. CGP Centre of Genomics and Policy CGP Centre of Genomics and Policy

CPG Centre of Genomics and policy

Publications

Yann Joly

2017

Author(s) So, D., Kleiderman, E., Touré, S.B. and Joly, Y.
Title Disease Resistance and the Definition of Genetic Enhancement
Reference

 (2017) doi: 10.3389/fgene.2017.00040

http://journal.frontiersin.org/article/10.3389/fgene.2017.00040/full

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2016

Author(s) Bertier G., Carrot-Zhang J., Ragoussis V., Joly Y.
Title Integrating precision cancer medicine into healthcare - policy, practice, and research challenges
Reference

(2016) 8:108 Genome Medicine doi 10.1186/s13073-016-0362-4, 1


Author(s) Bertier G., Hétu M., Joly Y.
Title Unsolved challenges of clinical whole-exome sequening: a systematic literature review of end-users' views
Reference

(2016) 9:52 BMC Medical Geno ics, doi.10.1186/s12920-016-0213-6, 1


Author(s) Dalpé G, Kirby E, Ngueng Feze I, Tassé A-M, Knoppers BM, Hamet P, Tremblay J, Phillips MS, Joly Y
Title The Gatekeeping Function in Personalized Medicine Initiatives
Reference

 (2016) 14:1 Curr Pharmacogenomics Person Med, 36


Author(s) Dyke S.O.M., Saulnier K.M., Pastinen T., Bourque G., Joly Y.
Title Evolving data access policy: The Canadian context
Reference

(2016) 1 FACETS, doi: 10.1139/facets-2016-0002, 138


Author(s) Joly Y, Dyke SOM, Knoppers BM, Pastinen T
Title Are Data Sharing and Privacy Protection Mutually Exclusive?
Reference

 (2016) 167:5 Cell, 1150


Author(s) Joly Y., de Vries-Seguin E., Chalmers D., Ouellette B.F.F., Yamada J., Bobrow M., Knoppers B.M.
Title Analysis of five years of controlled access and data sharing compliance at the International Cancer Genome Consortium
Reference

(2016) 48:3 Nature Genetics, 224


Author(s) Joly Y., Salman S., Ngueng Feze I., Granados Moreno P., Stanton-Jean M., Lacey J., Labelle M., Dench J., Dove E.S., Atak I., Bellefleur C., Heinemann T., Langlais H., Love R.
Title DNA testing for family reunification in Canada: points to consider
Reference

 (2016) doi: 10.1007/s12134-016-0496-7 Journal of International Migration and Integration, 1


Author(s) Joly Y., So D., Osien G., Crimi L., Bobrow M., Chalmers D., Wallace S., Zeps N., Knoppers B.M.
Title A Decision Tool to Guide the Ethics Review of a Challenging Breed of Emerging Genomics Projects
Reference

(2016) 24:8 European Journal of Human Genetics, 1099


Author(s) Joly Y., So D., Saulnier K., Dyke S.O.
Title Epigenetics ELSI: Darker Than You Think?
Reference

(2016) 32:10 Trends in Genetics, 591


Author(s) Murdoch B, Ravitsky V, Ogbogu U, Ali-Khan S, Bertier G, Birko S, Bubela T, De Beer J, Dupras C, Ellis M, Granados Moreno P, Joly Y, Kamenova K, Master Z, Marcon A, Paulden M, Rousseau F, Caulfield T
Title Non-Invasive Prenatal Testing and the Unveiling of an Impaired Translation Process
Reference

 (2016) J Obstet Gynaecol Can, DOI: http://dx.doi.org/10.1016/j.jogc.2016.09.004


Author(s) Salman S., Ngueng Feze I., Joly Y.
Title Disclosure of insurability risks in research and clinical consent forms
Reference

(2016) Global Bioethics, DOI:10.1080#11287462.2016.1183442, 1


Author(s) Saulnier K., Joly Y.
Title Locating biobanks in the Canadian Privacy Maze
Reference

 (2016) 44:1 Journal of Law Medicine and Ethics, 7


Author(s) Saulnier K.M., So D., Joly Y.
Title Teaching to the test
Reference

(2016) 3:2 Journal of Law and the Biosciences, 373


Author(s) Sénécal K., Thorogood A., Parry D., Joly Y., Knoppers B.M.
Title Énoncé de principes consolidé du Réseau de Médecine génétique appliquée (RMGA) du Québec
Reference

(Montréal, RMGA, 2016)


Author(s) Sénécal K., Thorogood A., Parry D., Joly, Y., Knoppers B.M.
Title The Quebec Network of Applied Genetic Medicine (RMGA). Consolidated Statement of Principles
Reference

(Montreal, RMGA, 2016)


Author(s) Stoddart J., Chan B., Joly Y.
Title The European Union's adequacy approach to privacy and international data sharing in health research
Reference

 (2016) 44:1 Journal of Law Medicine and Ethics, 143


Author(s) Stunnenberg H, The International Human Epigenome Consortium (including Joly Y), Hirst M
Title The International Human Epigenome Consortium: A Blueprint for Scientific Collaboration and Discovery
Reference

 (2016) 167:5 Cell, 1145


Author(s) Thorogood A., Simkevitz H., Phillips M., Dove E.S., Joly Y.
Title Protecting the Privacy of Canadians' Health Information in the Cloud
Reference

(2016) 14 Canadian Journal of Law and Technology, 173


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2015

Author(s) Bertier G., Zawati M.H., Joly Y.
Title The Role of Whole Genome and Whole Exome Sequencing in Preventive Genomic Sequencing Programs
Reference

 (2015) 15:7 Am. J. Bioethics, 22

http://www.tandfonline.com/doi/pdf/10.1080/15265161.2015.1039732

Author(s) Chen H., Chan B., Joly Y.
Title Privacy and Biobanking in China: A Case of Policy in Transition
Reference

