. CGP Centre of Genomics and Policy CGP Centre of Genomics and Policy

CPG Centre of Genomics and policy

Publications

Denise Avard

2016

Author(s) Esquivel-Sada D., Hagan J., Sénécal K., Avard D., Knoppers B.M., Sinnett D.
Title Perspectives de parents concernant les découvertes fortuites en recherche pédiatrique : la voix manquante au débat?Parental Perspectives on Incidental Findings in Pediatric Research: The Missing Voice in the Debate
Reference

(2016) 4:2 Serie E : Droit, sante et societe, 15


Author(s) Salman S., Vardatsikos G., Avard D., Palmour N., Dewar K. & Zawati M.H.
Title FMT Happens: Regulating Fecal Microbiota Therapy in Canada; What you Need to Know
Reference

(2016) 8:1 World Medical & Health Policy, 95-106


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2015

Author(s) Ali-Khan S.E., Black L., Palmour N., Hallett M.T., Avard D.
Title Socio-ethical issues in personalized medicine: A systematic review of English language health technology assessments of gene expression profiling tests for breast cancer prognosis
Reference

(2015) 31:1/2 International Journal of Technology Assessment in Health Care, 36


Author(s) Cunningham S., O'Doherty K.C., Sénécal K., Secko D., Avard D.
Title Public concerns regarding the storage and secondary uses of residual newborn bloodspots: an analysis of print media, legal cases, and public engagement activities
Reference

(2015) 6:2 Journal of Community Genetics, 117


Author(s) MacLeod S.M., Knoppert D.C., Stanton-Jean M., Avard D.
Title Pediatric clinical drug trials in low-income countries: key ethical issues
Reference

(2015) 17:1 Pediatric Drugs, 83


Author(s) Rahimzadeh V, Avard D, Sénécal K, Knoppers BM, Sinnett D
Title To disclose, or not to disclose? Context matters
Reference

(2015) 23:3 European Journal of Human Genetics, 279


Author(s) Sénécal K., Rahimzadeh V., Knoppers B.M., Fernandez C.V., Avard A., Sinnett D.
Title Statement of Principles on the Return of Research Results and Incidental Findings in Paediatric Research: A Multi-site Consultative Process
Reference

(2015) 58:12 Genome, 541


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2014

Author(s) Allen C., Sénécal K., Avard D.
Title Defining the Scope of Public Engagement: Examining the "Right Not to Know" in Public Health Genomics
Reference

(2014) 42:1 Journal of Law, Medicine and Ethics, 11


Author(s) Beaulieu C.L., Majewski J., Schwartzentruber J., Samuels M.E., Fernandez B.A., Bernier F.P., Brudno M., Knoppers B.M., Marcadier J., Dyment D., Adam S., Bulman D.E., Jones S.J.M., Avard D., Nguyen M.T., Rousseau F., Marshall C., Wintle R.F., Shen Y., Scherer S.W., FORGE Canada Consortium, et al
Title FORGE Canada Consortium: Outcomes of a 2-Year National Rare-Disease Gene-Discovery Project
Reference

(2014) 94:6 The American Journal of Human Genetics, 809


Author(s) Fernandez C.V., Bouffet E., Malkin D., Jabado N., O'Connell C., Avard D., Knoppers B.M., Ferguson M., Boycott K., Sorensen P.H., Orr A.C., McMaster C.
Title Attitudes of Parents to the Return of Targeted and Incidental Genomic Research Findings in Children
Reference

(2014) 16:8 Genetics in Medicine, 633


Author(s) Kleiderman E., Avard D., Besso A., Ali-Khan S., Sauveageau G., Hébert J.
Title Disclosure of incidental findings in cancer genomic research: investigators' perceptions on obligations and barriers
Reference

(2014) Clinical Genetics, doi: 10.1111/cge.12540, 1


Author(s) Kleiderman E., Knoppers B.M., Fernandez C.V., Boycott K.M., Ouellette G., Wong-Rieger D., Adam S., Richer J., Avard D
Title Returning incidental findings from genetic research to children: views of parents of children affected by rare diseases
Reference

(2014) 40:10 Journal of Medical Ethics, 665


Author(s) Knoppers B.M., Avard D., Sénécal K., Zawati M.H., P3G International Paediatrics Platform Members
Title Return of Whole-Genome Sequencing Results in Paediatric Research: A Statement of the P3G International Paediatrics Platform
Reference

(2014) 22:1 European Journal of Human Genetics, 3


Author(s) Knoppers B.M., Sénécal K., Borry P., Avard D.
Title Whole Genome Sequencing in Newborn Screening Programmes?
Reference

(2014) 6:229 Science Translational Medicine, 1


Author(s) MacLeod S.M., Knoppert D.C., Stanton-Jean M., Avard D.
Title Pediatric Clinical Drug Trials in Low-Income Countries: Key Ethical Issues
Reference

(2014) Pediatric Drugs, doi 10.1007/s40272-014-0103-3, 1


Author(s) Zawati M.H., Cohen E, Parry D, Avard D and Syncox D
Title Ethics Education for Clinician-Researchers in Genetics: The Combined Approach
Reference

(2014) Applied and Translational Genomics Journal,doi:10.1016/j.atg.2014.12.001


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2013

Author(s) Arbuckle T.E., Fraser W.D., Fisher M., Davis K., Liang C.L., Lupien N., Bastien S., Velez M.P., et al, Avard D., et al.
Title Cohort Profile: The Maternal-Infant Research on Environmental Chemicals Research Platform
Reference (2013) 27:4 Journal of Paediatric & Perinatal Epidemiology, 415

