biobank and Disease Biobank Consent Materials
Reference

Trust in Biobanking (Berlin: Springer-Verlang, 2012)


Author(s) Wallace, S., Knoppers, B.M.
Title The Role of P3G in Encouraging Public Trust in Biobanks
Reference

Trust in Biobanking (Berlin: Springer-Verlag, 2012)


Author(s) Zawati M.H., Knoppers B.M.
Title International Normative Perspectives on the Return of Individual Research Results and Incidental Findings in Genomic Biobanks
Reference

(2012) 14:4 Genetics in Medicine, 484


Top Top

2011

Author(s) Brand A., Knoppers B.M., Ambrosino E.
Title Public Health Genomics Journal: Adjusting the Agenda to Future Needs
Reference

(2011) 14:3 Public Health Genomics, 125


Author(s) Budin-Ljøsne, I., Tassé A.M., Knoppers B.M., Harris J.R.
Title Bridging Consent: From Toll Bridges to Lift Bridges?
Reference

(2011) 4:69 BMC Medical Genomics,1


Author(s) Conrad D.F., Keebler J.E., DePristo M.A., Lindsay S.J., [...] 1000 Genomes Project (Knoppers B.M.)
Title Variation in Genome-wide Mutation Rates within and Between Human Families
Reference (2011) 43:7 Nature Genetics, 712

Author(s) Dove E.S., Knoppers B.M., Joly, Y.
Title Trade-Secret Model: Legal Limitations
Reference

(2011)333:6049 Science, 1575

http://www.sciencemag.org/content/333/6049/1575.1.full

Author(s) Fortier I., Doiron D., Little J., Ferretti V., L'Heuruex F., Stolk R.P., Knoppers B.M., Hudson T.J., Burton P.R. on behalf of the International Harmonization Initiative
Title Is Rigorous Retrospective Harmonization Possible? Application of the DataSHaPER Approach Across 53 Large Studies
Reference (2011) 40:5 International Journal of Epidemiology, 1314

Author(s) Gravel S., Henn B.M., Gutenkunst R.N., Indap A.R., Marth G.T., Clark A.G., Yu F., Gibbs R.A., 1000 Genomes Project (Knoppers B.M.)
Title Demographic History and Rare Allele Sharing Among Human Populations
Reference (2011) 108:29 Proc Natl Acad Sci U S A, 11983

Author(s) Grizzle W.E., Knoppers B.M., Zeps N., Hewitt S.M., Sullivan K.
Title What Are the Most Oppressing Legal and Ethical Issues Facing Biorepositories and What are Some Strategies to Address Them?
Reference

(2011) 9:4 Biopreservation and Biobanking, 317


Author(s) Isasi R., Knoppers B.M.
Title From Banking to International Governance: Fostering Innovation in Stem Cell Research
Reference (2011) 2011 Stem Cell International, 1

Author(s) Isasi R., Knoppers B.M., Lomax G.
Title Sustained Interaction: The New Normal for Stem Cell Repositories?
Reference (2011) 6:6 Regen. Med., 783

Author(s) Joly, Y., Zepps N., Knoppers B.M.
Title Genomic Databases Access Agreements: Legal Validity and Possible Sanctions
Reference (2011)130:3 Human Genetics, 441–449

Author(s) Knoppers B.M., Dam A.
Title Return of results: towards a lexicon?
Reference (2011) 39:4 J. Law Med. Ethics, 577

Author(s) Knoppers B.M., Harris J.R., Burton P.R., Murtagh M., Cox D., Deschênes M., Fortier I., Hudson T.J., Kaye J., Lindpaintner K.
Title From Genomic Databases to Translation: A Call to Action
Reference (2011) 37:8 Journal of Medical Ethics, 515

Author(s) Knoppers B.M., Harris J.R., Tassé A.M., Budin-Ljøsne I., Kaye J., Deschênes M., Zawati M.
Title Towards a data sharing Code of Conduct for international genomic research
Reference

(2011) 3:7 Genome Medicine, 1


Author(s) Knoppers B.M., Hudson T.J.
Title The Art and Science of Biobanking
Reference (2011) 130:3 Human Genetics, 329

Author(s) Knoppers B.M., Isasi R., Benvenisty N., Kim O.J., Lomax G., Morris C., Murray TH., Lee EH., Perry M., Richardson G., Sipp D., Tanner K., Wahlström J., de Wert G., Zeng F.
Title Publishing SNP Genotypes of Human Embryonic Stem Cell Lines: Policy Statement of the International Stem Cell Forum Ethics Working Party.
Reference (2011) 7:3 Stem Cell Reviews and Reports, 482

Author(s) Knoppers B.M., Lévesque E.
Title Introduction. Return of Research Results: How Should Research Results be Handled?
Reference (2011) 39:4 Journal of Law, Medicine and Ethics, 574
http://onlinelibrary.wiley.com/doi/10.1111/j.1748-720X.2011.00623.x/pdf

Author(s) Knoppers B.M., Zawati M.H.
Title De l'éthique et des avocats: les comités d'éthique dans le milieu hospitalier
Reference

in Éthique, profession juridique et société - Collection de droit 2011-2012, volume hors série, École du Barreau (Cowansville: Éditions Yvon Blais, 2011)


Author(s) Knoppers B.M., Zawati M.H.
Title Population Biobanks and Access
Reference in S. Rodota, P. Zatti (eds.), Il Governo del Corpo: Trattato di Biodiritto, Giuffrè Editore, 1181-1194

Author(s) Kourelis M., Isasi R., Knoppers B.M.
Title La recherche sur les embryons et le droit pénal : entre prohibition et permissivité?
Reference (2011) 82:1 Revue internationale de droit penal, 65

Author(s) Lévesque E., Knoppers B.M.
Title Principes assurant la protection des enfants participant à des biobanques : du stade prénatal jusqu'aux adolescents
Reference (2011) 5:2 Revue de droit et santé de McGill, 163.
http://mjlh.mcgill.ca/pdfs/vol5-2/MJLH%20Vol%20V,%20No.%202%20-%20Levesque.pdf

Author(s) Marth G.T., Yu F., Indap A.R., Garimella K., [...] 1000 Genomes Project (Knoppers B.M.)
Title The Functional Spectrum of Low-frequency Coding Variation
Reference

(2011) 12:9 Genome Biology, 1


Author(s) Ngueng Feze I., Joly Y., Zawati M., Knoppers B.M.
Title Genomic Population Biobanks: Legal, Ethical and Social Aspects
Reference (Paris, UIA, 2011)

Author(s) Ozdemir V., Faraj S.A., Knoppers B.M.
Title Steering Vaccinomics Innovations with Anticipatory Governance and Participatory Foresight.
Reference

 (2011) 15:9 OMICS,  doi:10.1089/omi.2011.0087

http://www.liebertonline.com/doi/abs/10.1089/omi.2011.0087

Author(s) Ozdemir V., Joly Y., Knoppers B.M.
Title ACCE, Pharmacogenomics, and Stopping Clinical Trials: Time to Extend the CONSORT Statement?
Reference

 (2011) 11:3 American Journal of Bioethics 11

http://www.informaworld.com/smpp/content~content=a934769011~db=all

Author(s) Ozdemir V., Knoppers B.M.
Title Future Outlook: Emerging Innovative Approaches for Effective Integration of Medical Research in Clinical Practice
Reference

Forward Look: Implementation of Medical Research in Clinical Practice (Strasbourg: European Science Foundation, 2011) 58

http://www.esf.org/fileadmin/FlipBooks/Flip/flip_report.html#/1/

Author(s) Ozdemir V., Pang T., Knoppers B.M., Avard, D., Faraj S.A., Zawati M.H., Kolker E.
Title Vaccines of the 21st Century and Vaccinomics: Data-Enabled Science Meets Global Health to Spark Collective Action for Vaccine Innovation.
Reference

 (2011) 15:9 OMICS,  523

http://www.liebertonline.com/doi/abs/10.1089/omi.2011.03ed

Author(s) Ozdemir V., Smith C., Bongiovanni K., Cullen D., Knoppers B.M., Lowe A., Peters M., Robbins R., Stewart E., Yee G., Yu Y-K., Kolker E.
Title Policy and Data-Intensive Scientific Discovery in the Beginning of the 21st Century
Reference

(2011) 15:4 OMICS: A Journal of Integrative Biology, 221

http://www.liebertonline.com/doi/pdfplus/10.1089/omi.2011.0007

Author(s) Pathmasiri S., Deschênes M., Joly Y., Mrejen T., Hemmings F., Knoppers B.M.
Title Intellectual Property Rights in Publicly Funded Biobanks: Much Ado About Nothing?
Reference

(2011) 29:4 Nature Biotechnology, 319


Author(s) Samuël J., Knoppers B.M., Avard D.
Title Medical Research Involving Children: A Review of International Policy Statements
Reference Health Care Ethics: Core and Emerging Issues (London: SAGE, 2011)

Author(s) Tassé A.M., Knoppers B.M.
Title Governance and Use of Previously Stored Human Biological Material in the Public Health Context: Legal and Ethical Issues
Reference

(Ottawa, PHAC, 2011)


Author(s) Tassé A.M., Knoppers B.M.
Title Guidance for Biobanking: Anonymization and Disposal of Human Biological Materials from Existing Collection
Reference

(Ottawa, Health Canada, 2011)


Author(s) Vermeulen E., Schmidt M.K., Cornel M.C., Knoppers B.M., van Leeuwen F.E., Aaronson N.K.
Title Connective tissue: Cancer patients' Attitudes Towards Medical Research Using Excised (Tumour) Tissue
Reference

(2011) 6:4 BioSocieties, 466


Author(s) Wallace S.E., Knoppers B.M.
Title Harmonised consent in international research consortia: an impossible dream?
Reference

(2011) 7 Genomics, Society and Policy, 35


Author(s) Zawati M.H., Knoppers B.M., Rioux A.
Title Guidance for Biobanks: Models of Consent for Public Health
Reference

Report submitted to the Public Health Agency of Canada (PHAC), 18 March 2011


Author(s) Zawati MH, Van Ness B and Knoppers BM
Title Incidental findings in Genomic Research: A Review of International Norms
Reference

(2011) 9:1 GenEdit, 1

http://www.humgen.org/int/GE/en/2011-1.pdf

Author(s) Zawati MH, Van Ness B et Knoppers BM
Title Les découvertes fortuites dans la recherche en génomique: une revue des normes internationales
Reference (2011) 9:1 GenEdit 1
http://www.humgen.org/int/GE/fr/2011-1.pdf

Top Top

2010

Author(s) 1000 Genomes Project Consortium (knoppers B.M.), Abecasis G.R., Altshuler D., Auton A., Brooks L.D., Durbin R.M., Gibbs R.A., Hurles M.E., McVean G.A.
Title A map of human genome variation from population-scale sequencing
Reference (2010) 467:7319 Nature, 1061

Author(s) Black L., Simard J., Knoppers B.M.
Title Genetic Testing, Physicians and the Law: Will the Tortoise Ever Catch Up with the Hare?
Reference

(2010) 16 Ann. Health L.,115


Author(s) Bombard Y., Miller F.A., Hayeems R.Z., Avard D., Knoppers B.M.
Title Reconsidering reproductive benefit through newborn screening: a systematic review of guidelines on preconception, prenatal and newborn screening
Reference