(2015) 43:4 Journal of Law, Medicine and Ethics, 726


Author(s) Dove E.S., Joly Y., Knoppers B.M.
Title International genomic cloud computing: 'mining' the terms of service
Reference

Privacy and Legal Issues in Cloud Computing (Edward Elgar Publishing Limited, 2015)


Author(s) Dove E.S., Joly Y., Tassé A.M., P3G International Steering Committee, ICGC Ethics and Policy Committee, Knoppers B.M.
Title Genomic cloud computing: legal and ethical points to consider
Reference

(2014) 23:10 European Journal of Human Genetics, 1271

http://www.nature.com/ejhg/index.html

Author(s) Dyke S.O.M., Cheung W.A., Joly Y., Ammerpohl O., Lutsik P., Rothstein M.A., Caron M., Busche S., Bourque G., Rönnblom L., Flicek P., Beck S., Hirst M., Stunnenberg H., Siebert R., Walter J., Pastinen T.
Title Epigenome data release: a participant-centered approach to privacy protection
Reference

(2015) 16:142 Genome Biology, 1


Author(s) Granados Moreno P., Joly Y.
Title Intellectual Property Rights in Translation
Reference

Principles of Translational Science in Medicine, From Bench to Bedside (Oxford: Elsevier, 2015)


Author(s) Granados Moreno P., Joly Y.
Title Informed consent in international normative texts and biobanking policies: Seeking the boundaries of broad consent
Reference

(2015) 15:4 Medical Law International, 216


Author(s) Joly Y.
Title Médecine personnalisée: quels sont les véritables enjeux éthiques?
Reference

 (2015) 2:3 Droit, Santé et Société, 35


Author(s) Joly Y., Dalpé G., So D., Birko S.
Title Fair Shares and Sharing Fairly: A Survey of Public Views on Open Science, Informed Consent and Participatory Research in Biobanking
Reference

(2015) 10:7 PLoS ONE, e)129893. doi:10.1371/journal.pone.0129893, 1


Author(s) Joly Y., Dyke S.O.M., Cheung W.A., Rothstein M.A., Pastinen T.
Title Risk of re-identification of epigenetic methylation data: a more nuanced response is needed
Reference

(2015) 7:1 Clinical Epigenetics, 1


Author(s) Lane M., Ngueng Feze I., Joly Y.
Title Genetics and Personal Insurance: the Perspectives of Canadian Cancer Genetic Counselors
Reference

(2015) 24:6 Journal of Genetic Counseling, 1022


Author(s) Ngueng Feze I., Salman S., Joly Y.
Title Implications for Health and Life Insurances and Other Legal Aspects of Genetic Testing
Reference

Movement Disorder Genetics (Switzerland: Springer International Publishing, 2015)


Author(s) Salman S., Ngueng-Feze S., Joly Y.
Title Divulgation de l’information génétique en assurances
Reference

(2015) 93:2 The Canadian Bar Review, 501


Author(s) Shabani M., Dyke S.O.M., Joly Y., Borry P.
Title Controlled access under review: improving the functioning of Data Access Committees
Reference

(2015) 13:12 e1002339. doi:10/1371/journal.pbio.1002339 PLOS Biology, 1


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2014

Author(s) Caulfield T., Burningham S., Joly Y., Master Z., Shabani M., Borry P., Becker A., Burgess M., Calder K., Critchley C., Edwards K., Fullerton S.M., Gottweis H., Hyde-Lay R., Illes J., Isasi R., Kato K., Kaye J., Knoppers B.M., Lynch J., McGuire A., Meslin E. [...] Zawati, M.H.
Title A review of the Key Issues Associated with the Commercialization of Biobanks
Reference

(2014) 1:1 Journal of Law and the Biosciences, 94


Author(s) Dalpé G., Joly Y.
Title Towards precision medicine: the legal and ethical challenges of pharmacogenomics
Reference

Routledge Handbook of Medical Law and Ethics (Oxon: Routledge, 2014)


Author(s) Dalpé G., Joly Y.
Title Opportunities and Challenges Provided by Cloud Repositories for Bioinformatics-Enabled Drug Discovery
Reference

(2014) 75:6 Drug Development Research, 393

http://onlinelibrary.wiley.com/journal/10.1002/(ISSN)1098-2299

Author(s) Dove E.S., Joly Y., Tassé A.M., P3G International Steering Committee, ICGC Ethics and Policy Committee, Knoppers B.M.
Title What Are Some of the ELSI Challenges of International Collaborations Involving Biobanks, Global Sample Collection, and Genomic Data Sharing and How Should They Be Addressed?
Reference

(2014) 12:6 Biopreservation and Biobanking, 363


Author(s) Joly Y.
Title Au gré des vents et marées, l’évolution de l’éthique de la recherche au Québec
Reference

(2014) 53 Revue générale de droit médical, 31


Author(s) Joly Y., Burton H., Knoppers B.M., Ngueng Feze I., Dent T., Pashayan N., Chowdhury S., Foulkes W., Hall A., Hamet P., Kirwan N., Macdonald A., Simard J., Van Hoyweghen V.
Title Life Insurance: Genomic Stratification and Risk Classification
Reference

(2014) 22:5 European Journal of Human Genetics, 575


Author(s) Joly Y., Kim R., Salman S., Ngueng Feze I.
Title The use of Genetic Information Outside of the Therapeutic Health Relationship: An International Perspective
Reference

Genetic Discrimination Transatlantic Perspectives on the Case for a European Level Legal Response (Oxford: Routledge, 2014)


Author(s) Joly Y., Knoppers B.M.
Title Médecine personnalisée : équité et accès
Reference

(2014) 30:2 Medecine/sciences, 27


Author(s) Joly Y., Knoppers B.M.
Title Routledge Handbook of Medical Law and Ethics
Reference

Routledge Handbook of Medical Law and Ethics (Oxon: Routledge, 2014)