Author(s) Bartlett G., Avard D., Knoppers B.M.
Title A new twist on an old problem: primary care physicians and results from direct-to-consumer genetic testing
Reference (2013) 18:8 Personalized Medicine, 827

Author(s) Black L., Avard D., Zawati M.H., Knoppers B.M., Hébert J., Sauvageau G.
Title Funding Considerations for the Disclosure of Genetic Incidental Findings in Biobank Research
Reference

(2013) 84:5 Clinical Genetics, 397


Author(s) Black L., Batist G., Avard D., Rousseau C., Diaz Z., Knoppers B.M.
Title Physician Recruitment of Patients to Non-therapeutic Oncology Clinical Trials: Ethics Revisited
Reference (2013) 4 Frontiers in Pharmacology, doi: 10.3389/fphar.2013.00025, 1

Author(s) Black L., McClellan K., Avard D., Knoppers B.M.
Title Intrafamilial Disclosure of Risk for Hereditary Breast Cancer: Points to Consider
Reference (2013) 4:2 Community Genetics, 203

Author(s) Dove E.S., Avard D., Black L., Knoppers B.M.
Title Emerging Issues in Paediatric Health Research Consent Forms in Canada: Working Towards Best Practices
Reference

(2013) 14:1 BMC Medical Ethics, 1


Author(s) Dove E.S., Black L., Avard D., Knoppers B.M.
Title Charting the Privacy Landscape in Canadian Paediatric Biobanks
Reference (2013) 20 Health Law Journal, 1

Author(s) Fernandez C.V., Strahlendor C., Avard D., Knoppers B.M., O'Connell C., Bouffet E., Malkin D., Jabado N., Boycott K., Sorensen P.H.
Title Attitudes of Canadian Researchers Toward the Return to Participants of Incidental and Targeted Genomic Findings Obtained in a Pediatric Research Setting
Reference (2013) 15:7 Genetics Medicine, 558

Author(s) Hayeems R.Z., Miller F.A., Bomard Y., Avard D., Carroll J., Wilson B., Little J., Chakraborty P., Bytautas J., Giguere Y., Allanson J., Axler R.
Title Expectations and Values About Expanded Newborn Screening: A Public Engagement Study
Reference (2013) Health Expectations, 1

Author(s) Joly Y., Avard D.
Title Pharmacogenomics: Ethical, Legal and Social Issues
Reference

Handbook of Personalized Medicine: Advances in Nanotechnology, Drug Delivery and Therapy (Singapore: Pan Stanford Publishing, 2013)


Author(s) McClellan K.A, Avard D., Simard J., Knoppers B.M.
Title Personalized Medicine and Access to Health Care: Potential for Inequitable Access?
Reference

(2013) 21:2 European Journal of Human Genetics, 143

http://www.ncbi.nlm.nih.gov/pubmed/22781088

Author(s) McClellan K.A., Kleiderman E., Black L., Bouchard K., Dorval M., Simard J., Knoppers B.M., Avard D.
Title Exploring Resources for Intrafamilial Communication of Cancer Genetic Risk: We Still Need to Talk
Reference (2013) 21:9 European Journal of Human Genetics, 903

Author(s) Ozdemir V., Joly Y., Kirby E., Avard D., Knoppers B.M.
Title Beyond ELSIs - Where to From Here? From 'Regulating' to Anticipating and Shaping the Innovation Trajectory in Personalized Medicine
Reference

Pharmacogenomics: Challenges and Opportunities in Therapeutic Implementation (Amsterdam: Elsevier, 2013)

http://www.sciencedirect.com/science/book/9780123919182

Author(s) Sénécal K., Lévesque E., Fernandez C., Tassé A.M., Zawati M.H., Knoppers B.M., Avard D.
Title RMGA Statement of Principles on the Return of Research Results and Incidental Findings
Reference (Montréal, RMGA, 2013)
http://www.rmga.qc.ca/en/documents/RMGAStatement_Principles_English_May272013_000.pdf

Author(s) Sénécal K., Lévesque E., Fernandez C., Tassé A.M., Zawati M.H., Knoppers B.M., Avard D.
Title Énoncé de principes du RMGA sur la communication des résultats de recherche et des découvertes fortuites
Reference
http://www.rmga.qc.ca/fr/documents/EnonceduRMGA_versionfr_27mai2013.pdf

Author(s) Sénécal K., Stanton-Jean M., Avard D.
Title Favoriser l’implication du public pour accroître la légitimité des prises de décision en matière de politiques de santé?
Reference (2013) 24:4 Journal international de bioéthique, 159

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2012

Author(s) Avard D., Black L., Samuel J., Griener G., Knoppers B.M.
Title Best Practices for Research Involving Children and Adolescents: Genetic, Pharmaceutical and Longitudinal Studies
Reference Centre of Genomics and Policy (CGP), Maternal Infant Child and Youth Research Network (MICYRN), December 2012, 1

Author(s) Black L., Knoppers B.M., Avard D., Simard J.
Title Legal Liability and the Uncertain Nature of Risk Prediction: The Case of Breast Cancer Risk Prediction Models
Reference (2012) 15:6 Public Health Genomics, 327