(2010) 18:7 European Journal of Human Genetics, 751


Author(s) Bordet S., Bennett J., Knoppers B.M., McNagny K.M.
Title The changing landscape of human-animal chimera research: A Canadian regulatory perspective
Reference (2010) 4 Stem Cell Research, 10
http://www.sciencedirect.com/science/journal/18735061

Author(s) Bordet S., Nguyen T.M., Knoppers B.M., Isasi R.
Title Use of Umbilical Cord Blood for Stem Cell Research
Reference

(2010) 32:1 JOGC, 58


Author(s) Borugian M.J., Robson P., Fortier I., Parker L., McLauglin J., Knoppers B.M., Bédard K., Gallagher R.P., Sinclair S., Ferretti V., Whelan H., Hoskin D., Potter J.D.
Title The Canadian Partnership for Tomorrow Project: Building a Pan-Canadian Research Platform for Disease Prevention
Reference

(2010) 182:11 CMAJ, 1197


Author(s) Burke W., Burton H., Hall A.E., Karmali M., Khoury M.J., Knoppers B.M., Meslin E.M., Stanley F., Wright C.F., Zimmern R.L.
Title Extending the reach of public health genomics: What should be the agenda for public health in an era of genome-based and "personalized" medicine?
Reference

(2010) 12:12 Genetics in Medicine, 785


Author(s) Burton P., Fortier I., Knoppers B.M.
Title The Global Emergence of Epidemiological Biobanks: Opportunities and Challenges
Reference Human Genetic Epidemiology: Building the Evidence for Using Genetic Information to Improve Health and Prevent Disease (U.S.: Oxford University Press, 2010)

Author(s) Caulfield T., Knoppers B.M.
Title Introduction: The Age of Personal Genomics?
Reference (2010) 13:5 Public Health Genomics, 320

Author(s) Caulfield T., Knoppers B.M.
Title Consent, Privacy & Research Biobanks
Reference

(2010) 1 Genome Canada, 1

http://www.genomecanada.ca/medias/pdf/en/GPS-Policy-Directions-Brief.pdf

Author(s) Fortier I., Burton P.R., Robson P.J., Ferretti V., Little J., L'Heureux F., Deschênes M., Knoppers B.M., et al.
Title Quality, quantity and harmony: The DataSHaPER approach to integrating data across bioclinical studies
Reference (2010) 39:5 International Journal of Epidemiology, 1383

Author(s) Howard H.C., Knoppers B.M., Borry P.
Title Blurring Lines. The Research Activities of Direct-to-Consumer Genetic Testing Companies Raise Questions about Consumers as Research Subjects
Reference

(2010) 11:8 EMBO reports, 579

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2920435/

Author(s) Isasi R., Knoppers B.M.
Title Beyond the Embryo: Translational, Transdisciplinary and Translational Perspectives on Stem Cell Research
Reference

(2010) 7:2 SCRIPTed, 242

http://www.law.ed.ac.uk/ahrc/script-ed/vol7-2/isasi.asp

Author(s) Joly Y., Caulfield T., Knoppers B.M., Harmsen E., Pastinen T.
Title The Commercialization of Genomic Research in Canada
Reference (2010) 6:2 Healthcare Policy, 24

Author(s) Joly Y., McClellan K.A., Knoppers B.M.
Title Personalized Vaccines and Public Health Genomics: Anticipating and Monitoring the ELSIs
Reference

(2010) 8 Current Pharmacogenomics and Personalized Medicine, 4


Author(s) Knoppers B.M.
Title Consent to 'personal' genomics and privacy. Direct-to-consumer genetic tests and population genome research challenge traditional notions of privacy and consent
Reference (2010) 11:6 EMBO reports, 416

Author(s) Knoppers B.M.
Title Des enjeux éthiques à l'évaluation éthique
Reference La malréglementation : Une éthique de la recherche est-elle possible et à quelles conditions? (Montréal: Les Presses de l'Université de Montréal, 2010)

Author(s) Knoppers B.M.
Title Return of Individual Research Results: Why the fuss?
Reference

(2010) 43:4 GRAVITAS (The Association of Faculties of Medicine of Canada), 17


Author(s) Knoppers B.M. & Isasi R.
Title Stem Cell Banking: Between Traceability and Identifiability
Reference

(2010) 2:10 Genome Medicine, 73


Author(s) Knoppers B.M., Avard D., Howard H.C.
Title Direct-to-consumer genetic testing: driving choice?
Reference

(2010) 10:8 Expert Rev. Mol. Diagn., 965

http://www.expert-reviews.com/loi/erm

Author(s) Knoppers B.M., Ho W.C.
Title Biomedical Law and Ethics - Introduction
Reference

(2010) 22 (Special Issue) Singapore Academy of Law Journal, 759


Author(s) Knoppers B.M., Isasi R., Willemse L.
Title Stem Cell Charter
Reference

(2010) 5:1 Regen. Med., 5


Author(s) Knoppers B.M., Joly Y.
Title General Problems Related to the Collection and Processing of Health Related Information for Insurance Purposes Including those which are Specific to Predictive Health Data
Reference (Council of Europe, CDBI-CO-GT4 (2010) 6REV)

Author(s) Knoppers B.M., Kirby E., Isasi R.
Title Genetics and Stem Cell Research: Models of International Policy
Reference Bioethics in Singapore: The Ethical Microcosm (Singapore: World Scientific Publishing Co. Pte. Ltd, 2010)

Author(s) Knoppers B.M., Leroux T., Doucet H., Godard B., Laberge C., Stanton-Jean M., Fortin S., Cousineau J., Monardes C., Girard N., Levesque L., Durand C., Farmer Y., Dion-Labrie M., Bouthillier M.-E., Avard D.
Title Framing Genomics, Public Health Research and Policy: Points to Consider
Reference

(2010) 13:4 Public Health Genomics, 224


Author(s) Lévesque E., Leclerc D., Puymirat J., Knoppers B.M.
Title Developing Registries of Volunteers: Key Principles to Manage Issues Regarding Personal Information Protection
Reference

(2010) 36:11 J. Med. Ethics, 712

http://jme.bmj.com/content/early/2010/09/29/jme.2010.036715.full.pdf

Author(s) Naukkarinen J., Surakka I., Pietiläinen K.H., Rissanen A., Salomaa V., Ripatti S., Yki-Järvinen H., van Duijn C.M., Wichmann H.E., Kaprio J., Taskinen M.R., Peltonen L., ENGAGE Consortium (Knoppers B.M.)
Title Use of Genome-Wide Expression Data to Mine
Reference (2010) 6:6 PLoS Genetics, 1

Author(s) Nguyen MH, Knoppers BM
Title Prenatal and Preimplantation Diagnosis: International Policy Perspectives
Reference

in Milunksy A, and Milunsky JM, eds. Genetic Disorders and the Fetus: Diagnosis, Prevention and Treatment (New Jersey: Wiley-Blackwell, 2010), 1091


Author(s) Ozdemir V., Armengaud J., Dubé L., Aziz R.K., Knoppers B.M.
Title Nutriproteomics and Proteogenomics: Cultivating Two Novel Hybrid Fields of Personalized Medicine with Added Societal Value
Reference

(2010) 8:4 Current Pharmacogenomics and Personalized Medicine, 240

http://docserver.ingentaconnect.com/deliver/connect/ben/18756921/v8n4/s1.pdf?expires=1314405786&id=64129995&titleid=99000213&accname=Guest+User&checksum=F1C35F80EBD920C502C7C3D75B6D6D59

Author(s) Ozdemir V., Knoppers B.M.
Title One Size Does Not Fit All: Toward "Upstream Ethics"?
Reference

(2010) 10:6 American Journal of Bioethics, 42

http://www.informaworld.com/smpp/content~db=all?content=10.1080/15265161.2010.482639

Author(s) Tassé A. M., Letendre M, Knoppers BM
Title La recherche et les personnes décédées: l'utilisation secondaire des dossiers médicaux et du matériel biologique
Reference

(2010) 8:1 GenEdit, 1

http://www.humgen.org/int/GE/fr/2010-1.pdf

Author(s) Tassé A. M., Letendre M, Knoppers BM
Title Research and Deceased Persons : The Secondary Use of Medical Data and Biological Materials
Reference

(2010) 8:1 GenEdit, 1

http://www.humgen.org/int/GE/en/2010-1.pdf

Author(s) Tassé A.M., Budin-Ljøsne I., Knoppers B.M., Harris J.R.
Title Retrospective access to data: The ENGAGE consent experience
Reference

(2010) 18 EJHG, 741

http://www.nature.com/ejhg/journal/v18/n7/full/ejhg201030a.html

Author(s) Tassé A.M., Letendre M., Knoppers B.M.
Title Investigación y Personas Fallecidas: Uso Secundario de la Información Médica y los Materiales Biológicos
Reference

(2010) 8:1 GenEdit 1-9

http://www.humgen.org/int/GE/es/2010-1.pdf

Author(s) Tassé A.M., Sénécal K., Samuël J., Avard D., Knoppers B.M.
Title Énoncé de principes sur l’utilisation secondaire de données et de matériel biologique recueillis dans un contexte de soins ou de recherche
Reference (Montréal, RMGA, 2010)
http://www.rmga.qc.ca/files/attachments/0000/0130/RMGA-Enonce_de_principes_sur_utilisation_secondaire_2.pdf

Author(s) Thorgeirsson T.E., Gudbjartsson D.F., [...] The ENGAGE Consortium (Knoppers B.M.), et al
Title Sequence Variants at CHRNB3-CHRNA6 and CYP2A6 Affect Smoking Behavior
Reference

(2010) 42:5 Nature Genetics, 448


Author(s) Warner A., Nelsen A., Bhathena A., Fitzgerlad K., Gilardi S., Kelso E., Knoppers B., McLeod H.L., Nelson R., Uyama Y., Weisman J. Rudman A.
Title Enabling Pharmacogenomic Clinical Trials Through Sampling
Reference (2010) 11:12 Pharmacogenomics, 1649

Author(s) Wolfson M., Wallace S.E., Masca N., Rowe G., Sheehan N.A., Ferretti V., LaFlamme P., Tobin M.D., Macleod J., Little J., Fortier I., Knoppers B.M., Burton P.R.
Title DataSHIELD: Resolving a Conflict in Contemporary Bioscience-Performing a Pooled Analysis of Individual-Level Data Without Sharing the Data
Reference

(2010) Int. J. Epidemiol., 1372


Top Top

2009

Author(s) Avard D., Knoppers B.M.
Title Genomic Medicine: Considerations for Health Professionals and the Public
Reference (2009) 1:2 Genome Medicine, 25.1

Author(s) Avard D., Samuël J., Knoppers B.M. (eds.)
Title Paediatric Research in Canada
Reference Paediatric Research in Canada (Montreal: Les Éditions Thémis, 2009) 270pp

Author(s) Bédard K., Wallace S., Lazor S., Knoppers B.M.
Title Potential Conflicts in Governance Mechanisms used in Population Biobanks
Reference in Kaye J. & Stranger M. (eds.) Principles and Practice in Biobank Governance (United Kingdom: Ashgate, 2009)

