. CGP Centre of Genomics and Policy CGP Centre of Genomics and Policy

CPG Centre of Genomics and policy

Publications

Anne-Marie Tassé

2016

Author(s) Bledsoe M.J., Henderson M., Tassé A.M., Knoppers B.M.
Title International Biobanking Summit V: Harmonizing Privacy Laws to Enable International Biobank Research
Reference

(2016) 14:5 Biopreservation and Biobanking, 452


Author(s) Briceño Moraia L., Kaye J., Tassé A.M., Knoppers B.M., Mitchell C., Soini S., Hoppe N., Wallace S.E., Øien M.
Title A comparative analysis of the requirements for the use of data in biobanks based in Finland, Germany, the Netherlands, Norway and the United Kingdom
Reference

(2016) Medical Law International, DOI: 10.1177/0968533215571956, 1


Author(s) Dalpé G, Kirby E, Ngueng Feze I, Tassé A-M, Knoppers BM, Hamet P, Tremblay J, Phillips MS, Joly Y
Title The Gatekeeping Function in Personalized Medicine Initiatives
Reference

 (2016) 14:1 Curr Pharmacogenomics Person Med, 36


Author(s) Kaye J., Briceño Moraia L., Mitchell C., Bell J., Bovenberg J.A., Tassé A.M., Knoppers B.M.
Title Access Governance for Biobanks: The Case of the BioSHaRE-EU Cohorts
Reference

(2016) 14:3 Biopreservation and Biobanking, 201


Author(s) Knoppers B.M., Nguyen M.T., Sénécal K., Tassé A.M., Zawati M.H.
Title Next-Generation Sequencing and the Return of Results
Reference

Cold Spring Harb Perspect Med


Author(s) Knoppers B.M., Sénécal K., Boisjoli J., Borry P., Cornel M.C., Fernandez C.V., Grewal J., Holm I.A., Nelson E., Pinxten W., Shabani M., Tassé A.M., Zawati M.H., Wright Clayton E, on behalf of the P3G International Paediatric Research Platform
Title Recontacting Pediatric Research Participants for Consent When They Reach the Age of Majority
Reference

(2016) 38:6 IRB: Ethics and Human Research, 1


Author(s) Tassé A.M.
Title A Comparative Analysis of the Legal and Bioethical Frameworks Governing the Secondary Use of Data for Research Purposes
Reference

(2016) 14:3 Biopreservation and Biobanking, 207


Author(s) Tassé A.M., Bledsoe M.J., Giepmans L., Rahimzadeh V.
Title Legal and Ethical Implications of Data Sharing in International Biobanking Research: Toward a Global Response
Reference

(2016) 14:3 Biopreservation and Biobanking, 193


Author(s) Tassé A.M., Kirby E., Fortier I.
Title Developing an Ethical and Legal Interoperability Assessment Process for Retrospective Studies
Reference

(2016) 14:3 Biopreservation and Biobanking, 249


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2015

Author(s) Burton P.R., Murtagh M.J., Boyd A., Williams J.B., Dove E.S., Wallace S.E., Tassé A.M., Little J., Chisholm R.L., Gaye A., Hveem K., Brookes A.J., Goodwin P., Fistein J., Bobrow M., Knoppers B.M.
Title Data Save Havens in health research and healthcare
Reference

(2015) 31:20  Bioinformatics, 3241


Author(s) Dove E.S., Joly Y., Tassé A.M., P3G International Steering Committee, ICGC Ethics and Policy Committee, Knoppers B.M.
Title Genomic cloud computing: legal and ethical points to consider
Reference

(2014) 23:10 European Journal of Human Genetics, 1271

http://www.nature.com/ejhg/index.html

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2014

Author(s) Briceño Moraia L., Kaye J., Tassé A.M., Soini S., Hoppe N., Wallace S., Knoppers B.M., Øien M.
Title A comparative analysis of the requirements for the use of data in biobanks based in Finland, Germany, the Netherlands, Norway and in the United Kingdom
Reference

(2014) 14:4 Medical Law International, 187


Author(s) Budin-Ljøsne I., Isaeva J., Knoppers B.M., Tassé A.M., Shen H.-Y., McCarthy M.I., ENGAGE Consortium and Harris J.R.
Title Data Sharing in Large Research Consortia: Experiences and Recommendations from ENGAGE
Reference

(2014) 22:3 European Journal of Human Genetics, 317


Author(s) Doiron D., Burton P., Marcon Y., Gaye A., Wolffenbuttel B.H.R., Perola M., Stolk R.P., Foco L., Minelli C., Waldenberger M., Holle R., Kvaloy K., Hillege H.L., Tassé A.M., Ferretti V., Fortier I.
Title Data Harmonization and Federated Analysis of Population-Based Studies: the BioSHaRE Project
Reference