Author(s) Bombard Y., Miller F.A., Hayeems R.Z., Carroll JC, Avard D., Wilson B.J., Little J, Bytautas J.P., Allanson J., Axler R., Giguere Y., Chakraborty P.
Title Citizens' Values Regarding Research with Stored Samples from Newborn Screening in Canada
Reference

(2012) 129:2 Official Journal of the American Academy of Pediatrics, 239


Author(s) Greenberg, C., K.A. McClellan, & D. Avard
Title Beyond Dissemination: A Knowledge Translation Model to Drive Change in Paediatric Genetics
Reference

(2012) 1 Journal of Pediatric Genetics, 7


Author(s) Kleiderman E., Avard D., Black L., Diaz Z., Rousseau C., Knoppers B.M.
Title Recruiting Terminally Ill Patients into Non-Therapeutic Oncology Studies: Views of Health Professionals
Reference (2012) 13:1 BMC Medical Ethics, 33

Author(s) Knoppers B.M., Avard D., Sénécal K.
Title Newborn Screening Programmes: Emerging Biobanks?
Reference

(2012) 21:2 Norwegian Journal of Epidemiology, 163

http://www.cabdirect.org/abstracts/20123149095.html;jsessionid=A6C085A695ED075D439C33264F4A0B28

Author(s) Knoppers B.M., Avard D., Thorogood A.
Title Informed Consent in Genetics
Reference

(2012) John Wiley & Sons, 1

http://onlinelibrary.wiley.com/doi/10.1002/9780470015902.a0005199.pub2/full

Author(s) Madadi P., Avard D., Koren G.
Title Pharmacogenetics of Opioids for the Treatment of Acute Maternal Pain During Pregnancy and Lactation
Reference

(2012) 13:6 Current Drug Metabolism, 721

http://www.ncbi.nlm.nih.gov/pubmed/22452458

Author(s) Ozdemir V, Avard D, Knoppers BM
Title Case Discussion in Response to Worldwide and Local Anti-Malaria Initiatives
Reference

Population and Public Health Ethics: Cases from Research, Policy, and Practice (Toronto: University of Toronto Joint Centre for Bioethics, 2012) (also available in French)


Author(s) Ozdemir V., Joly, Y., Dove, E.S., Karalis, A., Avard, D., Knoppers, B.M.
Title Are we Asking the Right Ethics Questions on Drug Shortages? Suggestions for a Global and Anticipatory Ethics Framework.
Reference

(2012) 12:1 American Journal of Bioethics, 13


Author(s) Samuël J., Knoppers B.M., Avard D.
Title Paediatric Biobanks: What Makes Them so Unique?
Reference

(2012) 48:2 Journal of Paediatrics and Child Health, E1


Author(s) Wilson B.J., Carroll J.C., Allanson J., ... Avard D. et al
Title Family History Tools in Primary Care: Does One Size Fit All
Reference

(2012) 15:3-4 Public Health Genomics, 181

http://www.ncbi.nlm.nih.gov/pubmed/22488461

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2011

Author(s) Avard D., Sénécal K., Madadi P., Sinnett D.
Title Pediatric Research & Return of Individual Research Results
Reference (2011) 39:4 Journal of Law Medicine and Ethics, 593

Author(s) Cox S., Ross K., Townsend A., Avard D., Woodgate R.
Title From Stakeholders to Shareholders: Engaging Consumers in Health Research
Reference

(2011) 19:3 Health Law Review, 63


Author(s) Howard H.C., Avard D., Borry P.
Title Are the Kids Really All Right? Direct-to-Consumer Genetic Testing in Children: Are Company Policies Clashing with Professional Norms?
Reference

(2011) 19:11 European Journal of Human Genetics, 1122

http://www.nature.com/ejhg/journal/vaop/ncurrent/full/ejhg201194a.html

Author(s) Howard H.C., Joly Y., Avard D., Laplante N., Phillips M., Tardif J.C.
Title Informed consent in the context of pharmacogenomic research: ethical considerations
Reference (2011) Pharmacogenomics Journal advance online publication 29 March 2011; doi: 10.1038/tpj.2011.11

Author(s) Joly Y., Koutrikas G., Tassé A.M., Issa A., Carleton B., Hayden M., Rieder M.J., Ramos-Paque E., Avard D.
Title Regulatory Approval for New Pharmacogenomics Tests: A Comparative Overview
Reference

(2011) 66:1 Food and Drug Law Journal, 1

http://www.fdli.org/pubs/journal/toc/vol66_1.html

Author(s) Kamal S.M., Warnich L., Ferguson L.R., Srivastava S., Ray S., Avard D., Joly Y., Huynh M.L., Page M., Masellis M., Dove E.S., Gurwitz D., Ozdemir V.
Title Forward Look: Tenth Anniversary of the Human Genome Sequence and 21st Century Postgenomics Global Health — A Close Up on Africa and Women’s Health.
Reference

 (2011) 9:3 Current Pharmacogenomics and Personalized Medicine, 148.

http://www.benthamdirect.org/pages/content.php?CPPM/2011/00000009/00000003/001AF.SGM

Author(s) Kimmelman J,. McDonald M., Avard D.
Title A Guide to the Perplexed: How to Nagivate Conflicting Research Ethics Policies
Reference