Author(s) Birney E., Hudson T.J., [...] Knoppers B.M., et al
Title Prepublication Data Sharing
Reference

(2009) 461:7261 Nature, 168


Author(s) Bordet S., Knoppers B.M.
Title L'humain, l'humanité et les biotechnologies
Reference L'humain, l'humanité et le progrès scientifique (eds. Hervé C, Jean MS, Molinari PA, Grimaud M-A , Laforêt E) (France: Dalloz, 2009)

Author(s) Bouffard C., Viville S., Knoppers B.M.
Title Genetic diagnosis of embryos: Clear explanation, not rhetoric, is needed
Reference

Author(s) Bucci L, Stanton-Jean M and Knoppers BM
Title A Risk Governance Model for Nanotechnology: A Review of International Guidelines and Policy Statements
Reference (2009) 7:2 GenEdit, 1-6
http://www.humgen.org/int/GE/en/2009-2.pdf

Author(s) Bucci L, Stanton-Jean M et Knoppers BM
Title Modèle de gouvernance du risque en matière de nanotechnologies:Étude des lignes de conduite et des énoncés de politiques internationales
Reference (2009) 7:2 GenEdit, 1-6
http://www.humgen.org/int/GE/fr/2009-2.pdf

Author(s) Bucci L, Stanton-Jean M, Knoppers BM
Title Un modelo de gobernabilidad de los riesgos para la nanotecnología: Una revisión de guías y políticas internacionales
Reference (2009) 7:2 GenEdit, 1-7
http://www.humgen.org/int/GE/es/2009-2.pdf

Author(s) Costea I., Isasi R., Knoppers B.M., Lillicrap D.
Title Haemophilia gene therapy: the patients' perspective
Reference (2009) 15:5 Haemophilia, 1159

Author(s) Fortin S., Knoppers B.M.
Title Secondary Uses of Personal Data for Population Research
Reference (2009) 5:1 Genomics, Society and Policy, 60

Author(s) Geransar R.M., Einsiedel E.F. , Galipeau J., Isasi R. , Sheremeta L., Knoppers B.M.
Title Catalyzing Umbilical Cord Blood Research in Canada: A Survey of Current Needs and Practices of Principal Investigators
Reference (2009) 31:1 J. Obstet. Gynaecol. Can, 63

Author(s) Gold E.R., Knoppers B.M.
Title Biotechnology IP & Ethics
Reference LexisNexis Canada Inc., 2009, 305 p.

Author(s) Gurwitz D., Fortier I., Lunshof J.E., Knoppers B.M.
Title Children and population biobanks
Reference (2009) 325 Science, 818-819
http://www.sciencemag.org/cgi/content/short/325/5942/818

Author(s) Isasi R.M., Knoppers B.M.
Title Governing stem cell banks and registries: Emerging issues
Reference (2009) 3:2-3 Stem Cell Res., 96
http://www.ncbi.nlm.nih.gov/pubmed/19586808

Author(s) Isasi R.M., Knoppers B.M.
Title Towards Commonality? Policy Approaches to Human Embryonic Stem Cell Research in Europe
Reference in Plomer A. & Torremans P. (eds.) Embryonic Stem Cell Patents: European Law and Ethics (London: Oxford University Press, 2010)

Author(s) Knoppers B.M.
Title Genetics: From Fate to Fortune-Telling
Reference (Fall 2009) WOA Alumni Magazine, 15
http://issuu.com/faculty_of_arts/docs/work_20of_20arts_fall_202009_online

Author(s) Knoppers B.M.
Title Challenges to Ethics Review in Health Research
Reference

(2009) 17:2-3 Health Law Review, 47


Author(s) Knoppers B.M.
Title Genomics and Policymaking: From Static Models to Complex Systems?
Reference (2009) 125 Hum Genet, 375 

Author(s) Knoppers B.M.
Title Biotechnology & Ethics
Reference Biotechnology IP & Ethics (Canada: LexisNexis Canada Inc., 2009)

Author(s) Knoppers B.M., Abdul-Rahman (Zawati) M.H.
Title Health Privacy in Genetic Research: Populations and Persons
Reference (2009) 28:2 Politics and the Life Sciences, 99

Author(s) Knoppers B.M., Avard D.
Title 'Principled' personalized medicine?
Reference (2009) 6:6 Personalized Medicine, 663

Author(s) Knoppers B.M., Bordet S., Isasi R.
Title The Human Embryo: Ethical and Legal Aspects
Reference Human Embryogenesis: Methods and Protocols (New York: Humana Press, 2009)

Author(s) Knoppers B.M., Joly Y.
Title General Problems Related to the Collection and Processing of Health Related Information for Insurance Purposes Including those which are Specific to predictive Health Data
Reference (Council of Europe, 2009)

Author(s) Knoppers B.M., Kharaboyan L.
Title "Deconstructing" Biobank Communication of Results
Reference (2009) 6:3 SCRIPTed, 677

Author(s) Knoppers B.M., Laberge C.
Title Return of Accurate and Actionable Results: Yes
Reference (2009) 9:6-7: AJOB, 107

Author(s) Levesque E., Fraser W., Knoppers B.M.
Title Consentimiento para la Investigación: Situaciones Excepcionales
Reference (2009) 7:3 GenEdit 1-12
http://www.humgen.org/int/GE/es/2009-3.pdf

Author(s) Lévesque E., Fraser W., Knoppers B.M.
Title Le consentement à la recherche: les situations d'exception
Reference

(2009) 7:3 GenEdit 1-13

http://www.humgen.org/int/GE/fr/2009-3.pdf

Author(s) Lévesque E., Fraser W., Knoppers B.M.
Title Consent to Research: Exceptional Situations
Reference

(2009) 7:3 GenEdit 1-12

http://www.humgen.org/int/GE/en/2009-3.pdf

Author(s) Nycum G., Avard D., Knoppers B.M.
Title Factors Influencing Intrafamilial Communication of Hereditary Breast and Ovarian Cancer Genetic Information
Reference (2009) European Journal of Human Genetics, Advance online publication, 25 March 2009; doi:10.1038/ejhg.2009.33

Author(s) Nycum G., Knoppers B.M., Avard D.
Title Intra-familial Obligations to Communicate Genetic Risk Information: What Foundations? What Forms?
Reference (2009) 3 McGill Journal of Law and Health, 21

Author(s) P3G Consortium (Knoppers B.M.), Church G., Heeney C., Hawkins N., de Vries J., Boddington P., Kaye J., Bobrow M., Weir B.
Title Public Access to Genome-Wide Data: Five Views on Balancing Research with Privacy and Protection
Reference

(2009) 5:10 PLoS Genetics, 1


Author(s) Samuël J., Knoppers B.M., Avard D.
Title Research Involving Children: An Analysis of International and Canadian Norms
Reference Paediatric Research in Canada (Montreal: Les Éditions Thémis, 2009), pp. 1-32.

Author(s) Samuël J., Ries N.M., Malkin D., Knoppers B.M.
Title Biobanks and Children: Comparative International Policies
Reference Paediatric Research in Canada (Montreal: Les Éditions Thémis, 2009), pp. 103-127

Author(s) Silverstein T., Joly Y., Harmsen E., Knoppers B.M. for the GRID (Gene Regulators in Disease) Project
Title The Commercialization of Genomic Academic Research: Conflicting Interests?
Reference Biotechnology IP & Ethics (Canada: LexisNexis Canada Inc., 2009)

Author(s) Taupitz J., Bader M., Knoppers B.M., et al
Title Summary, Conclusions and Recommendations
Reference Chimbrids-Chimeras and Hybrids in Comparative European and International Research (Berlin: Springer, 2009)

Author(s) Wallace S., Lazor S., Knoppers B.M.
Title Consent and Population Genomics: The Creation of Generic Tools
Reference (2009) 31:2 IRB: Ethics & Human Research, 15

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2008

Author(s) B. M. Knoppers, F. D. Legault and P. Burton
Title The Public Population Project in Genomics (P3G): a Proof of Concept?
Reference European Journal of Human Genetics (2008), Vol. 16, 664-665
http://www.nature.com/ejhg/journal/v16/n6/pdf/ejhg200855a.pdf

Author(s) Caulfield T., McGuire A.L., Cho M., Buchanan J.A., Burgess M.M., Danilczyk U., Diaz C.M., Fryer-Edwards K., Green S.K., Hodosh E.T., Kaye J., Kedes L., Knoppers B.M., Lemmens T., Meslin E.M., Murphy J., Nussbaum R.L., Otlowski M., Pullman D., Ray P.N., Sugarman J., Timmons M.
Title Research Ethics Recommendations for Whole-Genome Research: Consensus Statement
Reference

(2008) 6:3 PloS Biology, 0430


Author(s) Cohen C.B., Brandhorst B., Nagy A., Leader A., Dickens B., Isasi R.M., Evans D., Knoppers B.M.
Title The use of fresh embryos in stem cell research: ethical and policy issues
Reference (2008) 2:5 Cell Stem Cell, 416

Author(s) Dorval M., Bouchard K., Maunsell E., Plante M., Chiquette J., Camden S., Dugas M.J., Simard J., INHERIT BRCAs (Knoppers B.M., et al)
Title Health Behaviors and Psychological Distress in Women Initiating BRC1/2 Genetic Testing: Comparison with Control Population
Reference

(2008) 17:4 Journal of Genetic Counseling, 314


Author(s) Joly, Y., Pham, C., Shorno, D., Knoppers, B.M.
Title Down the Rabbit Hole: Technology Transfer in the Field of Stem Cell Research
Reference (2008) 47 Revista da Faculta de Dereito de Universidade Federal do Parana 101

Author(s) Julie Samuël J., Ries N.M.,Malkin D., Knoppers B.M.
Title Biobanques et études longitudinales: Où sont les enfants?
Reference

(2008) 6:3 GenEdit, 1-9

http://www.humgen.org/int/GE/fr/2008-3.pdf

Author(s) Knoppers B.M.
Title Of biobanks: medical data and population genetics: whither identifiability?
Reference La protection des données médicales. Les défis du XXIe siècle/The protection of medical data. Challenges of the 21st century, L.G.D.J., France, 2008, 79-88

Author(s) Knoppers B.M. et Joly Y., dir.
Title La santé et le bien commun
Reference (Montréal: Les Éditions Thémis - Collection Droit, biotechnologie et société, 2008) 

Author(s) Knoppers B.M., Abdul-Rahman (Zawati) M.H.
Title Biobanks in the Literature
Reference in Elger B., Capron A., et al (eds), Ethical Issues in Governing Biobanks: Global Perspectives, Ch. 2 (UK: Ashgate Publishing Ltd, 2008)

Author(s) Knoppers B.M., Brand A.M.
Title From Community Genetics to Public Health Genomics - What's in a Name?
Reference (2008) 12 Public Health Genomics, 1-3

Author(s) Knoppers B.M., Joly Y.
Title La connaissance du génome : un instrument au service de l'humanité?
Reference dans B.M. Knoppers et Y. Joly, dir., La santé et le bien commun, (Montréal: Les Éditions Thémis - Collection Droit, biotechnologie et société, 2008) 249