Author(s) Joly Y., Saulnier K.M., Osien G., Knoppers B.M.
Title The ethical framing of personalized medicine
Reference

(2014) 14:5 Current Opinion in Allergy and Clinical Immunology, 404


Author(s) Joly Y., Tonin P.N.
Title Social, Ethical and Legal Considerations Raised by the Discovery and Patenting of the BRCA1 and BRCA2 genes
Reference

(2014) 33:2 New Genetics and Society, 167


Author(s) Lévesque M., Kim J.R., Isasi R., Knoppers B.M., Plomer A., Joly Y.
Title Stem Cell Research Funding Policies and Dynamic Innovation: A Survey of Open Access and Commercialization Requirements
Reference

(2014) 10:4 Stem Cell Reviews and Reports, 455


Author(s) Milius D., Dove E.S., Chalmers D., Dyke S.O.M., Kato K., Nicolás P., Ouellette B.F.F., Ozenberger B., Rodriguez L.L., Zeps N., Joly Y.
Title The International Cancer Genome Consortium’s Evolving Data-Protection Policies
Reference

 (2014) 32:6 Nature Biotechnology, 519

http://www.nature.com/nbt/journal/v32/n6/full/nbt.2926.html

Author(s) Ngueng Feze I., Joly Y.
Title Can't Always Get What you Want? Try an Indirect Route you Just Might Get What you Need: A Study on Access to Genetic Data by Canadian Life Insurers
Reference

(2014) 12:1 Current Pharmacogenomics and Personalized Medicine, 56


Author(s) Ngueng Feze I., Prystajecky N., Cook C., Knoppers B.M., Özdemir V., Dunn G., Isaac-Renton J., Joly Y.
Title The regulation of water quality assessment biotechnologies: Is Canada ready to surf the next wave?
Reference

(2014) 26:3 Journal of Environmental Law and Practice, 201


Author(s) Nicholls S.G., Joly Y., Moher E., Little J.
Title Genetic discrimination and insurance in Canada: Where are we now?
Reference

(2014) 30:3 On the Risk, 46


Author(s) Ogbogu U., Burningham S., Ollenberger A., Calder K., Du L., El Emam K., Hyde-Lay R., Isasi R., Joly Y., Kerr I., Malin B., McDonald M., Penney S., Piat G., Roy D.C., Sugarman J., Vercauteren S., Verhenneman G., West L., Caulfield T.
Title Policy Recommendations for Addressing Privacy Challenges Associated with Cell-Based Research and Interventions
Reference

(2014) 15:7 BMC Medical Ethics, (doi:10.1186/1472-6939-15-7), 1


Author(s) Ragoussis V., Ngueng Feze I., Joly Y.
Title Sharing Genetic Information Online: An Exploration of GINA's 2.0 Frontier
Reference

(2014) 14:11 The American Journal of Bioethics, 53

http://www.tandfonline.com/loi/uajb20#.VFEiS03D8ps

Author(s) Rahimzadeh V., Joly Y., Knoppers B.M.
Title Introduction
Reference

Routledge Handbook of Medical Law and Ethics (Oxon: Routledge, 2014)


Author(s) Thorogood A., Joly Y., Knoppers B.M., Nilsson T., Metrakos P., Lazaris A., Salman A.
Title An Implementation Framework for the Feedback of Individual Research Results and Incidental Findings in Research
Reference

(2014) 15(1):88 BMC Medical Ethics, doi:10.1186/1472-6939-15-88, 1


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2013

Author(s) Allen C., Joly Y., Granados Moreno P.
Title Data Sharing, Biobanks and Informed Consent: A Research Paradox?
Reference

(2013) 7:1 McGill Journal of Law and Health, 85


Author(s) Caulfield T., Chandrasekharan S., Joly Y., Cook-Deegan R.
Title Harm, hype and evidence: ELSI research and policy guidance
Reference (2013) 5:3 Genome Medicine, 1

Author(s) Caulfield T., Evans J., McGuire A., McCabe C., Bubela T., Cook-Deegan R., Fishman J., Hogarth S., Miller F.A., Ravitsky V., Biesecker B., Borry P., Cho M.K., Carroll J.C., Etchegary H., Joly Y., Kato K., Soo-Jin Lee S., Rothenberg K., Sankar P., et al
Title Reflections on the Cost of "Low-Cost" Whole Genome Sequencing: Framing the Health Policy Debate
Reference (2013) 11:11 PLOS Biology, 1

Author(s) Cook C., Prystajecky N., Ngueng Feze I., Joly Y., Dunn G., Kirby E., Ozdemir V., Isaac-Renton J.
Title A comparison of the regulatory frameworks governing microbial testing of drinking water in three Canadian provinces
Reference (2013) 38:3 Canadian Water Resources Journal, 185

Author(s) Joly Y., Avard D.
Title Pharmacogenomics: Ethical, Legal and Social Issues
Reference

Handbook of Personalized Medicine: Advances in Nanotechnology, Drug Delivery and Therapy (Singapore: Pan Stanford Publishing, 2013)


Author(s) Joly Y., Knoppers B.M.
Title Ethics and Genetics
Reference Brenner's Encyclopedia of Genetics (Oxford: Elsevier, 2013)

Author(s) Joly Y., Ngueng Feze I., Simard J.
Title Genetic Discrmination and Life Insurance: A Systematic Review of the Evidence
Reference

(2013) 11:25 BMC Medicine, 1


Author(s) Ozdemir V., Joly Y., Kirby E., Avard D., Knoppers B.M.
Title Beyond ELSIs - Where to From Here? From 'Regulating' to Anticipating and Shaping the Innovation Trajectory in Personalized Medicine
Reference

Pharmacogenomics: Challenges and Opportunities in Therapeutic Implementation (Amsterdam: Elsevier, 2013)

http://www.sciencedirect.com/science/book/9780123919182

Author(s) So D., Joly Y.
Title Commercial Opportunities and Ethical Pitfalls in Personalized Medicine: A Myriad of Reasons to Revisit the Myriad Genetics Saga
Reference