(2011) 19:3 Health Law Review, 56


Author(s) Madadi P., Joly Y., Avard D., Chitayat D.C., Smith M.A., Ross C.J.D., Carleton B.C., Hayden M.R., Koren G.
Title The Communication of Pharmacogenetic Research Results: Participants Weigh in on their Informational Needs in a Pilot Study
Reference

(2011) 18:1 Journal of Population Therapeutics and Clinical Pharmacology, e152


Author(s) Ozdemir V., Pang T., Knoppers B.M., Avard, D., Faraj S.A., Zawati M.H., Kolker E.
Title Vaccines of the 21st Century and Vaccinomics: Data-Enabled Science Meets Global Health to Spark Collective Action for Vaccine Innovation.
Reference

 (2011) 15:9 OMICS,  523

http://www.liebertonline.com/doi/abs/10.1089/omi.2011.03ed

Author(s) Samuël J., Knoppers B.M., Avard D.
Title Medical Research Involving Children: A Review of International Policy Statements
Reference Health Care Ethics: Core and Emerging Issues (London: SAGE, 2011)

Author(s) Sénécal K., Giguere Y., Bouffard C., Avard D.
Title Le dépistage néonatal de l'anémie facilfoforme: enjeux de santé publique, d'éthique et particularités ethniques au Québec
Reference

(2011) 33 Sociologie Santé, 293-310

 


Author(s) Sénécal K., Giguère Y., Bouffard C., Avard D.
Title Le dépistage néonatal de l’anémie falciforme : enjeux de santé publique, d’éthique et particularités ethniques au Québec
Reference

(2011) 33 Sociologie Santé, 293

http://revuesociologiesante.free.fr/spip.php?article107

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2010

Author(s) Avard D., Harmsen E.
Title Informed Consent and Multiplex Genetic Screening
Reference Encyclopedia of Life Sciences (Chichester: John Wiley & Sons, Ltd., 2010)

Author(s) Avard D., Stanton Jean M., Grégoire G., Page, M.
Title Public Involvement in Health Genomics: The Reality Behind the Policies
Reference

(2010) 34 International Journal of Consumer Studies, 508


Author(s) Black L., Glendon G et Avard D.
Title La divulgation intra-familiale de l'information génétique concernant le risque de développer un cancer du sein héréditaire: un cadre communicationnel?
Reference (2010) 8:2 GenEdit, 1-6
http://www.humgen.org/int/GE/fr/2010-2.pdf

Author(s) Black L., Glendon G., Avard D.
Title Revelación al Interior de la Familia de Información sobre el Riesgo Genético de Cáncer de Mama Hereditario: ¿Un Marco de Comunicación?
Reference (2010) 8:2 GenEdit, 1-6
http://www.humgen.org/int/GE/es/2010-2.pdf

Author(s) Black L., Glendon G., Avard D.
Title Intrafamilial Disclosure of Genetic Risk Information for Hereditary Breast Cancer: A Communications Framework?
Reference

(2010) 8:2 GenEdit, 1

http://www.humgen.org/int/GE/en/2010-2.pdf

Author(s) Bombard Y., Miller F.A., Hayeems R.Z., Avard D., Knoppers B.M.
Title Reconsidering reproductive benefit through newborn screening: a systematic review of guidelines on preconception, prenatal and newborn screening
Reference

(2010) 18:7 European Journal of Human Genetics, 751


Author(s) Borry P., Howard H.C., Sénécal K., Avard D.
Title Health-Related Direct-to-Consumer Genetic Testing: A Review of Companies' Policies with Regard to Genetic Testing in Minors
Reference

(2010) 9:1 Familial Cancer 51

http://www.springerlink.com/content/u650710254h5m171/

Author(s) Knoppers B.M., Avard D., Howard H.C.
Title Direct-to-consumer genetic testing: driving choice?
Reference

(2010) 10:8 Expert Rev. Mol. Diagn., 965

http://www.expert-reviews.com/loi/erm

Author(s) Knoppers B.M., Leroux T., Doucet H., Godard B., Laberge C., Stanton-Jean M., Fortin S., Cousineau J., Monardes C., Girard N., Levesque L., Durand C., Farmer Y., Dion-Labrie M., Bouthillier M.-E., Avard D.
Title Framing Genomics, Public Health Research and Policy: Points to Consider
Reference

(2010) 13:4 Public Health Genomics, 224


Author(s) Lévesque E., Bédard K., Avard D., Simard J.
Title Intéger l'éthique dans la recherche
Reference La malreglementation : Une ethique de la recherche est-elle possible et a quelles conditions? (Montreal: Les Presses de l'Universite de Montreal, 2010)

Author(s) Madadi P., Joly Y., Avard D., Chitayat D., Smith M.A., Ross C.J.D., Carleton B.C., Hayden M.R., Koren G.
Title Communicating Pharmacogenetic Research Results to Breastfeeding Mothers Taking Codeine: A Pilot Study of Perceptions and Benefits
Reference

(2010) 88:6 Clinical Pharmacology & Therapeutics, 792


Author(s) Tassé A.M., Sénécal K., Samuël J., Avard D., Knoppers B.M.
Title Énoncé de principes sur l’utilisation secondaire de données et de matériel biologique recueillis dans un contexte de soins ou de recherche
Reference (Montréal, RMGA, 2010)
http://www.rmga.qc.ca/files/attachments/0000/0130/RMGA-Enonce_de_principes_sur_utilisation_secondaire_2.pdf