Author(s) Knoppers B.M., Saginur M.
Title Bio-Banking
Reference in The Cambridge Textbook of Bioethics (Cambridge: Cambridge University Press, 2008)

Author(s) Lacroix M., Nycum G., Godard B., Knoppers B.M.
Title Should Physicians Warn Patients' Relatives of Genetic Risks?
Reference

(2008) 178:5 CMAJ, 593


Author(s) Nycum G., Avard D., Knoppers B.M.
Title Familial communication of genetic information: experiences and complexities
Reference

(2008) 12:2 Network News, 18-20


Author(s) Samuël J., Ries N., Malkin D., Knoppers B.M.
Title Biobancos Y Estudios Longitudinales: ¿Dónde Están Los Niños?
Reference (2008) 6:3 GenEdit, 1-10
http://www.humgen.org/int/GE/es/2008-3.pdf

Author(s) Samuël J., Ries N.M., Malkin D., Knoppers B.M.
Title Biobanks and Longitudinal Studies: Where Are the Children?
Reference

(2008) 6:3 GenEdit, 1-8

http://www.humgen.org/int/GE/en/2008-3.pdf

Author(s) Wallace S., Bédard K., Kent A. and Knoppers B.M.
Title Governance Mechanisms and Population Biobanks: Building a Framework for Trust
Reference (2008) 6:2 GenEdit, 1-11
http://www.humgen.org/int/GE/en/2008-2.pdf

Author(s) Wallace S., Bédard K., Kent A. et Knoppers B.M.
Title Les mécanismes de gouvernance et les biobanques populationnelles : Établir un cadre de confiance
Reference (2008) 6:2 GenEdit, 1-11
http://www.humgen.org/int/GE/fr/2008-2.pdf

Author(s) Wallace S., Bédard K., Kent A., Knoppers B.M.
Title Mecanismos de Gobernabiliad Y Biobancos Poblacionales: Desarrollando Un Marco de Confianza
Reference (2008) 6:2 GenEdit, 1-12
http://www.humgen.org/int/GE/es/2008-2.pdf

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2007

Author(s) Bordet S., Feldman S., Knoppers B.M.
Title Legal aspects of animal-human combinations in Canada
Reference (2007) 1:1 McGill Health Law Publication, 83
http://healthlaw.mcgill.ca/

Author(s) Bucci L.M., Knoppers B.M.
Title Toward a Canadian Policy Framework on Nanomedicine: Lessons from Reproductive Technologies
Reference

(2007) Diritto pubblico comparato ed Europeo, 2007 - IV, 1676


Author(s) Cambon-Thomsen A., Rial-Sebbag E., Knoppers B.M.
Title Trends in Ethical and Legal Frameworks for the Use of Human Biobanks
Reference

(2007) 30:2 Eur Resp J, 373


Author(s) Caulfield T., Ogbogu O., Knoppers B.M., Isasi R.M., et. al.
Title Stem Cell Research Ethics: Consensus Statement on Emerging Issues
Reference (2007) 29:10 J. Obstet. Gynaecol. Can. 2007, 843

Author(s) Day B., Langlois R., Tremblay M., Knoppers B.M.
Title Canadian Health Measures Survey: Ethical, Legal and Social Issues
Reference (2007) 18 Statistics Canada, Supplement to Health Reports, 37

Author(s) For the International Stem Cell Forum Ethics Working Party: Knoppers B.M., Revel M., Richardson G., Kure J., Lotjonen S., Isasi R., Mauron A., Wahlstrom J., Rager B., Peng P.L.H.
Title Oocyte Donation for Stem Cell Research
Reference (2007) Science 316, 368-369

Author(s) Isasi R.M., Knoppers B.M.
Title Monetary Payments for the Procurement of Oocytes for Stem Cell Research: In Search of Ethical and Political Consistency
Reference (2007) 1 Stem Cell Research, 37

Author(s) Joly Y., Wahnon F., Knoppers B.M.
Title Impact of the Commercialization of Biotechnology Research on the Communication of Research Results: North American Perspective
Reference (2007) 8:1 Harvard Health Policy Review, 71

Author(s) Kharaboyan L., Knoppers B.M., Avard D., Nisker J.
Title Understanding Umbilical Cord Blood Banking: What Women Need to Know Before Deciding
Reference (2007) 17:5 Women’s Health Issues, 277

Author(s) Knoppers B.M., Abdul-Rahman (Zawati) M., Bédard K.
Title Genomic Databases and International Collaboration
Reference (2007) 18:2 King's Law Journal, 291

Author(s) Knoppers B.M., Joly Y.
Title Our Social Genome?
Reference (2007) 25:7 Trends in Biotechnology, 284
http://www.sciencedirect.com

Author(s) Sheremeta L., Knoppers B.M.
Title Beyond the Rhetoric: Population Genetics and Benefit-Sharing
Reference

Accessing and Sharing the Benefits of the Genomics Revolution (Germany: Springer, 2007)


Author(s) Simard J., Dumont D., Moisan A.M., Gaborieau V., Vezina H., Durocher F., Chiquette J., Plante M., Avard D., Bessette P., Brousseau C., Dorval M., Godard B., Houde L., Joly Y., Lajoie M.A., Leblanc G., Lepine J., Lespernace B., et al., Knoppers B.M.
Title Evaluation of BRCA1 and BRCA2 Mutation Prevalence, Risk Prediction Models and a Multi-Step Testing Approach in French-Canadian High-Risk Breast and Ovarian Cancer Families
Reference

(2007) 44:2 J. Med. Genet., 107

http://jmg.bmjjournals.com/cgi/rapidpdf/jmg.2006.044388v1

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2006

Author(s) Avard D., Bridge P., Bucci L.M., Chiquette J., Dorval M., Durocher F., Easton D., Godard B., Goldgar D., Knoppers B.M., Laframboise R., Lesperance B., Plante M., Tavtigian S.V., Vezina H., Wilson B., Simard J., INHERIT BRCAs
Title Partnering in Oncogenetic Research - The INHERIT BRCAs Experience: Opportunities and Challenges
Reference (2006) 5:1 Familial Cancer, 3-13

Author(s) Avard D., Kharaboyan L., Knoppers B.M.
Title Newborn Screening for Sickle Cell Disease: Socio-Ethical Implications
Reference First Do No Harm: Law, Ethics and Healthcare (Aldershot:  Ashgate Publishing Limited, 2006)

Author(s) Chassigneux C., Trudel P., Knoppers B.M.
Title The Legal Framing of Computerized Processing of Health Data: A European and Canadian Perspective
Reference (2006) 4:1 GenEdit, 1-8 
http://www.humgen.org/int/GE/en/2006-1.pdf

Author(s) Chassigneux C., Trudel P., Knoppers B.M.
Title L'encadrement juridique du traitement informatisé des données relatives à la santé : perspective europeo-canadienne
Reference (2006) 4:1 GenEdit, 1-8
http://www.humgen.org/int/GE/fr/2006-1.pdf

Author(s) Godard B., Knoppers B.M.
Title Emerging Duties Re: Professional Disclosure
Reference in Sharpe N.F. and Carter R.F. (eds), Genetic Testing - Care, Consent, and Liability (Hoboken: Wiley-Liss, 2006), 409

Author(s) Grimaud M.A., Knoppers B.M.
Title Introduction générale
Reference Éthique de la recherché et santé publique (Paris: Éditions Dalloz, 2006)

Author(s) Hervé C., Knoppers B.M., Molinari P.A., Grimaud M.A.
Title Systèmes de santé et circulation de l'information : encadrement éthique et juridique
Reference (Paris: Dalloz, 2006)

Author(s) Hervé C., Knoppers B.M., Molinari P.A., Moutel G., Grimaud M.-A.
Title Éthique de la recherche et santé publique: où en est-on ?
Reference (Paris: Dalloz, 2006)

Author(s) Isasi R., Knoppers B.M.
Title Mind the Gap: Policy Approaches to Embryonic Stem Cell and Cloning Research in 50 Countries
Reference (2006) 13 European Journal of Health Law, 9

Author(s) Isasi R.M., Knoppers B.M.
Title Beyond the Permissibility of Embryonic and Stem Cell Research: Substantive Requirements and Procedural Safeguards
Reference (2006) 21: 10 Human Reproduction, 2474
http://humrep.oxfordjournals.org/cgi/content/abstract/del235v1

Author(s) Joly Y., Knoppers B.M.
Title Pharmacogenomic Data Sample Collection and Storage: Ethical issues and Policy Approaches
Reference (2006) 7:2 Pharmacogenomics, 219

Author(s) Joly Y., Sillon G., Knoppers B.M.
Title La pharmacogénomique : nouveaux médicaments, nouvelles responsabilités?
Reference 1er congrès international interdisciplinaire sur la Chaîne du Médicament, "Le médicament : conception, production et consommation"; Actes du congrès (Montréal : Groupe d'étude sur l'interdisciplinarité et les représentations sociales, 2006), 265
http://www.geirsomedicaments.uqam.ca/congres2005/ActesCongres2005.pdf

Author(s) Knoppers B.M.
Title Biobanks: New Challenges for Bioethics and Biolaw
Reference (2006) Iustitia, 47

Author(s) Knoppers B.M.
Title Introduction: Of Genomics and Public Health: Building Public Goods?
Reference in Knoppers B.M. (ed.), Genomics and Public Health: Legal and Socio-Ethical Perspectives (Leiden/Boston: Brill/Martinus Nijhoff, 2006)

Author(s) Knoppers B.M. (ed.)
Title Genomics and Public Health: Legal and Socio-Ethical Perspectives
Reference (Leiden/Boston: Martinus Nijhoff Publishers, 2006)

Author(s) Knoppers B.M., Bordet S., Isasi R.M.
Title Preimplantation Genetic Diagnosis: An Overview of Socio-Ethical and Legal Considerations
Reference (2006) 7 Annu. Rev. Genomics Hum. Genet., 201

Author(s) Knoppers B.M., Hervé C.
Title Matériel biologique et informatisation : beaucoup de bruit pour rien?/Biological Material and Electronic Data: Much Ado About Nothing?
Reference (France: Les Études Hospitalières, 2006)

Author(s) Knoppers B.M., Joly Y., Simard J., Durocher F.
Title The Emergence of an Ethical Duty to Disclose Genetic Research Results: International Perspectives
Reference (2006) 14:11 European Journal of Human Genetics, 1170 (2006) 14:12 European Journal of Human Genetics, 1322 (corrected)
http://www.nature.com/uidfinder/10.1038/sj.ejhg.5201690

Author(s) Knoppers B.M., Kent A.
Title Tool-Sharing Issues in Coherent Population-Based Research
Reference

(2006) 7:2 Nature Reviews/Genetics, 84


Author(s) Knoppers B.M., Saginur M., Cash H.
Title Ethical Issues in Secondary Uses of Human Biological Materials from Mass Disasters
Reference (2006) 34:2, Journal of Law, Medicine & Ethics, 352

Author(s) Lacroix M., Knoppers B.M.
Title La recherche en génomique : de la protection des individus à l'intérêt commun
Reference Éthique de la recherche et santé publique : où en est-on? (France: Éditions Dalloz, 2006)