(2013) 11:2 Current Pharmacogenomics and Personalized Medicine, 98

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3715893/

Author(s) So D., Joly Y., Knoppers B.M.
Title Clinical Trial Transparency and Orphan Drug Development: Recent Trends in Data Sharing by the Pharmaceutical Industry
Reference

(2014) 16:6 Public Health Genomics, 322


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2012

Author(s) Caulfield T., Harmon S.H.E., Joly Y.
Title Open science versus commercialization: a modern research conflict?
Reference (2012) 4:2 Genome Medicine, 1

Author(s) Dove E.S., Joly Y.
Title The Contested Futures of Biobanks and Intellectual Property
Reference

(2012) 11:1 Teoria & derecho: revista de pensamiento juridico (Theory & Law: Journal of Legal Thought) 132-146.


Author(s) Dove E.S., Joly Y., Knoppers B.M.
Title Power to the People: A Wiki-governance Model for Biobanks
Reference

(2012) 13:5 Genome Bioliogy: 158.

http://genomebiology.com/2012/13/5/158

Author(s) Dove E.S., Ozdemir V., Joly Y.
Title Harnessing Omics Sciences, Population Databases, and Open Innovation Models for Theranostics-Guided Drug Discovery and Development
Reference

 (2012) Drug Development Research DOI: 10.1002/ddr.21035


Author(s) Harmon S.H.E., Caulfield T., Joly Y.
Title Commercialisation versus Open Science: Making Sense of the Message(s) in the Bottle
Reference (2012) 12:1 Medical Law International, 3

Author(s) Joly Y.
Title Propriété intellectuelle et modèles de collaboration ouverte
Reference

JurisClasseur Quebec - Collection Droit des affaires - Propriete intellectuelle (Montreal: LexisNexis Canada Inc., 2012)


Author(s) Joly Y., Allen C., Knoppers B.M.
Title Currents in Contemporary Bioethics. Open Access as Benefit Sharing? The Example of Publicly Funded Large-Scale Genomic Databases
Reference (2012) 40:1 Journal of Law Medicine and Ethics, 143

Author(s) Joly Y., Dove E.S., Kennedy K.L., Bobrow M., Ouellette B.F. Francis, Dyke S.O.M., Kato K., Knoppers B.M.
Title Open Science and Community Norms: Data Retention and Publication Moratoria Policies in Genomics Projects
Reference

Author(s) Joly Y., Dove E.S., Knoppers B.M., Bobrow M., Chalmers D.
Title Data Sharing in the Post-Genomic World: The Experience of the International Cancer Genome Consortium (ICGC) Data Access Compliance Office (DACO)
Reference

(2012) 8:7 PLoS Computational Biology, e1002549.

http://www.ploscompbiol.org/article/info%3Adoi%2F10.1371%2Fjournal.pcbi.1002549

Author(s) Joly Y., Hemmings F.
Title Bilski v. Kappos and Biotechnology Patents: Back to the Future?
Reference Intellectual Property and Emerging Technologies: The New Biology (Cheltenham, U.K. and Northampton, Mass.: Edward Elger Publishing, 2012)

Author(s) Joly Y., Livingstone A., Dove E.S.
Title Moving Beyond Commercialization: Strategies to Maximize the Economic and Social Impact of Genomics Research
Reference

(2012) No. 5 Genome Canada Policy Brief  GE3LS Series, 1–14.

http://www.genomecanada.ca/medias/pdf/en/valorisationRecherche-policy-directions-brief.pdf

Author(s) Ngueng Feze I., Joly Y.
Title Droit, médecine personnalisée et pharmacogénomique : à la recherche d'une parfaite alchimie
Reference

Le droit, vecteur de la gouvernance en santé? Défis théoriques et enjeux pratiques (Sherbrooke: Les Éditions Revue de droit de l'Université de Sherbrooke, 2012)

 


Author(s) Ozdemir V., Joly, Y., Dove, E.S., Karalis, A., Avard, D., Knoppers, B.M.
Title Are we Asking the Right Ethics Questions on Drug Shortages? Suggestions for a Global and Anticipatory Ethics Framework.
Reference

(2012) 12:1 American Journal of Bioethics, 13


Author(s) Romeo-Casabona C., Nicolas P., Knoppers B.M., Joly Y., Wallace S.E., Chalmers D., Dyke S., Kennedy K., Troncoso A., Kaan T., Rial-Sebbag E.
Title Legal Aspects of Genetic Databases for International Biomedical Research: The Example of the International Cancer Genome Consortium (ICGC)
Reference

(2012) 37 Law and the Human Genome Review, 15


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2011

Author(s) Dove E.S., Knoppers B.M., Joly, Y.
Title Trade-Secret Model: Legal Limitations
Reference

(2011)333:6049 Science, 1575

http://www.sciencemag.org/content/333/6049/1575.1.full

Author(s) Howard H.C., Joly Y., Avard D., Laplante N., Phillips M., Tardif J.C.
Title Informed consent in the context of pharmacogenomic research: ethical considerations
Reference (2011) Pharmacogenomics Journal advance online publication 29 March 2011; doi: 10.1038/tpj.2011.11

Author(s) Joly Y.
Title Personalized Medicine is not a Sprint, But a Relay
Reference (December 2011) The Genoscape, 1

Author(s) Joly Y., Koutrikas G., Ramos-Paque E., Zawati M.H., Gardy J.
Title Diagnostic Testing for Vaccinomics: Is the Regulatory Approval Framework Adequate? A Comparison of Canada, the United States and Europe
Reference

(2011) 15:9 OMICS, 597


Author(s) Joly Y., Koutrikas G., Tassé A.M., Issa A., Carleton B., Hayden M., Rieder M.J., Ramos-Paque E., Avard D.
Title Regulatory Approval for New Pharmacogenomics Tests: A Comparative Overview
Reference