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2009

Author(s) Avard D., Borry P., Laberge C.M.
Title Newborn Screening Research: Current Challenges
Reference Pediatric Research in Canada (Montreal: Les Editions Themis, 2009)

Author(s) Avard D., Bucci L.M., Burgess M.M., Kaye J., Heeney C., Farmer Y., Cambon-Thomsen A.
Title Public Health Genomics (PHG) and Public Participation: Points to Consider
Reference (2009) 5:1 Journal of Public Deliberation, 1

Author(s) Avard D., Knoppers B.M.
Title Genomic Medicine: Considerations for Health Professionals and the Public
Reference (2009) 1:2 Genome Medicine, 25.1

Author(s) Avard D., Samuël J., Knoppers B.M. (eds.)
Title Paediatric Research in Canada
Reference Paediatric Research in Canada (Montreal: Les Éditions Thémis, 2009) 270pp

Author(s) Avard D., Silverstein T., Sillon G., Joly Y.
Title Researchers' Perceptions of the Ethical Implications of Pharmacogenomics Research with Children
Reference (2009) 12:3 Public Health Genomics, 191

Author(s) Avard D., Stanton-Jean M., Woodgate R.L., Pullman D., Saginur R.
Title Research Ethics Boards and Challenges for Public Participation
Reference (2009) 17:2-3 Health Law Review, 66

Author(s) Borry P., Howard H.C., Sénécal K., Avard D.
Title Ethics Watch: Direct-to-Consumer Genome Scanning Services. Also for Children?
Reference (2009) 10:1 Nature Reviews Genetics, 8

Author(s) Kirby E., Lévesque E., Avard D.
Title MIREC’s Biobank - Ethical Considerations
Reference (2009) 5 MIREC Newsletter, 10

Author(s) Kirby É., Lévesque E., Avard D.
Title Reducing Fears of Participating in Research Involving Genetic Testing
Reference (2009)  1 : 6 MIREC Newsletter 8

Author(s) Knoppers B.M., Avard D.
Title 'Principled' personalized medicine?
Reference (2009) 6:6 Personalized Medicine, 663

Author(s) Nycum G., Avard D., Knoppers B.M.
Title Factors Influencing Intrafamilial Communication of Hereditary Breast and Ovarian Cancer Genetic Information
Reference (2009) European Journal of Human Genetics, Advance online publication, 25 March 2009; doi:10.1038/ejhg.2009.33

Author(s) Nycum G., Knoppers B.M., Avard D.
Title Intra-familial Obligations to Communicate Genetic Risk Information: What Foundations? What Forms?
Reference (2009) 3 McGill Journal of Law and Health, 21

Author(s) Samuël J., Knoppers B.M., Avard D.
Title Research Involving Children: An Analysis of International and Canadian Norms
Reference Paediatric Research in Canada (Montreal: Les Éditions Thémis, 2009), pp. 1-32.

Author(s) Senecal K., Borry P., Howard H.C., Avard D.
Title Pruebas Genéticas Directas al Consumidor: Visión General de las Normas y Políticas Aplicables
Reference (2009) 7:1 GenEdit, 1-14
http://www.humgen.org/int/GE/es/2009-1.pdf

Author(s) Sénécal K., Borry P., Howard H.C., Avard D.
Title Les tests génétiques offerts directement aux consommateurs : vue d'ensemble des normes et politiques applicables
Reference (2009) 7:1 GenEdit, 1-14
http://www.humgen.org/int/GE/fr/2009-1.pdf

Author(s) Sénécal K., Borry P., Howard H.C., Avard D.
Title Direct to Consumer Genetic Tests. An Overview of Guidelines and Position Papers
Reference (2009) 7:1 GenEdit, 1-14
http://www.humgen.org/int/GE/en/2009-1.pdf

Author(s) Sénécal K., Samuël J., Avard D.
Title Research and the Assent of the Child: Towards Harmonization?
Reference Paediatric Research in Canada (Montreal: Les Éditions Thémis, 2009), pp. 33-70.

Author(s) Tazzite A., Roky R., Avard D.
Title Les implications éthiques de la conservation des échantillons biologiques
Reference (2009) 2:3 Journal international de bioéthique, 87

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2008

Author(s) Avard D., Grégoire G., Coly B., Bucci L.M., Farmer Y.
Title La participation du public dans la santé publique : l'implication des communautés culturelles dans le dépistage des maladies héréditaires
Reference (2008) 39:3 Pratiques et Organisation des Soins, 231-242

Author(s) Avard D., Grégoire G., Jean M.S.
Title La Participación del Público en la Genómica en Salud Pública: Una Revisión de Lineamientos Y Políticas
Reference (2008) 6:1 GenEdit, 1-8
http://www.humgen.org/int/GE/es/2008-1.pdf

Author(s) Avard D., Grégoire G., Jean M.S.
Title Involving the Public in Public Health Genomics: A Review of Guidelines and Policy Statements
Reference (2008) 6:1 GenEdit, 1-9
http://www.humgen.org/int/GE/en/2008-1.pdf

Author(s) Avard D., Grégoire G., Jean M.S.
Title La participation du public dans la génomique en santé publique: Examen des lignes directrices et des politiques
Reference (2008) 6:1 GenEdit, 1-10
http://www.humgen.org/int/GE/fr/2008-1.pdf