Author(s) Lévesque E., Knoppers B.M., Avard D.
Title La protection de l'information génétique dans le domaine médical au Québec: principe général de confidentialité et questions soulevées par les dispositions d'exception
Reference (2005-2006) 36:1-2 Revue de droit de l'Université de Sherbrooke, 101 

Author(s) Poitras S., Petit E., Knoppers B.M., Godard B.
Title L'industrie montréalaise des biosciences : une évaluation empirique des besoins en matières réglementaire et éthique
Reference Bio-ingénierie et responsabilité sociale (Montréal : Les Éditions Thémis, 2006)

Author(s) Sallée C., Knoppers B.M.
Title Secondary Research Use of Biological Samples and Data in Quebec
Reference (2006) 85 The Canadian Bar Review, 137

Author(s) Samuël J., Alemdjrodo, R., Knoppers B.M.
Title Les droits de l'enfant et la thérapie génique : les enjeux éthiques et les particularités de l'article 21 du Code civil du Québec
Reference (2006) 66: Printemps, Revue du Barreau, 181-210
http://www.barreau.qc.ca/pdf/publications/revue/2006-tome-66.pdf

Author(s) Sheremeta L., Plant M., Knoppers B.M.
Title The Future of Cord Blood Banking in Canada
Reference (2006) 14:3 Health Law Review, 51

Author(s) The International Stem Cell Forum Ethics Working Party: Knoppers B.M., Richardson G., Lee E.H., Kure J., de Wert G., Ameisen J.C., Lötjönen L., Breen K., Isasi R., Mauron A., Murray T., Wahlström J.
Title Ethics Issues in Stem Cell Research
Reference (2006) 312:5772 Science, 366

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2005

Author(s) Cambon-Thomsen A., Sallée C., Rial-Sebbag E. and Knoppers B.M.
Title Populational Genetic Databases : Is a Specific Ethical and Legal Framework Necessary?
Reference (2005) 3:1 GenEdit, 1-13 
http://www.humgen.org/int/GE/en/2005-1.pdf

Author(s) Cambon-Thomsen A., Sallée C., Rial-Sebbag E. et Knoppers B.M.
Title Les bases de données génétiques populationnelles : un encadrement éthique et juridique spécifique nécessaire?
Reference (2005) 3:1 GenEdit, 1-13 
http://www.humgen.org/int/GE/fr/2005-1.pdf

Author(s) Cotton R., Sallée C., Knoppers B.M.
Title Locus-Specific Databases: From Ethical Principles to Practice
Reference

(2005) 26:5 Human Mutation, 484


Author(s) Finegold D.L., Bensimon C.M., Daar A.S., Eaton M.L., Godard B., Knoppers B.M., Mackie J.E., Singer P.A.
Title BioIndustry Ethics
Reference (New York: Elsevier Academy Press, 2005)

Author(s) Hervé C., Knoppers B.M., Molinari P.A., Moutel G.
Title Place de la bioéthique en recherche et dans les services cliniques
Reference (Paris: Éditions Dalloz, Collection Thèmes & commentaires, 2005)

Author(s) Joly Y, Knoppers BM, Nguyen MT
Title Stored tissue samples: through the confidentiality maze
Reference (2005) 5:1 The Pharmacogenomics Journal, 2

Author(s) Knoppers B.M.
Title Biobanking: international norms
Reference

(2005) 33:1 The Journal of Law, Medicine and Ethics, 7


Author(s) Knoppers B.M.
Title Overview of Law and Policy Challenges
Reference

(2005) 66 Louisiana Law Review, 21


Author(s) Knoppers B.M.
Title Of genomics and public health: Building public goods
Reference

(2005) 173:10 CMAJ, 1185


Author(s) Knoppers B.M., Saginur M.
Title The Babel of Genetic Data Terminology
Reference (2005) 23:8 Nature Biotechnology, 925
http://www.nature.com/nbt/journal/v23/n8/pdf/nbt0805-925.pdf

Author(s) Knoppers BM
Title L'intégration de la génétique dans la société: un tandem 'droits-responsabilités'
Reference in Philips-Nootens S, Godard B, Knoppers BM and Régnier MH (eds.), La recherche en génétique et génomique: droits et responsabilités, Éditions Thémis, Montreal, 2005, p.1-2.

Author(s) Knoppers BM
Title Consent Revisited: Points to Consider
Reference (2005) 13:2/3 Health Law Review, 33

Author(s) Knoppers BM, Chadwick R
Title Human Genetic Research: Emerging Trends in Ethics
Reference (2005) 6:1 Nat Rev Genet , 75

Author(s) Knoppers BM, MBulu H
Title Conclusion et synthèse
Reference Conclusion et synthèse (Paris: Dalloz, 2005)

Author(s) Knoppers BM, Sallée C
Title Ethical aspects of genome research and banking
Reference Ethical aspects of genome research and banking (Weinheim: Wiley-VCH, 2005)

Author(s) Lacroix M., Godard B., Knoppers B.M.
Title Le devoir de confidentialité, les risques génétiques et les intérêts de la famille : approches normatives
Reference (2005) 3:3 GenEdit, 1-8 
http://www.humgen.org/int/GE/fr/2005-3.pdf

Author(s) Lacroix M., Godard B., Knoppers B.M.
Title Warning Patients' Relatives of Genetic Risks: Policy Approaches
Reference (2005) 3:3 GenEdit, 1-8
http://www.humgen.org/int/GE/en/2005-3.pdf

Author(s) Malinowski M.J., Knoppers B.M., Bouchard C.
Title Introduction
Reference

(2005) 66 Louisiana Law Review, 1


Author(s) Philips-Nootens S, Godard B, Knoppers BM, Régnier MH (eds.)
Title La recherche en génétique et en génomique: droits et responsabilités
Reference La recherche en génétique et en génomique: droits et responsabilités (Montréal: Éditions Thémis, 2005)

Author(s) Plant M., Knoppers B.M.
Title Umbilical cord blood banking in Canada: socio-ethical and legal issues
Reference

(2005) 13 Health Law Journal, 187


Author(s) Simard .J, Joly Y., Durocher F., Knoppers B.M.
Title Les enjeux éthiques du partage des résultats de recherche: l'expérience d'INHERIT BRCAs
Reference Les enjeux éthiquesdu partage des résultats de recherche: l'expérience d'INHERIT BRCAs (Montréal: Éditions Thémis, 2005)

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2004

Author(s) Godard B, Marshall J, Laberge C, Knoppers BM
Title Startegies for consulting with the community: the cases of four large-scale databases
Reference (2004) 10:3 Science and Engineering Ethics, 457

Author(s) Gold ER, Knoppers BM, Caulfield TA, Cloutier M, Carbone J, Joly Y, Sheremeta LE
Title Recommendations for Canadian Genetic Patents and Health Care: An International Comparison of Patent Regimes of Canada and its Major Trading Partners
Reference Recommendations for Canadian genetic Patents and Health Care: An International Comparison of Patent Regimes of Canada and its Major Trading Partners (Montreal: Centre for Intellectual Property Policy, 2004)

Author(s) Isasi R.M., Knoppers B.M., Singer P.A., Daar A.S.
Title Legal and ethical approaches to stem cell and cloning research: a comparative analysis of policies in Latin America, Asia, and Africa
Reference J Law Med Ethics. 2004 Winter;32(4):626-40

Author(s) Joly Y, Knoppers BM
Title BRCA Gene Patents and the European Patent Office
Reference (2004) 4:2 Law and Bioethics (LAB) Report, 6
http://www.louisville.edu/medschool/ibhpl/images/pdf/Lab%20Report%20win%2004.pdf

Author(s) Kharaboyan L., Avard D., Knoppers B.M.
Title Storing Newborn Blood Spots: Modern Controversies
Reference (2004) 32:4 Journal of Law, Medicine and Ethics, 741

Author(s) Knoppers B.M., Godard B., Joly Y.
Title A Comparative International Overview
Reference Genetics and Life Insurance: Medical Underwriting and Social Policy (Cumberland: The MIT Press, 2004)

Author(s) Knoppers B.M., Isasi R.
Title Regulatory approaches to reproductive genetic testing
Reference (2004) 19:12 Human Reproduction, 2695

Author(s) Knoppers B.M., Joly Y.
Title Physicians, Genetics and Life Insurance
Reference (2004) 170:5 CMAJ, 1421

Author(s) Knoppers B.M., Scriver C.
Title Genomics, Health and Society: Emerging Issues for Public Policy
Reference (Alberta: Policy Research Initiative, 2004)

Author(s) Knoppers BM
Title Biobanks: simplifying consent
Reference (2004) 5 Nat Rev Genet , 485

Author(s) Knoppers BM, Lemmens T, Godard B, Joly Y, et al
Title Genetics and Life Insurance in Canada : Points to Consider
Reference (2004) 170:9 CMAJ, 1

Author(s) Kosseim P., Letendre M., Knoppers B.M.
Title La protection de l'information génétique : une comparaison des approches normatives
Reference (2004) 2:1 GenEdit
http://www.humgen.org/int/GE/fr/2004-1.pdf

Author(s) Kosseim P., Letendre M., Knoppers B.M.
Title Protecting Genetic Information: A Comparison of Normative Approaches
Reference (2004) 2:1 GenEdit, 1-8 
http://www.humgen.org/int/GE/en/2004-1.pdf

Author(s) Lacroix M, Deschênes M, Grégoire G, Kharaboyan L, Sénécal K, Avard D, Knoppers BM
Title Analyse du cadre législatif et réglementaire canadien régissant la déclaration et la gestion des renseignements de santé et des renseignements personnels de santé aux fins de contrôle et de lutte contre les maladies inectieuses
Reference Analyse du cadre législatif et réglementaire canadien régissant la déclaration et la gestion des renseignements de santé et des renseignements personnels de santé aux fins de contrôle et de lutte contre les maladies inectieuses (Santé Canada: 2004)

Author(s) Lemmens T., Joly Y., Knoppers B.M.
Title Genetics and Life Insurance : A Comparative Analysis
Reference (2004) 2:2 GenEdit, 1-15
http://www.humgen.org/int/GE/en/2004-2.pdf

Author(s) Lemmens T., Joly Y., Knoppers B.M.
Title Génétique et assurance vie : analyse comparative
Reference (2004) 2:2 GenEdit, 1-13
http://www.humgen.org/int/GE/fr/2004-2.pdf

Author(s) Lévesque E, Knoppers BM, Avard D
Title La génétique et le cadre juridique applicable au secteur de la santé: examens génétiques, recherche en génétique et soins innovateurs
Reference (2004) 64 Revue du Barreau, 57
http://www.barreau.qc.ca/fr/publications/revue/2004/no1/pdf/57.pdf

Author(s) Saginur M, Kharaboyan L, Knoppers BM
Title Umbilical Cord Blood Stem Cells: Issues with Private and Public Banks
Reference (2004) 12 Health Law J, 17

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2003

Author(s) Avard D, Kharaboyan L, Knoppers BM, Letendre M, Sallée C
Title The international law and policy framework governing human genetic information and the protection of privacy and human rights: issues identification report
Reference The international law and policy framework governing human genetic information and the protection of privacy and human rights: issues identification report (Canadian Ministry of Justice, 2003)