(2013) 10:12 Emerging Themes in Epidemiology, 1


Author(s) Dove E.S., Joly Y., Tassé A.M., P3G International Steering Committee, ICGC Ethics and Policy Committee, Knoppers B.M.
Title What Are Some of the ELSI Challenges of International Collaborations Involving Biobanks, Global Sample Collection, and Genomic Data Sharing and How Should They Be Addressed?
Reference

(2014) 12:6 Biopreservation and Biobanking, 363


Author(s) Mallette A., Tassé A.M.
Title P3G Generic Information Pamphlet and Consent Form
Reference

(2014) Public Population Project in Genomics and Society (P3G), 1


Author(s) Ouellette S.,Tassé A.M.
Title P3G - 10 years of toolbuilding: From the population biobank to the clinic
Reference

(2014) 3:2 Applied & Translational Genomics, 36


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2013

Author(s) Budin-Ljøsen I., Soye K.J., Tassé A.M., Knoppers B.M., Harris J.R.
Title Genotype-driven Recruitment: A Strategy whose Time has Come?
Reference

(2013) 6:19 BMC Medical Genomics, 1


Author(s) Knoppers B.M., Deschênes M., Zawati M.H., Tassé A.M.
Title Population Studies: Return of Research Results and Incidental Findings Policy Statement
Reference

(2013) 21:3 European Journal of Human Genetics, 245


Author(s) Mallette A., Tassé A.M.
Title P3G Model Framework for Biobank Access Policy: Core Elements
Reference

(2013) Public Population Project in Genomics and Society (P3G), 1


Author(s) Mallette A., Tassé A.M., Knoppers B.M.
Title P3G Model Framework for Biobank Governance
Reference

(2013) Public Population Project in Genomics and Society (P3G), 1


Author(s) Sénécal K., Lévesque E., Fernandez C., Tassé A.M., Zawati M.H., Knoppers B.M., Avard D.
Title RMGA Statement of Principles on the Return of Research Results and Incidental Findings
Reference (Montréal, RMGA, 2013)
http://www.rmga.qc.ca/en/documents/RMGAStatement_Principles_English_May272013_000.pdf

Author(s) Sénécal K., Lévesque E., Fernandez C., Tassé A.M., Zawati M.H., Knoppers B.M., Avard D.
Title Énoncé de principes du RMGA sur la communication des résultats de recherche et des découvertes fortuites
Reference
http://www.rmga.qc.ca/fr/documents/EnonceduRMGA_versionfr_27mai2013.pdf

Author(s) Tassé A.M.
Title From ICH to IBH in Biobanking? A Legal Perspective on Harmonization, Standardization and Unification
Reference

(2013) 7:1 Studies in Ethics, Law, and Technology, 1


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2012

Author(s) Budin-Ljøsne I., Harris J.R., Kaye J., Knoppers B.M., Tassé A.M., Bravo E., Cambon-Thomsen A., Eriksson M., Kyvik K.O., Litton J.-E., Perola M., Rial-Sebbag E.
Title ELSI Challenges and Strategies of National Biobanks Infrastructures
Reference

(2012) 21:2 Norwegian Journal of Epidemiology, 155

http://www.ntnu.no/ojs/index.php/norepid/article/view/1487

Author(s) Zawati M.H., Tassé A.M.
Title To Share or Not to Share? Secondary Use in Public Health Emergencies
Reference in Canadian Institutes of Health Research – Institute of Population and Public Health. (2012). Population and Public Health Ethics: Cases from Research, Policy, and Practice. University of Toronto Joint Centre for Bioethics: Toronto, ON.

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2011

Author(s) Budin-Ljøsne, I., Tassé A.M., Knoppers B.M., Harris J.R.
Title Bridging Consent: From Toll Bridges to Lift Bridges?
Reference

(2011) 4:69 BMC Medical Genomics,1


Author(s) Joly Y., Koutrikas G., Tassé A.M., Issa A., Carleton B., Hayden M., Rieder M.J., Ramos-Paque E., Avard D.
Title Regulatory Approval for New Pharmacogenomics Tests: A Comparative Overview
Reference

(2011) 66:1 Food and Drug Law Journal, 1

http://www.fdli.org/pubs/journal/toc/vol66_1.html

Author(s) Joly Y., Tassé A.M., Dove E.S.
Title Balancing Privacy Protections with Open, Collaborative, Biomedical Research: Implications for Updating the CIHR Privacy Best Practices
Reference