Author(s) Avard D., Joly Y.
Title Improved Understanding of Genetic and Genomic Influences on Drug Disposition and Action: Implications for Children
Reference (2008) 10:5 Pediatr Drugs, 275-278

Author(s) Farmer Y., Avard D.
Title The Genetics of Type 2 Diabetes - a Look at the Scientific Advances of the DGDG Project
Reference (2008) 53:1 Diabetes Voice, 31

Author(s) Joly Y., Sillon G., Silverstein T., Krajinovic M., Avard D.
Title Pharmacogenomics: Don't Forget the Children
Reference (2008) 6 Current Pharmacogenomics and Personalized Medicine, 77-84

Author(s) Nycum G., Avard D., Knoppers B.M.
Title Familial communication of genetic information: experiences and complexities
Reference

(2008) 12:2 Network News, 18-20


Author(s) Potter B.K., Avard D., Entwistle V., Kennedy C., Chakraborty P., McGuire M., Wilson B.J.
Title Ethical, Legal, and Social Issues in Health Technology Assessment for Prenatal/Preconceptional and Newborn Screening: A Workshop Report
Reference (2009) 12:1 Public Health Genomics, 4-10

Author(s) Potter B.K., Avard D., Graham I.D., Entwistle V.A., Caulfield T.A., Chakraborty P., Kennedy C., McGuire M., Griener G.G., Montgomery M., Wells G.A., Wilson B.J.
Title Guidance for considering ethical, legal, and social issues in health technology assessment: Application to genetic screening
Reference (2008) 24:4 International Journal of Technology Assessment in Health Care, 412-422

Author(s) Potter B.K., Avard D., Wilson B.J.
Title Newborn Blood Spot Screening in Four Countries: Stakeholder Involvement
Reference (2008) 29 Journal of Public Health Policy, 121

Author(s) Sillon G., Joly Y., Feldman S., Avard D.
Title An Ethical and Legal Overview of Pharmacogenomics: Perspectives and Issues
Reference (2008) 27(4) Med Law, 843-857

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2007

Author(s) Avard D., Simard J., Horsman D., Wilson B.J., Meschino W.S., Kim Sing C., Plante M., Eisen A., Howley H.E.
Title Variations in rates: why we need clinical management recommendations
Reference (2007) 1:2 Open Medicine, Letter

Author(s) Avard D., Vallance H., Greenberg C., Potter B.
Title Newborn Screening by Tandem Mass Spectrometry
Reference (2007) 98:4, Revue canadienne de santé publique, 284-286

Author(s) Horsman D., Wilson B.J., Avard D., Meschino W.S., Kim Sing C., Plante M., Eisen A., Howley H.E., Simard J.
Title Clinical Management Recommendations for Surveillance and Risk-Reduction Strategies for Hereditary Breast and Ovarian Cancer Among Individuals Carrying a Deleterious BRCA1 or BRCA2 Mutation
Reference (2007) 29:1 Journal of the Society of Obstetricians and Gyneacologists of Canada, 45

Author(s) Kharaboyan L., Knoppers B.M., Avard D., Nisker J.
Title Understanding Umbilical Cord Blood Banking: What Women Need to Know Before Deciding
Reference (2007) 17:5 Women’s Health Issues, 277

Author(s) Phillips M.S., Joly Y., Silverstein T., Avard D.
Title Consent in Pharmacogenomic Research
Reference (2007) 5:2 GenEdit, 1-9
http://www.humgen.org/int/GE/en/2007-5.pdf

Author(s) Phillips M.S., Joly Y., Silverstein T., Avard D.
Title Le consentement à la recherche en pharmacogénomique
Reference (2007) 5:2 GenEdit, 1-10
http://www.humgen.org/int/GE/fr/2007-5.pdf

Author(s) Phillips M.S., Joly Y., Silverstein T., Avard D.
Title Consentimiento en la Investigación Farmacogenómica
Reference (2007) 5:2 GenEdit, 1-10
http://www.humgen.org/int/GE/es/2007-2.pdf

Author(s) Simard J., Dumont D., Moisan A.M., Gaborieau V., Vezina H., Durocher F., Chiquette J., Plante M., Avard D., Bessette P., Brousseau C., Dorval M., Godard B., Houde L., Joly Y., Lajoie M.A., Leblanc G., Lepine J., Lespernace B., et al., Knoppers B.M.
Title Evaluation of BRCA1 and BRCA2 Mutation Prevalence, Risk Prediction Models and a Multi-Step Testing Approach in French-Canadian High-Risk Breast and Ovarian Cancer Families
Reference

(2007) 44:2 J. Med. Genet., 107

http://jmg.bmjjournals.com/cgi/rapidpdf/jmg.2006.044388v1

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2006

Author(s) Avard D.
Title Research and Public Health Surveillance Using Newborn Bloodspots in Canada
Reference in Knoppers B.M. (ed.), Genomics and Public Health: Legal and Socio-Ethical Perspectives (Leiden/Boston: Brill/Martinus Nijhoff, 2006)

Author(s) Avard D., Bridge P., Bucci L.M., Chiquette J., Dorval M., Durocher F., Easton D., Godard B., Goldgar D., Knoppers B.M., Laframboise R., Lesperance B., Plante M., Tavtigian S.V., Vezina H., Wilson B., Simard J., INHERIT BRCAs
Title Partnering in Oncogenetic Research - The INHERIT BRCAs Experience: Opportunities and Challenges
Reference (2006) 5:1 Familial Cancer, 3-13