(2011) 66:1 Food and Drug Law Journal, 1

http://www.fdli.org/pubs/journal/toc/vol66_1.html

Author(s) Joly Y., Tassé A.M., Dove E.S.
Title Balancing Privacy Protections with Open, Collaborative, Biomedical Research: Implications for Updating the CIHR Privacy Best Practices
Reference

(Ottawa, CIHR, 2011)


Author(s) Joly, Y.
Title Personalized Medicine in Developing Countries: A Roadmap to Personalized Innovation
Reference

(2011)9:3 Current Pharmacogenomics and Personalized Medicine, 156-158


Author(s) Joly, Y., Zepps N., Knoppers B.M.
Title Genomic Databases Access Agreements: Legal Validity and Possible Sanctions
Reference (2011)130:3 Human Genetics, 441–449

Author(s) Kamal S.M., Warnich L., Ferguson L.R., Srivastava S., Ray S., Avard D., Joly Y., Huynh M.L., Page M., Masellis M., Dove E.S., Gurwitz D., Ozdemir V.
Title Forward Look: Tenth Anniversary of the Human Genome Sequence and 21st Century Postgenomics Global Health — A Close Up on Africa and Women’s Health.
Reference

 (2011) 9:3 Current Pharmacogenomics and Personalized Medicine, 148.

http://www.benthamdirect.org/pages/content.php?CPPM/2011/00000009/00000003/001AF.SGM

Author(s) Lévesque E., Joly Y., Simard J.
Title Return of research results: General principles and international perspectives
Reference (2011) 39:4 Journal of Law, Medicine and Ethics, 583.
http://onlinelibrary.wiley.com/doi/10.1111/j.1748-720X.2011.00625.x/pdf

Author(s) Madadi P., Joly Y., Avard D., Chitayat D.C., Smith M.A., Ross C.J.D., Carleton B.C., Hayden M.R., Koren G.
Title The Communication of Pharmacogenetic Research Results: Participants Weigh in on their Informational Needs in a Pilot Study
Reference

(2011) 18:1 Journal of Population Therapeutics and Clinical Pharmacology, e152


Author(s) Ngueng Feze I., Joly Y., Zawati M., Knoppers B.M.
Title Genomic Population Biobanks: Legal, Ethical and Social Aspects
Reference (Paris, UIA, 2011)

Author(s) Ozdemir V., Joly Y., Knoppers B.M.
Title ACCE, Pharmacogenomics, and Stopping Clinical Trials: Time to Extend the CONSORT Statement?
Reference

 (2011) 11:3 American Journal of Bioethics 11

http://www.informaworld.com/smpp/content~content=a934769011~db=all

Author(s) Ozdemir V., Rosenblatt D., Warnich L., Srivastava S., Tadmouri G., Aziz R., Reddy P., Manamperi A., Dove E.S., Joly Y., Zawati M., Hizel C., Yazan Y., John L., Vaast E., Ptolemy A., Faraj S., Kolker E., Cotton R.G.H.
Title Towards an Ecology of Collective Innovation: Human Variome Project (HVP), Rare Disease Consortium for Autosomal Loci (RaDiCAL) and Data-Enabled Life Sciences Alliance (DELSA)
Reference

(2011) 9:4 Current Pharmacogenomics and Personalized Medicine, 243

http://www.benthamdirect.org/pages/content.php?CPPM/2011/00000009/00000004/002AF.SGM

Author(s) Pathmasiri S., Deschênes M., Joly Y., Mrejen T., Hemmings F., Knoppers B.M.
Title Intellectual Property Rights in Publicly Funded Biobanks: Much Ado About Nothing?
Reference

(2011) 29:4 Nature Biotechnology, 319


Author(s) Zawati M.H., Hendy M., Joly Y.
Title Incidental Findings in Data Intensive Postgenomics Science and Legal Liability of Clinician-Researchers: Ready for Vaccinomics?
Reference

(2011) 15:9 OMICS, DOI: 10.1089/omi.2010.0137


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2010

Author(s) Bentley L., Sherman B., Borges Barbosa D., Grau-Kuntz K., Basheer S., Purohit S., Reddy P., Visser C., Gold R., Joly Y.
Title Exclusions from Patentability and Exceptions and Limitations to Patentees' Rights
Reference (WIPO, Geneva, 2010)

Author(s) Bubela T., et al., Joly Y.
Title Evidence and Bakcground Information to Inform Canada's Approach to Public Health and Intellectual Property Issues in International for a
Reference (Health Canada's International Affairs Directorate, 2010)

Author(s) Caulfield T., Joly Y.
Title Human Gene Patents and Genetic Testing
Reference Molecular Diagnostics (Burlington: Academic Press, 2010)

Author(s) Gold E.R., Bubela T., Carbone J., Gagnon M.-A., Srulovicz T., Joly Y.
Title At the intersection of health and intellectual property: Issues, tools and directions for Health Canada
Reference (Health Canada Bioethics, Innovation and Policy Integration Division, TIP, 2010)

Author(s) Gold R., Joly Y.
Title The Patent System and Research Freedom: A Comparative Study
Reference

(2010) WIPO SCP/15/3 Annex VI

http://www.wipo.int/edocs/mdocs/scp/en/scp_15/scp_15_3-annex6.pdf

Author(s) Hudson T.J., [...] Joly Y., et al.
Title International Network of Cancer Genome Projects
Reference

(2010) 464:7291 Nature, 993


Author(s) Joly Y.
Title Open Biotechnology: Licenses Needed
Reference

(2010) 28:5 Nature Biotechnology, 417


Author(s) Joly Y.
Title Les aventures d’un juriste en terre étrangère
Reference La malréglementation : Une éthique de la recherche est-elle possible et a quelles conditions? (Montréal: Les Presses de l'Université de Montréal, 2010)