(Ottawa, CIHR, 2011)


Author(s) Knoppers B.M., Harris J.R., Tassé A.M., Budin-Ljøsne I., Kaye J., Deschênes M., Zawati M.
Title Towards a data sharing Code of Conduct for international genomic research
Reference

(2011) 3:7 Genome Medicine, 1


Author(s) Ozdemir V., Muljono D.H., Pang T., Ferguson L.R., Manamperi A., Samper S., Someya T., Tassé A.M., Tsai S.-J., Zhou H.-H., Lee E.J.D.
Title Asia-Pacific Health 2020 and Genomics without Borders: Co-Production of Knowledge by Science and Society Partnership for Global Personalized Medicine
Reference

(2011) 9:1 Current Pharmacogenomics and Personalized Medicine, 1

http://www.benthamscience.com/cppm/openaccessarticles/cppm9-1/001AF.pdf

Author(s) Tassé A.M.
Title Biobanking and deceased persons
Reference

(2011) 130 Hum Genet, 415


Author(s) Tassé A.M.
Title The Return of Results of Deceased Research Participants
Reference

(2011) 39:4 Journal of Law, Medicine and Ethics, 621


Author(s) Tassé A.M.
Title Institutional Research Ethics Policies and Procedures Manuals: Required Elements
Reference

(Ottawa, PHAC, 2011)


Author(s) Tassé A.M., Knoppers B.M.
Title Governance and Use of Previously Stored Human Biological Material in the Public Health Context: Legal and Ethical Issues
Reference

(Ottawa, PHAC, 2011)


Author(s) Tassé A.M., Knoppers B.M.
Title Guidance for Biobanking: Anonymization and Disposal of Human Biological Materials from Existing Collection
Reference

(Ottawa, Health Canada, 2011)


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2010

Author(s) Tassé A. M., Letendre M, Knoppers BM
Title La recherche et les personnes décédées: l'utilisation secondaire des dossiers médicaux et du matériel biologique
Reference

(2010) 8:1 GenEdit, 1

http://www.humgen.org/int/GE/fr/2010-1.pdf

Author(s) Tassé A. M., Letendre M, Knoppers BM
Title Research and Deceased Persons : The Secondary Use of Medical Data and Biological Materials
Reference

(2010) 8:1 GenEdit, 1

http://www.humgen.org/int/GE/en/2010-1.pdf

Author(s) Tassé A.M., Budin-Ljøsne I., Knoppers B.M., Harris J.R.
Title Retrospective access to data: The ENGAGE consent experience
Reference

(2010) 18 EJHG, 741

http://www.nature.com/ejhg/journal/v18/n7/full/ejhg201030a.html

Author(s) Tassé A.M., Letendre M., Knoppers B.M.
Title Investigación y Personas Fallecidas: Uso Secundario de la Información Médica y los Materiales Biológicos
Reference

(2010) 8:1 GenEdit 1-9

http://www.humgen.org/int/GE/es/2010-1.pdf

Author(s) Tassé A.M., Sénécal K., Samuël J., Avard D., Knoppers B.M.
Title Énoncé de principes sur l’utilisation secondaire de données et de matériel biologique recueillis dans un contexte de soins ou de recherche
Reference (Montréal, RMGA, 2010)
http://www.rmga.qc.ca/files/attachments/0000/0130/RMGA-Enonce_de_principes_sur_utilisation_secondaire_2.pdf

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2009

Author(s) Tassé A.M., Godard B.
Title L'internationalisation des services génétiques: Analyse comparative des normes de gouvernance canadiennes, américaines, britanniques et australiennes
Reference L'internationalisation des services génétiques: Analyse comparative des normes de gouvernance canadiennes, américaines, britanniques et australiennes (Montréal: Thémis, 2009)

Author(s) Tassé A.M., Godard, B.
Title Analyse éthique de l’internationalisation des services de laboratoires génétiques
Reference (2009) 6:3 Éthique & Santé 152
http://www.em-consulte.com/article/228211

Author(s) Tassé A.M., Petit É., Godard B.
Title Differences in Regulatory Frameworks Governing Genetic Laboratories in Four Countries
Reference (2009) 37 Journal of Law, Medicine & Ethics, 351

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2008

Author(s) Petit É., Tassé A.M., Godard B.
Title An Empirical Analysis of the Legal Frameworks Governing Genetic Services Labs in Canadian Provinces
Reference

(2008) 16:3 H.L.R.


Author(s) Tassé A.M., Godard B.
Title L'encadrement législatif de la vente directe des tests génétiques et le système de santé québécois
Reference

(2007) 15 H.L.J., 443


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