Author(s) Avard D., Kharaboyan L., Knoppers B.M.
Title Newborn Screening for Sickle Cell Disease: Socio-Ethical Implications
Reference First Do No Harm: Law, Ethics and Healthcare (Aldershot:  Ashgate Publishing Limited, 2006)

Author(s) Avard D., Vallance H., Greenberg C., Laberge C., Kharaboyan L., Plant M.
Title Variability in the Storage and Use of Newborn Dried Bloodspots in Canada: Is it Time for National Standards?
Reference (2006) 2:3 Genomics, Society and Policy, 80

Author(s) Lévesque E., Knoppers B.M., Avard D.
Title La protection de l'information génétique dans le domaine médical au Québec: principe général de confidentialité et questions soulevées par les dispositions d'exception
Reference (2005-2006) 36:1-2 Revue de droit de l'Université de Sherbrooke, 101 

Author(s) Patenaude A.F., Sénécal K., Avard D.
Title Whither Pediatric Research and Predisposition Genetic Testing?
Reference (2006) 4:2 GenEdit, 1-9
http://www.humgen.org/int/GE/en/2006_6en.pdf

Author(s) Patenaude A.F., Sénécal K., Avard D.
Title La recherche pédiatrique et l’utilisation des tests génétiques de prédisposition : où en sommes-nous ?
Reference (2006) 4:2 GenEdit, 1-10
http://www.humgen.org/int/GE/fr/2006_6.pdf

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2005

Author(s) Avard D., Sallee C.
Title Genetics and Disabilities: Social and Ethical Dilemmas
Reference Encylopedia of Disability (California: Sage Publications, Inc., 2006)

Author(s) Lévesque E, Avard D
Title Discrimination génétique et discrimination fondée sur le handicap: comparaison internationale des différentes approches normatives
Reference (2005) 105-106 Handicap - Revue des sciences humaines et sociales, 71

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2004

Author(s) Kharaboyan L., Avard D., Knoppers B.M.
Title Storing Newborn Blood Spots: Modern Controversies
Reference (2004) 32:4 Journal of Law, Medicine and Ethics, 741

Author(s) Laberge C., Kharaboyan L., Avard D.
Title Newborn Screening, Banking and Consent.
Reference (2004) 2:3 GenEdit, 1-15 
http://www.humgen.org/int/GE/en/2004-3.pdf

Author(s) Laberge C., Kharaboyan L., Avard D.
Title Dépistage des nouveau-nés, consentement, et mise en banque
Reference (2004) 2:3 GenEdit, 1-17 
http://www.humgen.org/int/GE/fr/2004-3.pdf

Author(s) Lacroix M, Deschênes M, Grégoire G, Kharaboyan L, Sénécal K, Avard D, Knoppers BM
Title Analyse du cadre législatif et réglementaire canadien régissant la déclaration et la gestion des renseignements de santé et des renseignements personnels de santé aux fins de contrôle et de lutte contre les maladies inectieuses
Reference Analyse du cadre législatif et réglementaire canadien régissant la déclaration et la gestion des renseignements de santé et des renseignements personnels de santé aux fins de contrôle et de lutte contre les maladies inectieuses (Santé Canada: 2004)

Author(s) Lévesque E, Knoppers BM, Avard D
Title La génétique et le cadre juridique applicable au secteur de la santé: examens génétiques, recherche en génétique et soins innovateurs
Reference (2004) 64 Revue du Barreau, 57
http://www.barreau.qc.ca/fr/publications/revue/2004/no1/pdf/57.pdf

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2003

Author(s) Avard D, Kharaboyan L
Title Informed consent and multiplex screening
Reference in Encyclopedia of the Human Genome, Nature Publishing Group, London, 2003, p. 473-477.

Author(s) Avard D, Kharaboyan L, Knoppers BM, Letendre M, Sallée C
Title The international law and policy framework governing human genetic information and the protection of privacy and human rights: issues identification report
Reference The international law and policy framework governing human genetic information and the protection of privacy and human rights: issues identification report (Canadian Ministry of Justice, 2003)

Author(s) Godard B, Joly Y, Pratte A, Avard A, Boucratie N, Knoppers BM
Title Genetic information and privacy in the workplace
Reference Genetic information and privacy in the workplace (Ottawa: Human Resources Development Canada, 2003)

Author(s) Kharaboyan L, Avard D
Title Social, ethical and legal aspects of storage of dried blood spots
Reference (2003) 11:Supplement 1 European Journal of Human Genetics, 161

Author(s) Knoppers BM, Avard D
Title Informed consent
Reference  in Encyclopedia of the Human Genome, MacMillan Reference Ltd, Nature Publishing Group, London, 2003, p. 469-472.
http://www.ehgonline.net

Author(s) Letendre M, Sallée C, Fecteau C, Kharaboyan L, Régnier M, Avard D, Knoppers BM
Title Genetic Privacy: A Comparative Approach
Reference Genetic Privacy: A Comparative Approach (Ottawa: Canadian Ministry of Justice, 2003)

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2002

Author(s) Avard D, Kharaboyan L, Knoppers BM
Title Using 'spots' in research: moving beyond screening and treatment
Reference in Newborn Screening and Genetic Testing Symposium, Proceeding. Phoenix: Association of Public Health Laboratories, 2002, pp.319-321