Author(s) Joly Y.
Title Clinical Translation of Stem Cell Therapies – Intellectual Property and Anticipatory Governance
Reference

(2010) 7:2 SCRIPTed, 265


Author(s) Joly Y., Braker M., Huynh M.
Title Genetic Discrimination in Private Insurance: Global Perspectives
Reference

(2010) 29:4 New Genetics and Society, 351


Author(s) Joly Y., Caulfield T., Knoppers B.M., Harmsen E., Pastinen T.
Title The Commercialization of Genomic Research in Canada
Reference (2010) 6:2 Healthcare Policy, 24

Author(s) Joly Y., McClellan K.A., Knoppers B.M.
Title Personalized Vaccines and Public Health Genomics: Anticipating and Monitoring the ELSIs
Reference

(2010) 8 Current Pharmacogenomics and Personalized Medicine, 4


Author(s) Joly Y., Ramos-Paque E.
Title Approval of New Pharmacogenomic Tests: Is the Canadian Regulatory Process Adequate?
Reference (2010) 8:2 Canadian Journal of Law and Technology, 215

Author(s) Knoppers B.M., Joly Y.
Title General Problems Related to the Collection and Processing of Health Related Information for Insurance Purposes Including those which are Specific to Predictive Health Data
Reference (Council of Europe, CDBI-CO-GT4 (2010) 6REV)

Author(s) Madadi P., Joly Y., Avard D., Chitayat D., Smith M.A., Ross C.J.D., Carleton B.C., Hayden M.R., Koren G.
Title Communicating Pharmacogenetic Research Results to Breastfeeding Mothers Taking Codeine: A Pilot Study of Perceptions and Benefits
Reference

(2010) 88:6 Clinical Pharmacology & Therapeutics, 792


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2009

Author(s) Avard D., Silverstein T., Sillon G., Joly Y.
Title Researchers' Perceptions of the Ethical Implications of Pharmacogenomics Research with Children
Reference (2009) 12:3 Public Health Genomics, 191

Author(s) Birney E., [...] Joly Y., et al.
Title Prepulication Data Sharing
Reference (2009)461:7261 Nature, 168

Author(s) Caulfield T., Zarzeczny A., McCormick J., Bubela T., Joly Y., Isasi R. et al
Title International stem cell environments: A world of difference
Reference (2009) Nature Reports Stem Cells, doi:10.1038/stemcells.2009.61 

Author(s) Caulfield T., Zarzeczny A., McCormick J., Joly Y., Isasi R. et al
Title The Stem Cell Research Environment: A Patchwork of Patchworks
Reference (2009) 5:2 Stem Cell Rev. and Rep., 82

Author(s) Frank C., [...] Joly Y. et al.
Title Making an Impact: A Preferred Framework and Indicators to Measure Returns on Investment in Health Research
Reference (2008) Canadian Academy of Health Science, Assessment Report, Report of the Panel on the Return on Investments in Health Research, 80

Author(s) Frank C., [...] Joly Y. et al.
Title Créer un impact: Les indicateurs et approches à privilégier pour mesurer le rendement des investissements consentis en recherche en santé
Reference (2008) Académie canadienne des sciences de la santé,  Résumé du panel sur le rendement des investissements consentis en recherche en santé

Author(s) Hemmer M., Joly Y., Glebov L., Bass M., Richardson M.
Title Volume Bragg Grating assisted broadband tunability and spectral narrowing of TI:Sapphire oscillators
Reference (2009) 17:10 Optics Express, 8212

Author(s) Joly Y.
Title Intellectual Property and the "Right" to Health in the Age of Biomedicine
Reference

Séminaire d’actualité de droit medical (Bordeaux : Les Études Hospitalières, 2009)


Author(s) Joly Y.
Title L’utilisation des ressources biologiques humaines et le partage des avantages: à la recherche d’un nouvel équilibre
Reference La bioéquité : Bataille autour du partage du vivant (Éditions Autrement, 2009)

Author(s) Joly Y.
Title Genetic Research Tools: Recent Trends and Future Outlook
Reference Biotechnology IP & Ethics (Canada: LexisNexis Canada Inc., 2009)

Author(s) Joly Y.
Title La biotechnology ouverte - Bilan de la rencontre de deux révolutions
Reference (2009) 25 : 11 Médecine Sciences 957 - 961

Author(s) Knoppers B.M., Joly Y.
Title General Problems Related to the Collection and Processing of Health Related Information for Insurance Purposes Including those which are Specific to predictive Health Data
Reference (Council of Europe, 2009)

Author(s) Rothstein M.A., Joly Y.
Title Genetic Information and Insurance Underwriting: Contemporary Issues and Approaches in the Global Economy
Reference in Atkinson P., Glasner P. & Lock M., eds., The Handbook of Genetics & Society: Mapping the New Genomic Era (London and New York: Routledge, 2009), Chapter 10, pp. 127-144

Author(s) Silverstein T., Joly Y., Harmsen E., Knoppers B.M. for the GRID (Gene Regulators in Disease) Project
Title The Commercialization of Genomic Academic Research: Conflicting Interests?
Reference Biotechnology IP & Ethics (Canada: LexisNexis Canada Inc., 2009)

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2008

Author(s) Avard D., Joly Y.
Title Improved Understanding of Genetic and Genomic Influences on Drug Disposition and Action: Implications for Children
Reference (2008) 10:5 Pediatr Drugs, 275-278

Author(s) Joly Y.
Title Le transfert des technologies, vers une approche plus personnalisée
Reference Découvrons (Genome Québec, Automne 2008)

Author(s) Joly Y.
Title The Transfer of Technologies: Towards a Personalized Approach
Reference Discover (Genome Quebec, 2008)

Author(s) Joly Y.
Title Open Source Biotechnology: Refocusing the Debate
Reference Biotechnology a Legal Approach Punjagutta: The Icfai University Press, 2008)