Author(s) Cardinal G, Knoppers BM
Title Lorsqu'en recherche génétique, financement privé ne rime plus avec santé
Reference Lorsqu'en recherche génétique, financement privé ne rime plus avec santé (Paris: Éditions Dalloz, 2003)

Author(s) Deschênes M, Cardinal G, Knoppers BM
Title Énoncé de principes sur la consuite éthique de la recherche en génétique humaine concernant des populations
Reference (2003) 30 (Supplément) Recherche en Santé, 1

Author(s) Godard B, Joly Y, Pratte A, Avard A, Boucratie N, Knoppers BM
Title Genetic information and privacy in the workplace
Reference Genetic information and privacy in the workplace (Ottawa: Human Resources Development Canada, 2003)

Author(s) Joly Y, Knoppers BM, Godard B
Title Genetic information and life insurance: a 'real' risk?
Reference (2003) 11:8 European Journal of Human Genetics, 561

Author(s) Knoppers B.M. (editor)
Title Populations and Genetics: Legal and Socio-Ethical Perspectives
Reference

Author(s) Knoppers BM, Avard D
Title Informed consent
Reference  in Encyclopedia of the Human Genome, MacMillan Reference Ltd, Nature Publishing Group, London, 2003, p. 469-472.
http://www.ehgonline.net

Author(s) Knoppers BM, Fecteau C
Title Human genomic databases: a global public good?
Reference (2003) 10 European Journal of Health Law, 27

Author(s) Knoppers BM, Scriver CR
Title Genomics, health and society: Emerging issues for public policy
Reference Genomics, health and society: Emerging issues for public policy (Gouvernement du Canada, 2003)

Author(s) Letendre M, Sallée C, Fecteau C, Kharaboyan L, Régnier M, Avard D, Knoppers BM
Title Genetic Privacy: A Comparative Approach
Reference Genetic Privacy: A Comparative Approach (Ottawa: Canadian Ministry of Justice, 2003)

Author(s) Régnier M, Knoppers BM
Title Spare Embryos and Stem Cell Research: Consent Issues
Reference (2003) 11:3 Health Law Review, 3

Author(s) Sheremeta L, Knoppers B.M.
Title Beyond the Rhetoric: Population Genetics and Benefit-Sharing
Reference (2003) 11 Health Law J, 89

Author(s) Wertz D.C., Régnier M., Knoppers B.M.
Title Stem cells in a pluralistic society: consequences of proposed legislation
Reference (2003) 1:1 GenEdit, 1-3 
http://www.humgen.org/int/GE/en/2003-1.pdf

Author(s) Wertz D.C., Régnier M.-H., Knoppers B.M.
Title La recherche sur les cellules souches dans une société pluraliste : Les conséquences du projet de loi canadien
Reference (2003) 1:1 GenEdit, 1-4 
http://www.humgen.org/int/GE/fr/2003-1.pdf

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2002

Author(s) Avard D, Kharaboyan L, Knoppers BM
Title Using 'spots' in research: moving beyond screening and treatment
Reference in Newborn Screening and Genetic Testing Symposium, Proceeding. Phoenix: Association of Public Health Laboratories, 2002, pp.319-321

Author(s) Avard DM, Knoppers BM
Title Ethical dimensions of genetics in paediatric neurology: a look into the future
Reference (2002) 9:1 Seminars Pediatric Neurology, 53

Author(s) Caufield T.A., Knoppers B.M.,Gold E.R., Sheremeta L.E., Bridge P.J.
Title Genetic Technologies, Health Care Policy and the Patent Bargain
Reference (2002) 63:1 Clinical Genetics, 15

Author(s) Howlett M, Avard D, Knoppers BM
Title Physicians and genetic malpractice
Reference (2002) 21:4 Medicine and Law Journal, 661

Author(s) Knoppers BM
Title Genetic information and the family: are we our brother's keeper?
Reference (2002) 20:2 Trends Biotechnol , 85

Author(s) Knoppers BM
Title Genetics and common law
Reference Genetics and common law (The Hague: Kluwer Law International, 2002)

Author(s) Knoppers BM
Title DNA banking: a retrospective-prospective
Reference DNA banking: a retrospective-prospective (Malden: Blackwell Publishers, 2002)

Author(s) Knoppers BM
Title Genetic information: use and abuse
Reference Genetic information: use and abuse (Chichester: John Wiley & Sons Ltd., 2002)

Author(s) Knoppers BM, Avard D, Cardinal G, Glass KC
Title Science and society: children and incompetent adults in genetic research: consent and safeguards
Reference (2002) 3:3 Nat Rev Genet, 221
http://www.nature.com/nrg/journal/v3/n3/pdf/nrg750.pdf

Author(s) Knoppers BM, Cardinal G
Title Genetics and the law
Reference Genetics and the law (Markham: Butterworths, 2002)

Author(s) Knoppers, B.M., Avard, D., Cardinal, G., Cranley Glass, K.
Title Children and Incompetent Adults in Genetic Research: Consent and Safeguards
Reference (2002) 3 Nature Reviews 221

Author(s) Régnier M, Knoppers BM
Title International initiatives
Reference (2002) 11:1 Health Law Review, 67

Author(s) Wertz DC, Knoppers BM
Title Serious genetic disorders: can or should they be defined?
Reference (2002) 108:1 Am J Med Genet, 29

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2001

Author(s) Avard D, Knoppers BM
Title Genetic screening and children: policy issues for the new millenium.
Reference (2001) 2 Canadian Journal of Policy Research, 46

Author(s) Avard D, Knoppers BM
Title Using the database HUMGEN to discover policies in human genetics, a decade of ELSI research
Reference (2001) 29:2 The Journal of Law, Medicine and Ethics, 43

Author(s) Deschênes M., Cardinal G., Knoppers B.M., Glass KC
Title Human Genetic Research, DNA Banking and Consent: A Question of 'Form'?
Reference (2001) 59:4 Clinical Genetics, 221

Author(s) Knoppers BM
Title Cancer genetics: a model for multifactorial conditions?
Reference (2001) 20:2 Med Law, 177

Author(s) Knoppers BM
Title Duty to recontact: a legal harbinger?
Reference (2001) 103:4 Am J Med Genet, 277
http://www3.interscience.wiley.com/cgi-bin/fulltext/85511108/PDFSTART

Author(s) Knoppers BM
Title Ethical aspects of genome research and banking
Reference in Rehm HJ, Reed G, Puhler P and Stadler P, Genomics and Bioinformatics, Vol. 5b, Series: Biotechnology, 2nd Edition, Wiley -VCH Publishers, NJ, 2001, pp. 418-429.

Author(s) Knoppers BM
Title The human genome: individual property or common heritage?
Reference The human genome: individual property or common heritage? (Germany: Council of Europe, 2001)

Author(s) Knoppers BM
Title Of populations, genetics and banks
Reference (2001) January/February Genetics Law Monitor, 3

Author(s) Xing Y, Williams C, Campbell RK, Cook S, Knoppers M, Addona T, Altarocca V, Moyle WR
Title Threading of a glycosylated protein loop through a protein hole: implications for combination of human chorionic gonadotropin subunits
Reference (2001) 10:2 Protein Sci, 226

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2000

Author(s) Avard D, Knoppers BM
Title Genetics and society project
Reference (2000) 3:3 Community Genet, 102

Author(s) Knoppers BM
Title Human rights and genomics
Reference in Bhatia GS, O'Neil JS, Gall GL and Bendin PD (eds.), Human Rights Challenges for the New Millenium., and genomics,The University of Alberta Press, Edmonton, 2000, pp.259-265.

Author(s) Knoppers BM
Title Population genetics and benefit sharing
Reference (2000) 3:4 Community Genet, 212

Author(s) Knoppers BM
Title From medical ethics to 'genethics'
Reference (2000) 356:Suppl 1 The Lancet, s38

Author(s) Knoppers BM, Avard AP
Title L'immunité légale de la femme enceinte et l'affaire Dobson
Reference (2000) 45:1 McGill Law J, 315

Author(s) Knoppers BM, Laberge C
Title Éthique et génome : défi 2000, l'etre humain n'est-il qu'une autre sorte d'espece?
Reference (2000) 16:1 Médecine/sciences, 64

Author(s) Knoppers BM, Laberge CM
Title Ethical guideposts for allelic variation databases
Reference (2000) 15:1 Hum Mutat, 30

Author(s) Knoppers BM, Sprumont D
Title Human subjects research, ethics, international codes and genetics
Reference Human subjects research, ethics, international codes and genetics (New York: John Wiley & Sons, 2000)

Author(s) von Tigerstrom B, Deschênes M, Knoppers BM, Caulfield TA
Title Legal regulation of cancer surveillance: Canadian and international perspectives
Reference (2000) 8 Health Law J, 1

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1999

Author(s) Knoppers B.M.
Title Biotechnology and public policy
Reference (2000) 45:2 McGill Law J, 559

Author(s) Knoppers BM
Title The ethical and legal implications of pharmacogenomics
Reference The ethical and legal implications of pharmacogenomics (London: U.K.Office of Health Economics, 1999)

Author(s) Knoppers BM
Title Biotechnology: sovereignty and sharing
Reference Biotechnology: sovereignty and sharing (New York: Plenum Publishing Corporation, 1999)

Author(s) Knoppers BM
Title Cloning: an international comparative overview in cloning human beings
Reference Cloning: an international comparative overview in cloning human beings (Rockville, Maryland: National Bioethics Advisory Commission, 1999)

Author(s) Knoppers BM
Title Status, sale and patenting of human genetic material: an international survey
Reference (1999) 22:1 Nat Genet , 23
http://www.nature.com/ng/journal/v22/n1/pdf/ng0599_23.pdf

Author(s) Knoppers BM
Title Génome Humain: Le Patrimoine Commun de L'Humanité
Reference Génome Humain: Le Patrimoine Commun de L'Humanité (Montreal: Éditions Fides, 1999)

Author(s) Knoppers BM
Title Who should have access to genetic information
Reference in Burley J (ed.), The Genetic Revolution in Human Rights, The Oxford Amnesty Lectures 1998 New York, Oxford University Press, New York, 1999, pp.39-53.  