Author(s) Avard DM, Knoppers BM
Title Ethical dimensions of genetics in paediatric neurology: a look into the future
Reference (2002) 9:1 Seminars Pediatric Neurology, 53

Author(s) Howlett M, Avard D, Knoppers BM
Title Physicians and genetic malpractice
Reference (2002) 21:4 Medicine and Law Journal, 661

Author(s) Knoppers BM, Avard D, Cardinal G, Glass KC
Title Science and society: children and incompetent adults in genetic research: consent and safeguards
Reference (2002) 3:3 Nat Rev Genet, 221
http://www.nature.com/nrg/journal/v3/n3/pdf/nrg750.pdf

Author(s) Knoppers, B.M., Avard, D., Cardinal, G., Cranley Glass, K.
Title Children and Incompetent Adults in Genetic Research: Consent and Safeguards
Reference (2002) 3 Nature Reviews 221

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2001

Author(s) Avard D
Title Genetics and society research at the University of Montreal
Reference (2001) June/July Biotech, 48

Author(s) Avard D, Harmsen E, Mosco C, Godard B
Title International, regional and national policies on genetic testing and screening
Reference International, regional and national policies on genetic testing and screening (Paris: OECD, 2001)

Author(s) Avard D, Knoppers BM
Title Using the database HUMGEN to discover policies in human genetics, a decade of ELSI research
Reference (2001) 29:2 The Journal of Law, Medicine and Ethics, 43

Author(s) Avard D, Knoppers BM
Title Genetic screening and children: policy issues for the new millenium.
Reference (2001) 2 Canadian Journal of Policy Research, 46

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2000

Author(s) Avard D
Title Consent, genetic testing and adolescence
Reference (2000) 8:1 European Journal of Human Genetics, 70

Author(s) Avard D, Knoppers BM
Title Genetics and society project
Reference (2000) 3:3 Community Genet, 102

Author(s) Knoppers BM, Avard AP
Title L'immunité légale de la femme enceinte et l'affaire Dobson
Reference (2000) 45:1 McGill Law J, 315

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1998

Author(s) Kaczorowski J, Levitt C, Hanvey L, Avard D, Chance G
Title Use of routine procedures and technologies in Canadian hospitals providing maternity care
Reference (1998) 256 Birth, 11

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1996

Author(s) Levitt C, Kaczorowski J, Hanvey L, Avard D, Chance G
Title Breast-feeding policies and practices in Canadian hospitals providing maternity care
Reference (1996) 155:2 Canadian Medical Association Journal, 181

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1995

Author(s) Levitt C, Hanvey L, Avard D, Chance G, Kaczorowski J
Title Survey of Routine Maternity Care and Practices in Canadian Hospitals
Reference Survey of Routine Maternity Care and Practices in Canadian Hospitals (Ottawa: Minister of Supply and Services, Health Canada, 1995)

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1994

Author(s) Avard D, Chance G
Title Canada's poorest citizens: looking for solutions for children
Reference (1994) 151:4 Canadian Medical Association Journal, 419

Author(s) Hanvey L, Avard D
Title The Health of Canada's Children: A CICH Profile (Ottawa: Canadian Instituit of Child Health, 1994)
Reference The Health of Canada's Children: A CICH Profile (Ottawa: Canadian Instituit of Child Health, 1994)

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1993

Author(s) Levitt C, Watters N, Chance G, Walker R, Avard D
Title Low-birth-weight symposium: summary of proceedings
Reference (1993) 148:5 Canadian Medical Association Journal, 767

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1992

Author(s) Avard D, Wood A, English C
Title Health status indicators and the legislative environment
Reference Health status indicators and the legislative environment (Toronto: Thompson Educational Publishing, Inc., 1992)

Author(s) Watters N, Avard D
Title Prevention of Low Birthweight in Canada
Reference Prevention of Low Birthweight in Canada (Ottawa: Canadian Institut of Child Health, 1992)

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1991

Author(s) Avard D
Title Children and youth with disabilities in Canada
Reference Children and youth with disabilities in Canada (Ottawa: Statistics Canada, 1991)

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1990

Author(s) Avard D
Title The role of legislation in injury prevention
Reference (1990) 11 Chronic Diseases in Canada,

Author(s) Avard D, Post S, Drown D
Title The role of the Canadian Institute of Child Health in promoting family-centred care
Reference (1990) 19 Journal of the Association for Care of Children's Health, 199

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1989

Author(s) Avard D, Hanvey L
Title The Health of Canada's Children: A CICH Profile (Ottawa: Canadian Institute of Child Health, 1989)
Reference The Health of Canada's Children: A CICH Profile (Ottawa: Canadian Institut of Child Health, 1989)

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1986

Author(s) Avard D
Title Comments & criticism
Reference Comments & criticism (New York: W.B. Saunders Company, 1986)

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1985

Author(s) Avard D
Title The captured womb
Reference (1985) 12 Birth,

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1984

Author(s) Griener G, Avard D
Title Ethics committee on trial: a reply
Reference (1984) 50 Canadian Doctor, 10

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1983

Author(s) Avard D
Title Obstetric intervention and technology in the 1980s
Reference (1983) 10 Birth, 129

Author(s) Avard D, Robertson NRC
Title Which babies need admission to special care baby units?
Reference Which babies need admission to special care baby units? (London: Croom Helm, 1983)

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