Author(s) Joly Y., Sillon G., Silverstein T., Krajinovic M., Avard D.
Title Pharmacogenomics: Don't Forget the Children
Reference (2008) 6 Current Pharmacogenomics and Personalized Medicine, 77-84

Author(s) Joly, Y., Pham, C., Shorno, D., Knoppers, B.M.
Title Down the Rabbit Hole: Technology Transfer in the Field of Stem Cell Research
Reference (2008) 47 Revista da Faculta de Dereito de Universidade Federal do Parana 101

Author(s) Knoppers B.M. et Joly Y., dir.
Title La santé et le bien commun
Reference (Montréal: Les Éditions Thémis - Collection Droit, biotechnologie et société, 2008) 

Author(s) Knoppers B.M., Joly Y.
Title La connaissance du génome : un instrument au service de l'humanité?
Reference dans B.M. Knoppers et Y. Joly, dir., La santé et le bien commun, (Montréal: Les Éditions Thémis - Collection Droit, biotechnologie et société, 2008) 249

Author(s) Sillon G., Joly Y., Feldman S., Avard D.
Title An Ethical and Legal Overview of Pharmacogenomics: Perspectives and Issues
Reference (2008) 27(4) Med Law, 843-857

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2007

Author(s) Joly Y.
Title Open Source Approaches in Biotechnology: Utopia Revisited
Reference (2007) 59:2 Maine Law Review, 386
http://papers.ssrn.com/sol3/papers.cfm?abstract_id=943011

Author(s) Joly Y.
Title L’accès à l’information génétique contenu dans le dossier médical par les assureurs sur la vie : un besoin de repositionner le débat
Reference Séminaire d’actualité de droit médical (Bordeaux : Les Études Hospitalières, 2007)

Author(s) Joly Y.
Title Francesco Francioni, Dir., Biotechnology and International Human Rights, Oxford, Hart 2007
Reference (2007) 20.1 Revue quebecoise de droit international, 485

Author(s) Joly Y., Nycum G.
Title Currents in Contemporary Ethics. The Tuberculosis Scare in Retrospect
Reference (2007) 35:4 Journal of Law, Medicine & Ethics, 734

Author(s) Joly Y., Wahnon F., Knoppers B.M.
Title Impact of the Commercialization of Biotechnology Research on the Communication of Research Results: North American Perspective
Reference (2007) 8:1 Harvard Health Policy Review, 71

Author(s) Knoppers B.M., Joly Y.
Title Our Social Genome?
Reference (2007) 25:7 Trends in Biotechnology, 284
http://www.sciencedirect.com

Author(s) Phillips M.S., Joly Y., Silverstein T., Avard D.
Title Consent in Pharmacogenomic Research
Reference (2007) 5:2 GenEdit, 1-9
http://www.humgen.org/int/GE/en/2007-5.pdf

Author(s) Phillips M.S., Joly Y., Silverstein T., Avard D.
Title Le consentement à la recherche en pharmacogénomique
Reference (2007) 5:2 GenEdit, 1-10
http://www.humgen.org/int/GE/fr/2007-5.pdf

Author(s) Phillips M.S., Joly Y., Silverstein T., Avard D.
Title Consentimiento en la Investigación Farmacogenómica
Reference (2007) 5:2 GenEdit, 1-10
http://www.humgen.org/int/GE/es/2007-2.pdf

Author(s) Simard J., Dumont D., Moisan A.M., Gaborieau V., Vezina H., Durocher F., Chiquette J., Plante M., Avard D., Bessette P., Brousseau C., Dorval M., Godard B., Houde L., Joly Y., Lajoie M.A., Leblanc G., Lepine J., Lespernace B., et al., Knoppers B.M.
Title Evaluation of BRCA1 and BRCA2 Mutation Prevalence, Risk Prediction Models and a Multi-Step Testing Approach in French-Canadian High-Risk Breast and Ovarian Cancer Families
Reference

(2007) 44:2 J. Med. Genet., 107

http://jmg.bmjjournals.com/cgi/rapidpdf/jmg.2006.044388v1

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2006

Author(s) Health Canada, External Working Group on the Registration and Disclosure of Clinical Trial Information (EWG-CT)(McGillivray B., Alessi-Severini S., Armstrong P., Belisle J.-P., Binder C., Clark A.F., Downie J., Grimshaw J., Joly Y. et al.)
Title Options for Improving Public Access to Information on Clinical Trials of Health Products in Canada
Reference Ottawa, 2006
http://www.hc-sc.gc.ca/dhp-mps/prodpharma/activit/sci-consult/ewg-ct/ewg_ct_fr_gte_ec_rf_e.html

Author(s) Joly Y.
Title Wind of Change: In re Fisher and the Evolution of the American Biotechnology Patent Law
Reference (2006) 24:1 Law in Context, 67

Author(s) Joly Y.
Title Life Insurers' Access to Genetic Information: A Way Out of the Stalemate?
Reference (2006) 14:3 Health Law Review, 14

Author(s) Joly Y., Knoppers B.M.
Title Pharmacogenomic Data Sample Collection and Storage: Ethical issues and Policy Approaches
Reference (2006) 7:2 Pharmacogenomics, 219

Author(s) Joly Y., Schorno D.
Title Le brevet : Valet ou roi du droit à la santé?
Reference (2006) 19:2 Revue québécoise de droit international

Author(s) Joly Y., Sillon G., Knoppers B.M.
Title La pharmacogénomique : nouveaux médicaments, nouvelles responsabilités?
Reference 1er congrès international interdisciplinaire sur la Chaîne du Médicament, "Le médicament : conception, production et consommation"; Actes du congrès (Montréal : Groupe d'étude sur l'interdisciplinarité et les représentations sociales, 2006), 265
http://www.geirsomedicaments.uqam.ca/congres2005/ActesCongres2005.pdf