Author(s) Knoppers BM, Hirtle M, Glass KC
Title Policy forum: genetic technologies. Commercialization of genetic research and public policy
Reference (1999) 286:5448 Science, 2277
http://www.sciencemag.org/cgi/content/full/286/5448/2277

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1998

Author(s) Burgess MM, Laberge CM, Knoppers BM
Title Bioethics for clinicians: 14 ethics and genetics in medicine
Reference (1998) 19;158:10 CMAJ, 1309

Author(s) Burgess MM, Laberge CM, Knoppers BM
Title Ethics and genetics in medicine: 14 bioethics for clinicians
Reference (1998) 158:10 CMAJ, 1309

Author(s) Grimaud MA, Knoppers BM
Title La confidentialité des données génétiques en droit comparé
Reference La confidentialité des données génétiques en droit comparé (Sherbrooke: Revue de Droit de Sherbrooke, 1998)

Author(s) Knoppers BM
Title Towards a reconstruction of the 'genetic family': new principles?
Reference (1998) 49:1 Int Dig Health Legis, 241

Author(s) Knoppers BM
Title Biotechnology and the Consumer
Reference Biotechnology and the Consumer (Dordrecht: Kluwer International, 1998)

Author(s) Knoppers BM
Title Socio-Ethical Issues in Human Genetics
Reference Socio-Ethical Issues in Human Genetics (Cowansville: Les Éditions Yvon Blais Inc., 1998)

Author(s) Knoppers BM
Title Vers une reconstruction de la 'famille génétique': de nouveaux principes en vue?
Reference (1998) 49:1 Rec Int Leg Sanit , 235

Author(s) Knoppers BM
Title Geneticism and germ line: between courage and caution
Reference (1998) 17:1 March Politics Life Sciences, 22 

Author(s) Knoppers BM
Title 'Well-bear and well-rear' in China
Reference (1998) 63:3 Am J Hum Genet, 686

Author(s) Knoppers BM, Godard B
Title Ethical and legal aspects of inherited cancer susceptibility
Reference Ethical and legal aspects of inherited cancer susceptibility (Cambridge: Cambridge University Press, 1998)

Author(s) Knoppers BM, Godard B
Title Ethical and legal perspectives on inherited cancer susceptibility
Reference Ethical and legal perspectives on inherited cancer susceptibility (Cambridge: Cambridge University Press, 1998)

Author(s) Knoppers BM, Hirtle M, Lormeau S, Laberge CM, Laflamme M
Title Control of DNA samples and information
Reference (1998) 50:3 Genomics, 385

Author(s) Leroux T, Le Bris S, Knoppers BM
Title Éléments de réflexion sur l'opportunité d'un comité consultatif national d'éthique canadien
Reference Éléments de réflexion sur l'opportunité d'un comité consultatif national d'éthique canadien (Sainte-Foy: Éditions MultiMondes, 1998)

Author(s) van Ommen G, Knoppers BM, Cotton R, Strauss J, Povey S, Doggett N, Cavalli-Sforza L
Title HUGO's midlife crisis: life begins at 40
Reference (1998) 19:2 Nat Genet, 113

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1997

Author(s) Knoppers B.M., Grimaud M.-A., Busque L., Desmarais D.
Title L'apport des technologies de l'ADN en droit familial
Reference (1997) Congrès annuel du Barreau du Québec, 329

Author(s) Knoppers BM
Title L'Analyse Génétique a des Fins de Preuve et les Droits de la Personne (Aspects Médicaux, Scientifiques, Éthiques et Juridiques)
Reference L'Analyse Génétique a des Fins de Preuve et les Droits de la Personne (Aspects Médicaux, Scientifiques, Éthiques et Juridiques) (Bruxelles: Bruylant, 1997)

Author(s) Knoppers BM
Title Human DNA: Law and Policy-International Comparative Perspectives
Reference Human DNA: Law and Policy-International Comparative Perspectives (Den Haag: Kluwer Law International, 1997)

Author(s) Knoppers BM
Title Privacy, confidentiality and genetic information: a comparative analysis
Reference (1997) 2:1 Microbial and Comparative Genomics, 37

Author(s) Knoppers BM, Hirtle M
Title Banking of human materials, intellectual property rights and ownership issues: emerging trends in the literature and international policy positions (Part II)
Reference (1997) 6 Law and Human Genome Review, 63

Author(s) Knoppers BM, Laberge C
Title Réflexions éthiques: pour une éthique renouvelée de la prédiction génétique
Reference (1997) 10 Les Cahiers du C C N E , 25

Author(s) Knoppers BM, Luther L
Title The Human Genome Organization (HUGO)
Reference (1997) 21:1 Politics and the Life Sciences, 127

Author(s) Le Bris S, Knoppers BM
Title International and comparitive concepts of privacy
Reference in Rothstein M (ed.), Genetic Secrets, Yale University Press, New Haven, 1997, pp.418-448.

Author(s) Le Bris S, Knoppers BM, Luther L
Title International bioethics, human genetics, and normativity
Reference (1997) 33:5 Houst Law Rev, 1363

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1996

Author(s) Knoppers BM
Title Ethical, social and legal apects of genetic technology in medicine
Reference Ethical, social and legal apects of genetic technology in medicine (Geneva: World Health Organization (WHO), 1996)

Author(s) Knoppers BM
Title Les tests génétiques et le système de santé aspects éthiques, légaux et sociaux pour le praticien
Reference (1996) 31:7 Le Médecin du Québec, 75

Author(s) Knoppers BM
Title Patenting human life: a misdirected concern?
Reference (1996) 17:4 Policy Options, 3

Author(s) Knoppers BM
Title Legal rights and human genetic material
Reference Legal rights and human genetic material (Toronto: Edmond Montgomery Publications Limited, 1996)

Author(s) Knoppers BM
Title Human genetic material-commodity or gift?
Reference Human genetic material-commodity or gift? (Toronto: Edmond Montgomery Publications Limited, 1996)

Author(s) Knoppers BM, Hirtle M, Lormeau S
Title Ethical issues in international collaborative research on the human genome: the HGP and the HGDP
Reference (1996) 34:2 Genomics, 272

Author(s) Knoppers BM, Laberge C
Title DNA banking/collecting: a Canadian 'sample' of consent forms
Reference DNA banking/collecting: a Canadian 'sample' of consent forms (Toronto: Edmond Montgomery Publications Limited, 1996)

Author(s) Knoppers BM, Laberge C
Title La connaissance génétique et ses conséquences sociales
Reference La connaissance génétique et ses conséquences sociales (Ste-Foy: Presses de L'Université Laval, 1996)

Author(s) Knoppers BM, Laberge C, Glass K, Godard B
Title Proposal model consent form for DNA sampling and storage for medical research
Reference Proposal model consent form for DNA sampling and storage for medical research (Toronto: Emond Montgomery Publications Limited, 1996)

Author(s) Macer D, Fleming J, Keyeux G, Knoppers BM
Title Unesco and population genetics
Reference (1996) 379:6560 Nature, 11

Author(s) Malkin D, Knoppers BM
Title Genetic predisposition to cancer--issues to consider
Reference (1996) 7:1 Semin Cancer Biol , 49

Author(s) Rothstein MA, Knoppers BM
Title Legal aspects of genetics, work and insurance in North America and Europe
Reference (1996) 3:2 Eur J Health Law, 143

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1995

Author(s) Knoppers BM
Title Towards an ethic of 'complexity' for 'common' diseases?
Reference Towards an ethic of 'complexity' for 'common' diseases? (Berlin: Springer Verlag, 1995)

Author(s) Knoppers BM
Title Professional norms: towards a Canadian consensus?
Reference (1995) 3 Health Law J, 1

Author(s) Knoppers BM, Laberge CM
Title Research and stored tissues. Persons as sources, samples as persons?
Reference (1995) 274:22 JAMA, 1806

Author(s) Laberge C, Knoppers BM, Panisset I
Title Multidisciplinary perceptions of human genetics in Canada: 'Delphi' results with regards to the practice of medical genetics
Reference (1995) 3 Health Law J, 19

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1994

Author(s) Godard B, Knoppers BM, Glass K, Grenon M, Bouchard R, Bouvier M, Goulet J, Gauvreau D
Title Ethical issues involved in establishing a registry for familial Alzheimer's disease
Reference (1994) 8:2 Alzheimer Dis Assoc Disord , 79

Author(s) Knoppers BM
Title Newborn screening and informed consent
Reference Newborn screening and informed consent (Amsterdam: Elsevier Science Publishers, 1994)

Author(s) Knoppers BM
Title Anomalies génétiques: handicap et discrimination
Reference in Élargir les Horizons, Perspectives scientifiques sur l'intégration sociale, Office des personnes handicapées du Québec, Éditions MultiMondes, Ste-Foy, 1994, pp.91-96

Author(s) Knoppers BM
Title Issues in genetic research
Reference (1994) 5:1 Communiqué, 1

Author(s) Knoppers BM, Chadwick R
Title The Human Genome Project: under an international ethical microscope
Reference (1994) 265:5181 Science, 2035

Author(s) Knoppers BM, Grimaud MA, Choquette C, Le Bris S
Title Les tests génétiques à des fins d'identifications
Reference Les tests génétiques à des fins d'identifications (Lausanne: Publications of the Swiss Institute of Comparative Law, 1994)

Author(s) Knoppers BM, Le Bris S
Title Inviolabilité de la personne et responsabilité hospitalière à la lumiere du nouveau code civil- quand le prisme juridique sclérose la pratique médicale
Reference Inviolabilité de la personne et responsabilité hospitalière à la lumiere du nouveau code civil- quand le prisme juridique sclérose la pratique médicale (Toronto: Institut Canadien, 1994)

Author(s) Knoppers BM, Le Bris S
Title Genetic choices: a paradigm for prospective international ethics?
Reference (1994) 13:2 Politics Life Sciences, 228

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1993

Author(s) Gelinas L, Knoppers BM
Title Le role des experts en droit québécois en matière de garde, d'accès et de protection
Reference (1993) 53 Revue du Barreau, 3

Author(s) Knoppers BM
Title Justice, contrat social et génétique: un modele québécois?
Reference in Transactions of the Royal Society of Canada, Sixth Series, Vol. IV, 1993 , pp.35-53.

Author(s) Knoppers BM
Title Picard lecture in health law--1992. Human genetics: parental, professional and political responsibility
Reference (1993) 1 Health Law J, 13

Author(s) Knoppers BM
Title Donor insemination: children as in concreto or in abstracto subjects of rights?
Reference (1993) 12:2 Politics Life Sciences, 182

Author(s) Knoppers BM
Title Genetic testing: a comparative view
Reference (1993) 8:3 Forum Appl Res Public Policy, 26

Author(s) Knoppers BM
Title Confidentiality in genetic testing: legal and ethical issues in an international context
Reference (1993) 12:6-8 Med Law, 573

Author(s) Knoppers BM, Bernard C, Shelton D
Title Le Droit des Personnes et de la Famille
Reference Le Droit des Personnes et de la Famille (Montreal: Adage, 1993)

Author(s) Knoppers BM, Bernardi MJ
Title Les droits de l'enfant
Reference Les droits de l'enfant (Bruxelles: De Boeck Université, 1993)

Author(s) Knoppers BM, Le Bris S
Title La maternité de substitution
Reference La maternité de substitution (Bruxelles: De Boeck Université, 1993)

Author(s) Knoppers BM, Le Bris S
Title Ethical and legal concerns: reproductive technologies 1990-1993
Reference (1993) 5:5 Current Opinion in Obstetrics and Gynecology, 630

Author(s) Knoppers BM, Le Bris S
Title Reproductive genetics: Canadian and European perspectives
Reference (1993) 8:Suppl. 1 Fetal Diagn Ther , 189

Author(s) Knoppers BM, Rothstein MA
Title Panel on legal issues in genetic testing
Reference (1993) Suppl B:263-78. J Insur Med, 263

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1992

Author(s) Guay H, Knoppers BM, Panisset I
Title La génétique dans les domaines de l'assurance et de l'emploi
Reference (1992) 52 Revue du Barreau, 185

Author(s) Knoppers BM
Title Medically assisted procreation: legal analysis and precepts
Reference (1992) 21:3 J Gynecol Obstet Biol Reprod (Paris), 331