Author(s) Knoppers B.M., Joly Y., Simard J., Durocher F.
Title The Emergence of an Ethical Duty to Disclose Genetic Research Results: International Perspectives
Reference (2006) 14:11 European Journal of Human Genetics, 1170 (2006) 14:12 European Journal of Human Genetics, 1322 (corrected)
http://www.nature.com/uidfinder/10.1038/sj.ejhg.5201690

Author(s) Sillon G., Joly Y.
Title Regard éthico-juridique sur la pharmacogénomique : Perspectives et enjeux
Reference 16ème congrès mondial de droit médical; Actes du congrès (Bordeaux : Association mondiale de droit médical, 2006), vol. 1, 241

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2005

Author(s) Gold E.R., Joly Y. Caulfield T.
Title Genetic Research Tools, the Research Exception and Open Science
Reference (2005) 3:2 GenEdit, 1-8
http://www.humgen.org/int/GE/en/2005-2.pdf

Author(s) Gold E.R., Joly Y., Caulfield T.
Title Les outils de recherche génétique, l'exception de recherche et la science ouverte
Reference (2005) 3:2 GenEdit, 1-10 
http://www.humgen.org/int/GE/fr/2005-2.pdf

Author(s) Joly Y
Title Integra v. Merck: The resurrection of the American research exemption?
Reference (2005) Centre for Intellectual Property Policy
http://www.cipp.mwgill.ca/db/news/00000028.pdf

Author(s) Joly Y
Title Commentary: Insurance companies should abandon their defensive approach
Reference (2005) 25:9 The Lawyers Weekly, 14

Author(s) Joly Y, Knoppers BM, Nguyen MT
Title Stored tissue samples: through the confidentiality maze
Reference (2005) 5:1 The Pharmacogenomics Journal, 2

Author(s) Joly Y.
Title Le génome comme outil de recherche? Principaux courants et enjeux nord-américains
Reference Le génome comme outil de recherche? Principaux courants et enjeux nord-américains (Paris: Dalloz, 2005)

Author(s) Joly Y.
Title Biotechnologies et brevets : le cas de la pharmacogénomique
Reference (2005) 10:2 Lex Electronica, 1

Author(s) Joly Y., MBulu H.
Title L'utilisation des échantillons et de l'information des cadavres et en recherche biomédicale: perspectives québécoises et internationales
Reference Séminaire d'actualité de droit médical-Le respect du corps humain pendant la vie après la mort, (Bordeaux, Les Études Hospitalières, 2005)

Author(s) Simard .J, Joly Y., Durocher F., Knoppers B.M.
Title Les enjeux éthiques du partage des résultats de recherche: l'expérience d'INHERIT BRCAs
Reference Les enjeux éthiquesdu partage des résultats de recherche: l'expérience d'INHERIT BRCAs (Montréal: Éditions Thémis, 2005)

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2004

Author(s) Gold ER, Knoppers BM, Caulfield TA, Cloutier M, Carbone J, Joly Y, Sheremeta LE
Title Recommendations for Canadian Genetic Patents and Health Care: An International Comparison of Patent Regimes of Canada and its Major Trading Partners
Reference Recommendations for Canadian genetic Patents and Health Care: An International Comparison of Patent Regimes of Canada and its Major Trading Partners (Montreal: Centre for Intellectual Property Policy, 2004)

Author(s) Joly Y
Title La pharmacogénomique: perspectives et enjeux éthico-juridiques
Reference (2004) 9:3 Lex Electronica, 1
http://www.lex-electronica.org/articles/v9-3/joly.htm

Author(s) Joly Y, Knoppers BM
Title BRCA Gene Patents and the European Patent Office
Reference (2004) 4:2 Law and Bioethics (LAB) Report, 6
http://www.louisville.edu/medschool/ibhpl/images/pdf/Lab%20Report%20win%2004.pdf

Author(s) Joly Y.
Title La protection de la confidentialité de l'information dans la recherche en pharmacogénomique
Reference La protection de la confidentialité de l'information dans la recherche en pharmacogénomique (Bordeaux: Les Études Hospitalières, 2004)

Author(s) Knoppers B.M., Godard B., Joly Y.
Title A Comparative International Overview
Reference Genetics and Life Insurance: Medical Underwriting and Social Policy (Cumberland: The MIT Press, 2004)

Author(s) Knoppers B.M., Joly Y.
Title Physicians, Genetics and Life Insurance
Reference (2004) 170:5 CMAJ, 1421

Author(s) Knoppers BM, Lemmens T, Godard B, Joly Y, et al
Title Genetics and Life Insurance in Canada : Points to Consider
Reference (2004) 170:9 CMAJ, 1

Author(s) Lemmens T., Joly Y., Knoppers B.M.
Title Genetics and Life Insurance : A Comparative Analysis
Reference (2004) 2:2 GenEdit, 1-15
http://www.humgen.org/int/GE/en/2004-2.pdf

Author(s) Lemmens T., Joly Y., Knoppers B.M.
Title Génétique et assurance vie : analyse comparative
Reference (2004) 2:2 GenEdit, 1-13
http://www.humgen.org/int/GE/fr/2004-2.pdf

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2003

Author(s) Godard B, Joly Y, Pratte A, Avard A, Boucratie N, Knoppers BM
Title Genetic information and privacy in the workplace
Reference Genetic information and privacy in the workplace (Ottawa: Human Resources Development Canada, 2003)

Author(s) Joly Y
Title Accès aux médicaments: le système international des brevets empêchera-t-il les pays du tiers monde de bénéficier des avantages de la pharmacogénomique?
Reference (2003) 16 Les cahiers de la propriété intellectuelle, 131-185

Author(s) Joly Y, Knoppers BM, Godard B
Title Genetic information and life insurance: a 'real' risk?
Reference (2003) 11:8 European Journal of Human Genetics, 561

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