Author(s) Knoppers BM
Title Génétique Humaine: de L'Information a L'Informatisation (Droit Civil francais et québécois)
Reference Génétique Humaine: de L'Information a L'Informatisation (Droit Civil francais et québécois) (Paris: Litec, 1992)

Author(s) Knoppers BM
Title Coopération internationale dans la compilation des données génétiques
Reference Coopération internationale dans la compilation des données génétiques (Paris: Litec, 1992)

Author(s) Knoppers BM
Title La génétique humaine: patrimoine et protection
Reference La génétique humaine: patrimoine et protection (Paris: Éditions Jacob, 1992)

Author(s) Knoppers BM
Title La problematique normative des registres et fichiers génétiques
Reference La problematique normative des registres et fichiers génétiques (Montreal: Cahiers Scientifiques de L'ACFAS, 1992)

Author(s) Laberge CM, Knoppers BM
Title Réflexion sur les enjeux scientifiques et normatifs des registres/fichiers comme instrument d'épidémiologie génétique
Reference Réflexion sure les enjeux scientifiques et normatifs des registres/fichiers comme instrument d'épidémiologie génétique (Montreal: Cahiers Scientifiques de L'ACFAS, 1992)

Author(s) Laberge CM, Knoppers BM
Title Rationale for an integrated approach to genetic epidemiology
Reference (1992) 6:4 Bioethics, 317

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1991

Author(s) Bernard C, Knoppers BM
Title Legal aspects of research involving children in Canada
Reference Legal aspects of research involving children in Canada (Toronto: Thompson Educ. Pub., 1991)

Author(s) Knoppers BM
Title Canadian Child Health Law
Reference Canadian Child Health Law (Toronto: Thompson Education Publisher Inc., 1991)

Author(s) Knoppers BM
Title Le génome humain: patrimoine universel, personel et familial
Reference in Melançon M. and Lambert R., Le génome humain: une responsabilité scientifique et sociale, Presses Univ. Laval, Ste-Foy, 1992, pp.101-109.

Author(s) Knoppers BM
Title Infertility: a matter of perception?
Reference Infertility: a matter of perception? (Annals of the Canadian Society of Obstetricians and Gynecologists, 1991)

Author(s) Knoppers BM
Title Human dignity and genetic heritage
Reference Human dignity and genetic heritage (Ottawa: Law Reform Commission of Canada, 1991)

Author(s) Knoppers BM
Title Les innovations technologiques et la responsabilité: la génétique humaine
Reference Les innovations technologiques et la responsabilité: la génétique humaine (Soc. de Médecin et de Droit du Québec, 1991)

Author(s) Knoppers BM
Title International survey of laws on assisted procreation
Reference (1991) 42:1 International Digest of Health Legislation, 207

Author(s) Knoppers BM, Laberge C
Title DNA sampling and informed consent (revisited)
Reference (1991) 144:2 CMAJ , 128
http://www.pubmedcentral.nih.gov/picrender.fcgi?artid=1268974&blobtype=pdf

Author(s) Knoppers BM, Laberge CM
Title The social geography of human genome mapping
Reference The social geography of human genome mapping (Geneva: CIOMS, 1991)

Author(s) Knoppers BM, Le Bris S
Title Medically assisted conception: legal, social and ethical aspects
Reference (1991) 17:4 Am J Law Med , 329

Author(s) Knoppers BM, LeBris S
Title Recent advances in medically assisted conception: legal, ethical and social issues
Reference (1991) 17:4 Am J Law Med, 329

Author(s) Knoppers BM, Leroux T, Galloux JC
Title Les enfants, les incapables et la génétique
Reference (1991) 36:2 McGill Law J, 457

Author(s) Laberge CM, Knoppers BM
Title Newborn genetic screening: ethical and social considerations for the nineties
Reference (1991) 2:1 J Int Bioethique, 5

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1990

Author(s) Knoppers BM
Title Infertility: medical and social choices
Reference (1990) 41:1 International Digest of Health Legislation, 188

Author(s) Knoppers BM
Title Genetic Screening: From Newborns to DNA Typing
Reference Genetic Screening: From Newborns to DNA Typing (Amsterdam: Elsevier Science Publishers, 1990)

Author(s) Knoppers BM
Title La personne et la génétique en droit privée québécois: un droit de maitrise?
Reference in Bouchard B and De Braekeleer (eds.), Histoire d'un génôme, P.U.Q., Quebec, 1990, pp.507-520.

Author(s) Knoppers BM
Title Genetic heritage: the international debate
Reference Genetic heritage: the international debate (Amsterdam: Elsevier, 1990)

Author(s) Knoppers BM, Brault I, Sloss E
Title Abortion law in Francophone countries
Reference (1990) 38:4 Am J Comp Law, 889

Author(s) Knoppers BM, Guay H
Title Information génétique
Reference (1990) 21:4 R G D , 545

Author(s) Knoppers BM, Guay H
Title Protection et acces à l'information génétique en droit québécois ou les difficultés de concilier confidentialité et diffusion de l'information
Reference (1990) 21:4 R G D , 545

Author(s) Knoppers BM, Laberge C
Title Le respect de la vie humaine
Reference Le respect de la vie humaine (Paris: L'Harmattan, 1990)

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1989

Author(s) Knoppers BM
Title Human genetics, predisposition and the new social contract
Reference in International Conference on Bioethics: Human genome sequencing (Ethical Issues),Brescia, Italy,1989, p.168-172

Author(s) Knoppers BM, Brault I
Title La Loi et L'Avortement dans les Pays Francophones
Reference La Loi et L'Avortement dans les Pays Francophones (Montreal: Éditions Thémis, 1989)

Author(s) Knoppers BM, Deschamps D, Glass K, Morneault B
Title Report on health care liability in Canada
Reference Report on health care liability in Canada (Montreal: Quebec Research Centre for Private and Comparative Law, 1989)

Author(s) Knoppers BM, Laberge C
Title Comparative abortion law: the living abortus
Reference Comparative abortion law: the living abortus (Edinburgh: Chapman et Hall, 1989)

Author(s) Knoppers BM, Laberge C
Title Of genetic myth and human dignity
Reference (1989) Synapse, 2

Author(s) Knoppers BM, Laberge C
Title DNA sampling and informed consent
Reference (1989) 140:9 CMAJ , 1023
http://www.pubmedcentral.nih.gov/picrender.fcgi?artid=1268974&blobtype=pdf

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1988

Author(s) Knoppers BM
Title Professional Liability in Canada
Reference Professional Liability in Canada (Cowansville: Éditions Yvon Blais, 1988)

Author(s) Knoppers BM
Title L'Adoption d'un code de conduite international en matiere de technologies de reproduction
Reference L'Adoption d'un code de conduite international en matiere de technologies de reproduction (Varsovie, Pologne: Rapport du 63e Congres de L'ILA, 1988)

Author(s) Knoppers BM
Title La vérité et information de la personne
Reference (1988) 18 R G D , 819

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1987

Author(s) Knoppers BM
Title International regulation and protection of human genetic materials
Reference (1987) 33:2 McGill Law J, 336

Author(s) Knoppers BM
Title Procréation artificielle, génétique et droit
Reference (1987) 38:3 International Digest of Health Legislation, 677

Author(s) Knoppers BM
Title Reproductive technology and international mechanisms of protection of the human person
Reference (1987) 32:2 McGill Law J, 336

Author(s) Knoppers BM, McConomy R
Title Matrimonial Property Regimes in Quebec
Reference Matrimonial Property Regimes in Quebec (Toronto: Carswell, 1987)

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1986

Author(s) Knoppers BM
Title La conception artificielle et la responsabilité du médecin
Reference (1986) 21:6 Le Médecin du Québec, 101

Author(s) Knoppers BM
Title Reproductive technology and the law in Canada
Reference (1986) 1:4 Human Reproduction, 259

Author(s) Knoppers BM
Title Genetic information and the law: constraints, liability and rights
Reference (1986) 135:11 CMAJ , 1257
http://www.pubmedcentral.nih.gov/picrender.fcgi?artid=1491380&blobtype=pdf

Author(s) Knoppers BM
Title Conception Artificielle et la Responsabilité Médicale: Une Étude de Droit Comparé
Reference Conception Artificielle et la Responsabilité Médicale: Une Étude de Droit Comparé (Cowansville: Éditions Yvon Blais, 1986)

Author(s) Knoppers BM, Sloss E
Title Legislative reforms in reproductive technology
Reference (1986) 18 Ottawa Law Review, 663

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1985

Author(s) de Watcher MA, Knoppers BM, Le Gris-Monti C
Title Les comités d'hopitaux et la prise de décisions éthiques en médecine
Reference (1985) 19:9 Le Médecin du Québec, 47

Author(s) Knoppers BM
Title La responsabilité civile du médecin et la conception artificielle
Reference La responsabilité civile du médecin et la conception artificielle (Sorbonne: Université de Paris I (Panthéon-Sorbonne), 1985)

Author(s) Knoppers BM
Title Les femmes et les technologies de la reproduction
Reference in Sloss E. (ed.), Family Law in Canada: New Directions, Conseil consultatif de la situation des femmes, Ottawa, 1985, pp.211-232.    

Author(s) Knoppers BM
Title Foreign alternatives to medical malpractice liability
Reference Foreign alternatives to medical malpractice liability (Chicago: American Bar Foundation, 1985)

Author(s) Knoppers BM
Title La génétique, le droit et l'état
Reference (1985) 20:3 Le Médecin du Québec, 77

Author(s) Knoppers BM
Title Modern birth technology and human rights
Reference (1985) 33 American J Comparative law, 1

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1984

Author(s) de Watcher MA, Knoppers BM, LeGris MC
Title Ethical decision-making by hospital committees
Reference (1984) 131:7 Can Med Assoc J, 713
http://www.pubmedcentral.nih.gov/picrender.fcgi?artid=1483584&blobtype=pdf

Author(s) Knoppers BM
Title Contemporary Trends in Family Law: A National Perspective
Reference Contemporary Trends in Family Law: A National Perspective (Toronto: Carswell, 1984)

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1982

Author(s) Knoppers BM
Title Confidentiality and accessibility of medical information: a comparative analysis
Reference (1982) 12 R D U S , 395

Author(s) Knoppers BM
Title Physician liability and prenatal diagnosis
Reference (1982) 18 C C L T , 169

Author(s) Knoppers BM
Title Réflexions juridiques sur les nouvelles technologies de la reproduction
Reference (1982) Le Médecin du Québec, 43

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1981

Author(s) Knoppers BM
Title Physician liability and prenatal diagnosis
Reference Physician liability and prenatal diagnosis (Cambridge: Board of Graduate Studies, Cambridge University, England, 1981)

Author(s) Knoppers BM
Title Aspects juridiques de l'acces du patient à l'information médicale
Reference (1981) Le Médecin du Québec, 125

Author(s) Knoppers BM
Title Le statut juridique du foetus: du droit comparé au droit en devenir
Reference (1981) 2 Cahiers de Bioéthique, 205

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1978

Author(s) Knoppers BM
Title The 'legitimization' of artificial insemination: promise or problem?
Reference (1978) 1:2 Fam Law Rev, 108

Author(s) Knoppers BM
Title Les notions d'autorisation et de consentement dans le contrat médical
Reference (1978) 19 Cahiers de Droit, 893

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